Hello to my new MC family - I am relieved to find such a big and caring support group for this confusing disease I'm learning about. Here's my story, briefly, and my first questions. Thanks in advance for your help!
- 62 year old female, Hashimotos thyroid disease since age 20; lifelong battle with constipation; other autoimmune issues such as skin thinness, alopecia areata for brief period, arthritis; asthma and high blood pressure (ain't genetics great?); thin to underweight typically; past active runner, now walk/run when I can get out; several past colon inflammation issues but never diagnosed until having 35 days of horrible diarrhea (home bound, life changing, type); colonoscopy biopsies finally diagnosed CC just three weeks ago; doctor had me stop Rx for acid reflux that I'd been taking for about 2 years and had me take lots of Pepto for two weeks
- Question: My month long diarrhea stopped suddenly just three days after colonoscopy, before I stopped the Rx. I've gone back to eating whatever I want and seemingly no issues. This CC episode came at a happy time in my life, so not a current stress triggered thing, but still recovering from extreme stress event two years ago. I realize I am very lucky to be symptom free right now... Should I expect my CC to just reappear at any time, does it come on more frequently as it progresses (does it even progress/worsen or just stay same), because it sounds like it never goes away?
- Question: Given that I've not been able to detect any food sensitivities (yet), what's the number one piece of advice you'd give me for being cautious anyway to minimize possible reoccurrences?
Thanks to all!
Judy
Finally diagnosed with CC!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Judy!
It's normal for some people to go symptom free (remission) after a colonoscopy because of the cleanout on the intestines. The same happened to me. After my colonoscopy I spent a month and half without any problems, and I ate everything - cakes, cookies, butter, bread, vegetables, etc, until the moment I had a really really stressful day, and my D was back -.- So, if possible, stay away from stressful situations and continue having a happy time!
I also dont have many food sensitives, but I definitely cut out some things of my diet - milk, coffee, cookies and other sugar foods, french fries, high fat meat, etc.
I do eat some of those things sometimes (because I really can't say "no" to a good dessert xD ) and I have no problems, my body actually doesn't react badly, but still I chose to reduce those kinda of foods because they are bad for your inflammation and even though your body is not reacting now, the inflammation is probably increasing, and the symptoms will come back.
A lof of people with microscopic colitis tend to be sensitive to gluten, so pay attention to that. Thankfully, I don't have any problems with gluten, at least for now, and I hope you're lucky too. Also, lactose can be a problem. Actually the only thing that my doctor adviced me was to cut out milk and other lactose products from my diet, but that I could try lactose free ones, but since I don't really drink milk or eat yoghurts, I dont really know how "safe" lactose free products are.
Your CC can definitely be back, and that's why we should be careful with our diet and stay away from stressful situations!
Someone from this group, Tex, has been in remission for 13 years!
If I would advice you something, is that you should definitely try removing lactose and sugar foods from your diet, as well as fried foods. And pay attention to gluten. If you become sick again, try removing gluten from your diet too and see how your body reacts.
I hope you the best and a long remission! Keep having a happy time!
Jéssica
It's normal for some people to go symptom free (remission) after a colonoscopy because of the cleanout on the intestines. The same happened to me. After my colonoscopy I spent a month and half without any problems, and I ate everything - cakes, cookies, butter, bread, vegetables, etc, until the moment I had a really really stressful day, and my D was back -.- So, if possible, stay away from stressful situations and continue having a happy time!
I also dont have many food sensitives, but I definitely cut out some things of my diet - milk, coffee, cookies and other sugar foods, french fries, high fat meat, etc.
I do eat some of those things sometimes (because I really can't say "no" to a good dessert xD ) and I have no problems, my body actually doesn't react badly, but still I chose to reduce those kinda of foods because they are bad for your inflammation and even though your body is not reacting now, the inflammation is probably increasing, and the symptoms will come back.
A lof of people with microscopic colitis tend to be sensitive to gluten, so pay attention to that. Thankfully, I don't have any problems with gluten, at least for now, and I hope you're lucky too. Also, lactose can be a problem. Actually the only thing that my doctor adviced me was to cut out milk and other lactose products from my diet, but that I could try lactose free ones, but since I don't really drink milk or eat yoghurts, I dont really know how "safe" lactose free products are.
Your CC can definitely be back, and that's why we should be careful with our diet and stay away from stressful situations!
Someone from this group, Tex, has been in remission for 13 years!
If I would advice you something, is that you should definitely try removing lactose and sugar foods from your diet, as well as fried foods. And pay attention to gluten. If you become sick again, try removing gluten from your diet too and see how your body reacts.
I hope you the best and a long remission! Keep having a happy time!
Jéssica
She's a butterfly with broken wings and bleeding feathers, but still she flies... - J.Iron Word
- August 2017 - Diagnosed with Lymphocytic Colitis at 21 years old
- Probiotics + Budenofalk 9mg + Vitamin D3 2200 IU
- August 2017 - Diagnosed with Lymphocytic Colitis at 21 years old
- Probiotics + Budenofalk 9mg + Vitamin D3 2200 IU
Hello Judy,
Welcome to our Internet family. Jessica is right, the cleanout for a colonoscopy allows many MC patients to enjoy a period of temporary remission. Your symptoms will probably return when something upsets your system. Without treatment, it usually gets worse over time. Enjoy your lucky break as long as it lasts.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our Internet family. Jessica is right, the cleanout for a colonoscopy allows many MC patients to enjoy a period of temporary remission. Your symptoms will probably return when something upsets your system. Without treatment, it usually gets worse over time. Enjoy your lucky break as long as it lasts.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
