As you know, I've been on and off of Entocort many times and it always puts me into remission and allows me to eat ANYTHING I want with no issues. I'm on it now, too, and plan to continue weaning off after my upcoming travels with the hopes that going gluten free (3 weeks ago) will have kicked in a bit and help me get off Entocort. But this time around, I am NOT able to "eat anything". Some stuff goes right through me, and I'm confused as to why that's happening this time when, in the past, the meds used to give me a stomach of steel.
Granted, I'm only taking 2, but almost always in the past I get down to 2 a day very quickly and still stayed in remission. Is there any connection to me now being gluten free that is affecting how the Entocort is working? I guess it's a good thing because I wouldn't be able to do these food experiments if the Entocort was masking all symptoms, but I'm wondering WHY I can still get hit (and hit hard) with diarrhea while on Entocort.
Thoughts?
Sue
Another curiosity question: Entocort and gluten free?
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Another curiosity question: Entocort and gluten free?
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
There is published research (the reference is listed in my book) that shows that each time budesonide is stopped and restarted, it becomes a little less effective. The rate varies by the individual, but the effect is cumulative, so eventually budesonide stops working for virtually all patients. So it's a good thing you've started the diet.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I could always go back up to three a day but I really, REALLY want off this stuff ASAP so will hold at 2 and continue to carefull "test" foods while I remain gluten free. I guess I was quite fortunate that I had such good luck with the Entocort for so many years, but from another point of view, it also allowed me to keep doing damage to my gut. So was I lucky? Not so sure anymore.
Sue
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!