Hi, I have had both lymphocytic colitis (about 5 years ago) and collagenous colitis (diagnosed in February of this year). I was on budenoside for 3 months (9 mg, 6, then 3)... and was fine for the last few months, but as of late, it seems to be flaring back up again.
I spoke with my doctor and he recommended Imodium AD for the next six weeks and I should see how I do.
Are there any other options? Have others gone back on the steroid, or no? Are there dietary changes I should make? How do I keep this at bay? I am having a lot of D and stomach cramping.
Any advice would be much appreciated! Thank you!
New to this forum - please help!
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Fletch,
Welcome to our Internet family. Yes, you can go back to the meds, but each time you restart them, they become a little less effective until they eventually quit working. We have found that the reason why the symptoms keep coming back is because of food sensitivities that develop as a result of the increased intestinal permeability (leaky gut) caused by gluten. Many doctors deny this, but they are wrong. We're not necessarily celiacs, but we all have non-celiac gluten sensitivity. And that leads to other food sensitivities. To permanently stop the inflammation from being regenerated each time we eat, we have to change our diet to avoid all our food sensitivities.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our Internet family. Yes, you can go back to the meds, but each time you restart them, they become a little less effective until they eventually quit working. We have found that the reason why the symptoms keep coming back is because of food sensitivities that develop as a result of the increased intestinal permeability (leaky gut) caused by gluten. Many doctors deny this, but they are wrong. We're not necessarily celiacs, but we all have non-celiac gluten sensitivity. And that leads to other food sensitivities. To permanently stop the inflammation from being regenerated each time we eat, we have to change our diet to avoid all our food sensitivities.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex! Thanks for your response. This is helpful to know. I found a recommended diet to start with on this board - with various stages. Would you recommend going on that for now? I have been off dairy for years, but I was eating gluten. I am guessing I should try going off gluten too?
Thanks again!
Thanks again!
Yes, gluten is the main offender. And if the diet you found was in the following section, it should do the job.
Guidelines for Recovery
Good luck, you're on your way to recovery.
Tex
Guidelines for Recovery
Good luck, you're on your way to recovery.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Welcome Fletch
yes the guidelines to recovery section with the stage 1 and stage 2 eating plans is what most people find very helpful to minimising issues and optimising healing.
on the post about the stage 1 eating plan, is quite a bit of information (links to articles etc) about gluten and why it is so inflammatory to the body (not just those with MC or IBD's but for all the population)
hope this helps
yes the guidelines to recovery section with the stage 1 and stage 2 eating plans is what most people find very helpful to minimising issues and optimising healing.
on the post about the stage 1 eating plan, is quite a bit of information (links to articles etc) about gluten and why it is so inflammatory to the body (not just those with MC or IBD's but for all the population)
hope this helps
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Brandy is right about not rushing. My case might be unique because I was so sick, but even though I tried often, it took me about a year and a half of healing (following the adoption of a very restrictive diet) before I was able to successfully reintroduce any foods such as corn and raw vegetables. By trying unsuccessfully to reintroduce foods, I probably slowed down my healing. What you will be able to successfully reintroduce depends upon your personal genetics/situation.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi, Fletch. Nothing to add, just wanted to say hello and welcome to our group. It's the best one around for help on your journey to healing.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
only integrate new foods when;
- you have had good stable period of minimal symptoms ie at least 2 months of next to no symptoms
- when you are in a good place with life - sleep quality, family life, work life etc
the longer you stay on the 'safe eating plan' the better quality healing journey you will have. as we age and as we have more flares, the bodies ability to heal reduces. I strongly encourage you to make the most of the first healing journey..
- you have had good stable period of minimal symptoms ie at least 2 months of next to no symptoms
- when you are in a good place with life - sleep quality, family life, work life etc
the longer you stay on the 'safe eating plan' the better quality healing journey you will have. as we age and as we have more flares, the bodies ability to heal reduces. I strongly encourage you to make the most of the first healing journey..
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama