I have had a difficult time coming to grips with the idea I have to be gluten free! Like many I was told I was negative for a gluten problem. Two years later I was trying to loose weight and tried an elimination diet. When cutting out gluten within a weeks time life was so different! BM normalized, hair wasn’t falling out, energy was coming back. I was in shock!
So back to this form I came. Because I’m a little(a lot) stubborn. I wanted to really see if gluten was really a problem or just a fluke. So I ate 1 piece of pizza, I was miserable. The next day it started all day felt terrible and D started and wouldn’t stop. So I got the message. But it has taken 2 weeks to just begin to get back what I had. It seems I’m extra sensitive now to it!
Am I really extra sensitive now because I eliminated it from my diet? can you have a rebound-whiplash experience?
Dx with LC 2 years ago by biopsy.
Thanks, Ginny.
Rebound effect
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Ginny,
You won't find this in the medical literature (at least I haven't been able to find it), but yes, our experience shows that as we exclude gluten from our diet, we become more sensitive to it. This is also found in induced oral tolerance. Any allergist will tell you that after you take treatments and attain oral tolerance of an allergen, in order to maintain that tolerance you must ingest the allergen regularly or you will lose the tolerance. This is true because with induced oral tolerance, the inflammation never stops — only the clinical symptoms stop. But then clinical symptoms return if oral intolerance is not maintained by regular exposure to the allergen.
Strict avoidance of an allergen is the opposite of that process. But by strict avoidance you not only stop the symptoms, you also stop the inflammation. Allergists don't seem to have learned the importance of that distinction yet, because there's too much money to be made in induced tolerance. The problem is that they induce tolerance at the expense of the patient's long-term health by guaranteeing that inflammation will be perpetuated. At least that's my opinion.
Tex
You won't find this in the medical literature (at least I haven't been able to find it), but yes, our experience shows that as we exclude gluten from our diet, we become more sensitive to it. This is also found in induced oral tolerance. Any allergist will tell you that after you take treatments and attain oral tolerance of an allergen, in order to maintain that tolerance you must ingest the allergen regularly or you will lose the tolerance. This is true because with induced oral tolerance, the inflammation never stops — only the clinical symptoms stop. But then clinical symptoms return if oral intolerance is not maintained by regular exposure to the allergen.
Strict avoidance of an allergen is the opposite of that process. But by strict avoidance you not only stop the symptoms, you also stop the inflammation. Allergists don't seem to have learned the importance of that distinction yet, because there's too much money to be made in induced tolerance. The problem is that they induce tolerance at the expense of the patient's long-term health by guaranteeing that inflammation will be perpetuated. At least that's my opinion.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
- Emperor Penguin
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- Location: Hunter Valley NSW Australia
Further to what Tex has replied above, GLuten is inflammatory and damages the villi of the gut, but did you know that gluten is harsh on liver, more so than alcohol!!
whether it is the actual proteins in gluten OR the increase of chemicals that are being found in wheat doesnt really matter, as consuming current day wheat/gluten is as bad as knowingly consuming labelled poisons.
https://www.glutenfreesociety.org/glute ... onnection/
whether it is the actual proteins in gluten OR the increase of chemicals that are being found in wheat doesnt really matter, as consuming current day wheat/gluten is as bad as knowingly consuming labelled poisons.
https://www.glutenfreesociety.org/glute ... onnection/
More than 250 scientific studies have linked gluten sensitivity to liver and gallbladder disease
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Glfouts207
- Posts: 9
- Joined: Fri Oct 06, 2017 9:10 am
Forever means forever
Wow, that is all very sobering. I have so much to learn. So being gluten free is forever?
I hate the idea that there is one more thing that is wrong with me. I’ve ordered the Entrolab test, but I’m afraid of what else it will tell me.
I know I developed LC because of all the antibiotics I’ve been on for the last 20 plus years.
But for the 8 weeks I’ve been off gluten, I’ve not had sinus problems! That is a miracle. I can’t remember the last time I’ve been off antibiotics for 8 weeks. It is worth it for me.
Thanks y’all, Now I’m really glad I didn’t take those allergy shots, they just make you feel worse than you all ready do.
So today I’m wrapping my head around forever. It is such a life changer. I feel a little lost.
Ginny
I hate the idea that there is one more thing that is wrong with me. I’ve ordered the Entrolab test, but I’m afraid of what else it will tell me.
I know I developed LC because of all the antibiotics I’ve been on for the last 20 plus years.
But for the 8 weeks I’ve been off gluten, I’ve not had sinus problems! That is a miracle. I can’t remember the last time I’ve been off antibiotics for 8 weeks. It is worth it for me.
Thanks y’all, Now I’m really glad I didn’t take those allergy shots, they just make you feel worse than you all ready do.
So today I’m wrapping my head around forever. It is such a life changer. I feel a little lost.
Ginny
Ginny,
If you just take life a day at a time for a while it will soon become the new normal and your new lifestyle will gradually become automatic. And as you've already noticed, going GF has the fringe benefit of correcting a lot of other things that are wrong with us. Going GF will also usually prevent the development of new autoimmune diseases so that you will be more likely to live healthier and happier (with fewer health problems) as you get older.
Tex
If you just take life a day at a time for a while it will soon become the new normal and your new lifestyle will gradually become automatic. And as you've already noticed, going GF has the fringe benefit of correcting a lot of other things that are wrong with us. Going GF will also usually prevent the development of new autoimmune diseases so that you will be more likely to live healthier and happier (with fewer health problems) as you get older.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I didn't realize that I would be more sensitive to gluten, casein, soy, egg by staying away from it either. I knew that I was never going to be able to go out and grab a cheeseburger and ice cream but had thought that by eliminating problem foods and reducing/eliminating inflammation, that if there was a time when I had a slight exposure to something, I would have a reduced chance of reacting to it.
I'm grateful to know this as knowledge is power but I've got to say, it's kind of depressing.
So much to learn....
Love,
Pam
I'm grateful to know this as knowledge is power but I've got to say, it's kind of depressing.
So much to learn....
Love,
Pam
The increased sensitivity only lasts until your intestines heal. After you heal, your residual antibody level will return to a normal level and you will no longer have an increased sensitivity to those foods. In fact, after a while your sensitivity should decrease to a much lower level than it was initially, unless your diet is regularly cross-contaminated or otherwise compromised.Pam wrote:but had thought that by eliminating problem foods and reducing/eliminating inflammation, that if there was a time when I had a slight exposure to something, I would have a reduced chance of reacting to it.
Some people find that they can eventually tolerate certain foods after a while (even gluten). But if they continue to eat those foods regularly, their antibody levels will climb, the damage (inflammation) will increase, and they'll be back to square one before they realize what's happening. IOW, if you're accidentally (or otherwise) re-exposed to those foods, your antibody level will begin to increase again, and so will your sensitivity, but for a while you'll have lowered sensitivity. And if you stick with your diet, an accidental exposure should not cause a major reaction — only a temporary warning.
I hope I've explained the situation without just adding to the confusion.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex,
Thank-you!!! I get it now. While I'm healing, an accidental exposure will cause a greater reaction but after a good period of healing time, it wouldn't. Either way, no pizza and ice cream. I did buy some of that nice coconut ice cream that you recommended and I look forward to giving that a try over the weekend.
I so appreciate your input and the help of the wonderful community here.
Love,
Pam
Thank-you!!! I get it now. While I'm healing, an accidental exposure will cause a greater reaction but after a good period of healing time, it wouldn't. Either way, no pizza and ice cream. I did buy some of that nice coconut ice cream that you recommended and I look forward to giving that a try over the weekend.
I so appreciate your input and the help of the wonderful community here.
Love,
Pam
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Gabes-Apg
- Emperor Penguin
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- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
further to this, sticking with the safe eating plan as your normal, means that your body copes better in times of stress, of when you are fighting colds/flu etc. increasing the antibody level (inflammation) depletes key nutrients the immune system uses.Some people find that they can eventually tolerate certain foods after a while (even gluten). But if they continue to eat those foods regularly, their antibody levels will climb, the damage (inflammation) will increase, and they'll be back to square one before they realize what's happening. IOW, if you're accidentally (or otherwise) re-exposed to those foods, your antibody level will begin to increase again, and so will your sensitivity, but for a while you'll have lowered sensitivity. And if you stick with your diet, an accidental exposure should not cause a major reaction — only a temporary warning.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I think I learned more just now reading this post....
In fact it has given me a better lead-line on hope for the future based on LC and how much it has made me change my life these last two years.
I don't mind what I've had to do to help myself feel better, but I have been a bit more paranoid about gluten than I need to I think....I have OFF days with my gut but not to the point that I can't function. I must be healing....I am sure I am getting small doses of floating gluten just working in the environment that I do being around College Foodservice, not cooking, just 'being amongst the workers and food".
I suppose it if takes me a little longer to keep healing it's what I will need to do until I can retire. I must be healing regardless of my position in the office (I'm not always around the food) otherwise I would not be seeing any results up to this point and I would still be flaring more often than not.
I throw in an occasional chicken egg into my gluten free baked items but I don't bake very often, and when I do the product goes in the freezer and it gets eaten slowly over time.
I completely stay away from dairy and soy....
It's a crap shoot when it comes to histamine and causing me to have flare days so I hope over time histamine issues get better too.
Ginny....thank goodness now days it is easier to get ahold of things to use on a daily basis that are Gluten Free!
In fact it has given me a better lead-line on hope for the future based on LC and how much it has made me change my life these last two years.
I don't mind what I've had to do to help myself feel better, but I have been a bit more paranoid about gluten than I need to I think....I have OFF days with my gut but not to the point that I can't function. I must be healing....I am sure I am getting small doses of floating gluten just working in the environment that I do being around College Foodservice, not cooking, just 'being amongst the workers and food".
I suppose it if takes me a little longer to keep healing it's what I will need to do until I can retire. I must be healing regardless of my position in the office (I'm not always around the food) otherwise I would not be seeing any results up to this point and I would still be flaring more often than not.
I throw in an occasional chicken egg into my gluten free baked items but I don't bake very often, and when I do the product goes in the freezer and it gets eaten slowly over time.
I completely stay away from dairy and soy....
It's a crap shoot when it comes to histamine and causing me to have flare days so I hope over time histamine issues get better too.
Ginny....thank goodness now days it is easier to get ahold of things to use on a daily basis that are Gluten Free!
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
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Glfouts207
- Posts: 9
- Joined: Fri Oct 06, 2017 9:10 am
I’m so glad I can find a few things. I’m backing off dairy until I get lab results. I really can’t eat much gluten food anyway, I wasn’t one of the people that lost weight with LC, quite the opposite. So I miss the occasional bun, onion ring, enchilada, or sandwich, the list could go on...But I’m more than willing to find complete healing, not just managing my symptoms. As usual Doc was no help so haven’t been back to him in over a year.
But at least Y’all made sense to why it took me awhile to get back to a base line. Was beginning to think I’d really messed up, or maybe it was just in my head. But now I’m doing better. Haven’t had to take any immodium for 5 days now!
Thanks, Ginny
But at least Y’all made sense to why it took me awhile to get back to a base line. Was beginning to think I’d really messed up, or maybe it was just in my head. But now I’m doing better. Haven’t had to take any immodium for 5 days now!
Thanks, Ginny