Hi,
I wanted to take a minute to introduce myself. I was diagnosed last week with lymphocytic colitis after struggling with diarrhea for over 6 months. (I finally found a good GI who knew what tests were needed and listened to my symptoms.)
I've spent the past week reading over many post on this message board. Thank you for all of the helpful information!
My GI specialist has put me on Uceris (steroid) which already seems to be helping somewhat, although it's making me slightly anxious and feeling "revved" up. Did anyone else have that experience?
My GI told me for now to eat whatever I want, which I found slightly alarming. Common since tells me that my diet plays a role. And all of you have such specific diets. Are all GI doctors like this?
Thanks in advance for your input!
Newbie
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Lisa,
Welcome to our Internet family. I've never taken any meds for MC, but from reading posts here over many years, it's clear that all corticosteroids cause sort of a hyperactive feeling. They are, after all, a synthetic form of cortisol, which the body produces naturally to regulate activity level during the day. By adding more "cortisol" to what's already available in the body, most people find themselves somewhat hyperactive.
Most GI Specialists are way behind on the learning curve because their hospitals only allow them to use "approved" practices (according to legal regulations), and there are not many published studies to date showing the benefits of the diet for treating IBDs. There have been a few studies published, but most GI docs do not stay abreast of current research and they are slow to change their methods. Besides, if they mention "diet changes" to most patients, they usually encounter a lot of resistance. Everyone wants a pill, because that's quick and easy to swallow (even though it doesn't work in the long run. Diets are hard, and take a lot of work and dedication, so they're not very popular, despite the fact that they provide permanent relief without any of the adverse side effects of drugs.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our Internet family. I've never taken any meds for MC, but from reading posts here over many years, it's clear that all corticosteroids cause sort of a hyperactive feeling. They are, after all, a synthetic form of cortisol, which the body produces naturally to regulate activity level during the day. By adding more "cortisol" to what's already available in the body, most people find themselves somewhat hyperactive.
Most GI Specialists are way behind on the learning curve because their hospitals only allow them to use "approved" practices (according to legal regulations), and there are not many published studies to date showing the benefits of the diet for treating IBDs. There have been a few studies published, but most GI docs do not stay abreast of current research and they are slow to change their methods. Besides, if they mention "diet changes" to most patients, they usually encounter a lot of resistance. Everyone wants a pill, because that's quick and easy to swallow (even though it doesn't work in the long run. Diets are hard, and take a lot of work and dedication, so they're not very popular, despite the fact that they provide permanent relief without any of the adverse side effects of drugs.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Lisa and welcome!
I think most docs think what you eat doesn't matter...and I agree, you can eat what you want....just don't expect to ever heal when you eat foods that continue the inflammation cycle... I've learned that there is precious little I can eat and not react....but I've learned to be at peace about that because for me the alternative is days and nights of diarrhea and severe cramping... I like sleep, I like to go places , I like to be a normal weight...BINGO! I'm careful what I eat....
Some here get tested at Enterolabs and learn what foods to avoid and that proved helpful to me.....
Hang around & ask questions and you won't be a newbie for long!
Sunny
I think most docs think what you eat doesn't matter...and I agree, you can eat what you want....just don't expect to ever heal when you eat foods that continue the inflammation cycle... I've learned that there is precious little I can eat and not react....but I've learned to be at peace about that because for me the alternative is days and nights of diarrhea and severe cramping... I like sleep, I like to go places , I like to be a normal weight...BINGO! I'm careful what I eat....
Some here get tested at Enterolabs and learn what foods to avoid and that proved helpful to me.....
Hang around & ask questions and you won't be a newbie for long!
Sunny
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Upton Sinclair