Help! D to C to D to C!

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Post Reply
skp
Adélie Penguin
Adélie Penguin
Posts: 214
Joined: Thu Jan 12, 2017 11:51 am
Location: North Carolina

Help! D to C to D to C!

Post by skp »

I could sure use advice. I was diagnosed Jan 4, 2017 with LC after several weeks of D, 5-7 times per day.

I immediately quit eating gluten and dairy.
I quit eating soy and egg via Enterolab on March 12.
Strict Stage One Diet, lots of homemade bone broth.
Began magnesium and vitamin D, 500-750 mg per day with Doctors Best glycinate and mag lotion. Tapered mag down some as time went on.
Budesonide Jan 10-May 4 with a slow wean off.

June, July mostly Normals.
Road trip end of July, with C (for years I have had C when I have traveled) I was very careful with my diet while traveling. Continued Mag and Vit D.
Returned home, four days later, gut pain, some WD, soft stools, GERD, then C set in.
August and Sept, C with occasional hard stools.
Increased fiber a lot, took Mag Citrate and some Mag Oxide. Colace helped once.
Sept 29, Very Soft stool, bad cramping, and then D on Oct 2.
Oct 3, flew to see girlfriends for a yearly girlfriend reunion. Food was easy as we all stayed together in one house. Fun time. Had D the morning I was to leave, took Imodium. This was not a stressful trip for me although I suppose I dwelt on the food I would need to buy, etc.
C the whole time I was away from home. A Colace barely helped.
Returned home Oct 11. Oct 13, WD, cramping.
Now, back to C.

How do I navigate these waters? C is nice only because I can eat fiber but I know that C is not good for me. Never knowing when the other shoe will drop is difficult. I am taking plenty of Mag and Vitamin D (650-700 Mag, 3500 Vitamin D right now.) I feel good unless I have cramping while I am unclogging, it seems.

Do I not eat fiber when I have C? It's the only thing that seems to help some.

Thanks for any suggestions. I know that many have mostly D but that some of us may go back and forth.
Susan
User avatar
Erica P-G
Rockhopper Penguin
Rockhopper Penguin
Posts: 1815
Joined: Sun Mar 08, 2015 2:06 pm
Location: WA State

Post by Erica P-G »

Hi Susan,

A flag for me would be fiber....period....it is like sand paper for our gut when we have a diagnosis of LC or any colitis.

I know you need a relief for C so upping the Magnesium ( I took around 1000 mg while healing, and 10,000 VitD3 for about 6-7 months), eating safe fruit or basically one with more fructose sugars in it like Grapes (those get me going pretty quickly and I don't have C, but I love really crunchy grapes so will splurge on a few once in a while). Applesauce, Oranges, etc....at least with fruit you can regulate how much it may take for relief and still enjoy some fruit, (which most of us can not have with LC, CC or MC). I know fruits have fiber so perhaps just the juice would be good enough (prune juice is well known for C relief).

I wish you balance soon :-)
E
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Agree with Erica's suggestion for the Vit D3 and magnesium.
That is a low Vit D3 intake for someone with inflammation, increasing it to 5000 would be a good option.

it can take a little while to find the 'happy sweet spot' of what works for you with fibre intake, etc so that you are not having C issues.

to avoid too much sugar intake, rather than fruit juice, increasing water intake, increasing oil intake is a good way to support the body clearing poop. (this works better than increasing fibre as fibre tends to bulk the stool and if you are having intermittant C issues then a bulkier stool is something to be avoided)
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
User avatar
Erica P-G
Rockhopper Penguin
Rockhopper Penguin
Posts: 1815
Joined: Sun Mar 08, 2015 2:06 pm
Location: WA State

Post by Erica P-G »

It just hit me why Cod Liver Oil was used way back when...I remember my grandma talking about it....said it was the darnedest stuff, but would work every time! Bet it loosened up the pipes for sure!!
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

It just hit me why Cod Liver Oil was used way back when...I remember my grandma talking about it....said it was the darnedest stuff, but would work every time! Bet it loosened up the pipes for sure!!
yes, it was a gentle support to easing the bowel motion out. lining the walls of the gut

our MC safe eating plan can be low in fat due to avoiding processed foods/takeaways. that is why fat intake is important
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
skp
Adélie Penguin
Adélie Penguin
Posts: 214
Joined: Thu Jan 12, 2017 11:51 am
Location: North Carolina

Post by skp »

Erica and Gabes,
You are such a help! Your suggestions make so much sense. I will increase Mag and Vitamin D and add more oil. Also, carefully monitor the fiber I eat and keep it to a minimum. I did try to eat two prunes not long ago and it didn't help and grapes have not been successful. But maybe that was because I was bulking with too much other fiber like beans and salads and nuts.

Susan
Post Reply

Return to “Main Message Board”