I was diagnosed with lymphocytic colitis about 1 year ago. When first diagnosed I was put on budesonide ad within 48 hrs had relief. I stayed on the budesonide for four months and everything seemed to be ok except for the occasional flare-up. I made no great diet changes during this time as it was not suggested. In June I had a major flare starting with 25-30 WD episodes a day which ended up with a 6 day hospital stay because my potassium was so low that I was experiencing heart arrhythmias. I was given IV steroids as well as potassium while in hospital and sent home on prednisone. Saw my GI Dr. and he has kept me on the prednisone (tapering now) and added mesalamine. The only dietary restrictions were no refined sugars or sugar substitutes and no lactose. I did ok for a couple of weeks and again am having a few flare-ups. After reading many posts, plus the book (read whole thing yesterday!!) Guess I need to go gluten free. I have decided to go on the paleo diet. Do you think this would help?
I was so happy to find this site. It is a wealth of great information and ideas. Just hoping I can get this under control and that I can feel reasonably normal again. It interferes with EVERYTHING and not many people understand that!!
Marty
New to this site
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Marty,
Welcome to our Internet family. Yes, your response to medications is typical, but if you want to stop the inflammation from being regenerated with each meal, a diet change is indeed necessary to avoid all your inflammatory foods. The diet change can be made with or without medications, but with any luck at all, after your immune system stops producing antibodies to certain foods, and your intestines heal (which takes a while), even though the disease has no cure, you won't need any medications to remain in remission — you just have to carefully watch what you eat.
We have to establish a new normal, because so much of our life revolves around food, but by changing our diet we're able to once again be healthy, happy, and no longer required to worry about the location of the nearest bathroom.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our Internet family. Yes, your response to medications is typical, but if you want to stop the inflammation from being regenerated with each meal, a diet change is indeed necessary to avoid all your inflammatory foods. The diet change can be made with or without medications, but with any luck at all, after your immune system stops producing antibodies to certain foods, and your intestines heal (which takes a while), even though the disease has no cure, you won't need any medications to remain in remission — you just have to carefully watch what you eat.
We have to establish a new normal, because so much of our life revolves around food, but by changing our diet we're able to once again be healthy, happy, and no longer required to worry about the location of the nearest bathroom.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi, Marty. Welcome to our group! Search the forums, ask questions, make dietary changes and before you know it like Tex said, you won't have to think about the nearest bathroom!
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Marty
welcome to the group
(and sympathies that you had to find us)
check out the member success stories area - here you will see what others have done, how long it took to feel normal again....
we also have a good foundation of info in the 'guidelines to recovery' section. the eating plan that is low inflammation and optimises healing, info on key supplements like Vit D3 and magnesium etc and various other aspects of 'life with MC'
keep reading, keep asking questions!
welcome to the group
(and sympathies that you had to find us)
check out the member success stories area - here you will see what others have done, how long it took to feel normal again....
we also have a good foundation of info in the 'guidelines to recovery' section. the eating plan that is low inflammation and optimises healing, info on key supplements like Vit D3 and magnesium etc and various other aspects of 'life with MC'
keep reading, keep asking questions!
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
It takes some work, but you'll get there!