Finally ready to declare success!

Updates from members who have been successful in controlling their symptoms.

Moderators: Rosie, JFR, Gabes-Apg, grannyh, Mars, starfire, Polly, Joefnh

Cat
Posts: 12
Joined: Mon Sep 18, 2017 8:03 am
Location: Denver

Thank you, Gabes and Wayne

Post by Cat »

Wayne and Gabes,

I appreciate both of you responding so caringly and thoroughly to my (frustrated) queries about the specificity of diet.

It takes a minute to get your head, heart and soul wrapped around the true life shift one makes to mend this malady.

I have a couple of clarifying questions:

1 - Anyone use grass-fed butter (as pure as the meats we eat)? I have used it in very limited quantities with no apparent fall-out (but I'm new to this);

2 - Gabe - would you say you're in complete remission? What is your day-to-day diet these days to maintain control of your MC?

3 - Can anyone who's found healing/remission give me some feedback on your coffee and/or wine intake? I tried (after 6 weeks with NO coffee or caffeine) a "bulletproof coffee" last week - with no problem ... I have also (2 months into this) had a handful of small glasses of both white and red wine, without seeing any direct reactions.

4 - Where do you buy these types of meats? pure turkey, etc.? I've been purchasing from Corner Post Meats, but their selection can sometimes be iffy. I'd like to know another outlet.

5 - Any trick to making your beef bone broth taste great? I've roasted the bones (425 degrees, 45 minutes) and THEN made the broth, throwing in some carrot, celery and onion ... salt and pepper, a bit of garlic. Still, it was a grayish broth that I'm not crazy about.

6 - Any experience with "cold food" reactions? I've had stomach aches and later, WD, 15 minutes after eating a cucumber ... or drinking a "powerhouse green drink" from whole foods (just 4 - 5 green things, i.e., parsley, etc.). Do you stay completely away from cold foods? My Chinese medicine/nutritionist gal speaks to how Chinese medicine promotes warm foods ...

Thank you!

Cathie
Cathie
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

1 - Anyone use grass-fed butter (as pure as the meats we eat)? I have used it in very limited quantities with no apparent fall-out (but I'm new to this);
Butter still contains caesin (Dairy) and can be inflammatory in the early stages of healing.


2 - Gabe - would you say you're in complete remission? What is your day-to-day diet these days to maintain control of your MC?

I have multiple AI issues so have stuck with low inflammation, low amount of brand ingredients eating plan to optimise wellness and keep inflammation levels down in my body. I do consider my MC in remission and have done lots of work to heal leaky gut etc.
my eating plan is high protein, low carb, well cooked safe ingredients. only have small amount of wine as a treat every few months


3 - Can anyone who's found healing/remission give me some feedback on your coffee and/or wine intake? I tried (after 6 weeks with NO coffee or caffeine) a "bulletproof coffee" last week - with no problem ... I have also (2 months into this) had a handful of small glasses of both white and red wine, without seeing any direct reactions.
I have 1-2 black coffees each morning. I have small amounts of wine every few months as treats.
Wine is again high inflammatory (like dairy) AND tends to be high histamine. you may not be having direct reactions but over time all the little 'bits' of inflammation build up and there tends to be a tipping point which can lead to major flare.


4 - Where do you buy these types of meats? pure turkey, etc.? I've been purchasing from Corner Post Meats, but their selection can sometimes be iffy. I'd like to know another outlet.
I am based in Australia so not really able to offer suggestions. There are some online places in the USA that you can order grass fed meat and get it delivered. Using the search function i found this
jeans reply in this post has suggestions
http://perskyfarms.com/phpBB2/viewtopic ... eat+online

5 - Any trick to making your beef bone broth taste great? I've roasted the bones (425 degrees, 45 minutes) and THEN made the broth, throwing in some carrot, celery and onion ... salt and pepper, a bit of garlic. Still, it was a grayish broth that I'm not crazy about.
I only use bones and salt. (most MC'ers are reactive to onion and garlic etc when healing)
using tastier meat options makes for tastier bone broth. and it is mind over matter, it takes time for tastebuds/mind to adjust to blander food..


6 - Any experience with "cold food" reactions? I've had stomach aches and later, WD, 15 minutes after eating a cucumber ... or drinking a "powerhouse green drink" from whole foods (just 4 - 5 green things, i.e., parsley, etc.). Do you stay completely away from cold foods? My Chinese medicine/nutritionist gal speaks to how Chinese medicine promotes warm foods ...

not sure it is cold food persay that is causing the issue, moreso the combo of fibre (raw cucumber) and in the case of your powerhouse green drink, herbs/multiple ingredients
one of the reasons we encourage well cooked meats and veges is that it is easier for the body to digest (less inflammation)
the other aspect during the early stages of healing - protein is more important to the body than salad/greens.

hope this helps
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Hi Cathie,

1. If you're not casein-sensitive, the source of the butter shouldn't really matter.

3. If coffee didn't cause any bathroom problems before MC, it shouldn't cause any after MC. If you don't have any problems with histamines or sulfites, you should be OK with wine.

4. I get all my meat locally, co I can't help you there.

5. No idea how to improve the taste without making stew, or soup.

6. Cold food shouldn't be a problem. Cucumbers may not be the best choice of vegetables for someone with MC. Avoid melons, also. Raw vegetables (even in a drink) can cause digestion problems for MC patients. Avoid parsley and iceberg lettuce. Virtually everyone with MC reacts to them while they're still recovering.

You're very welcome.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Cat
Posts: 12
Joined: Mon Sep 18, 2017 8:03 am
Location: Denver

casein - testing?

Post by Cat »

Thank you both again!

Does the lab work you recommend, Tex, sniff out casein sensitivity?

Cathie
Cathie
Cat
Posts: 12
Joined: Mon Sep 18, 2017 8:03 am
Location: Denver

Sorry! Last ? (today), I promise! :)

Post by Cat »

Which Enterolab tests are best?

Cathie
Cathie
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Most people do the A1 and C1 panel tests this provides good foundation for MC safe eating plan.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

The A1 test includes the test for casein. Here is a link to a description of the tests:

https://www.enterolab.com/StaticPages/T ... #PanelA1C1

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Daniel512
Posts: 6
Joined: Mon Jul 17, 2023 3:27 pm

Re: Finally ready to declare success!

Post by Daniel512 »

Hi Tex,

With EnteroLabs, to get good results do you need to be eating the foods it tests for?

For example my diet includes chicken bone broth, so the chicken result will be relevant.
But since I have not eaten any dairy for years, then will the dairy result basically give a false negative?

p.s. I'm new here & will write more soon... browsing the posts and enjoying the "success stories" especially!

Thanks,
-Daniel
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Re: Finally ready to declare success!

Post by tex »

Hi Daniel,

Welcome to the group. If your diet is always squeaky clean of most food sensitivities, it's possible that you might get some false negative results. But that would be rare, because most people in your position tend to have enough cross-contamination problems with their diet, that those reactions will still show up. And antigliadin antibodies (anti-gluten antibodies) continue to show up in Enterolab's results for at least two years or more after gluten is removed from the diet. So I suppose the proper answer would be, "Maybe, but it depends . . . ".

Again, welcome aboard, and please feel free to ask anything.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Daniel512
Posts: 6
Joined: Mon Jul 17, 2023 3:27 pm

Re: Finally ready to declare success!

Post by Daniel512 »

Interesting, thanks!
Post Reply

Return to “Member Success Stories”