Any Keto people still here?

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Sue777
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Any Keto people still here?

Post by Sue777 »

Hi Gang.
Just caught up on all the posts I've missed during my few week absence.... had another visit on the west coast to spend time with the grandbaby. Always great, but always exhausting, so I think I need to take a few months off... I'm really sick of flying.

One week ago I decided to go on a ketogenic diet. I had done Atkins before it was popular (20 years ago) and remember that I had never felt better so I figured, why not? Since I put on about 10 pounds this last time my thyroid levels went kaplooey I am motivated to stay at or under 25 carbs a day for a while. Of course I've been reading and researching for the full week to see if there are any new findings or research on this way of eating but of course there isn't much out there about CC and keto diets. So it's trial and error for me... last time I did this I didn't have CC.

I did a search and read some of the posts on here by people who have done the keto way of eating but none of them were recent so I was wondering if anyone was STILL doing it and what affect it had on their colitis. I've had sporadic loose stools since I started but it could be either: my body adjusting, the BIG increase in fat intake, or the re-introduction of dairy.

Any keto-ers still out there?
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Post by Gabes-Apg »

Yes
Jean and I are keto eaters

suits me perfectly, my gut is happiest when I am following keto

the loose stools could be any or all of the things you mentioned, Diary being the first main offender
I had no issues with the increased fat intake
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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JFR
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Post by JFR »

As Gabes said, I eat Keto, have for a long time. If you go to the dietdoctor.com site you can even find an article that was written about me. It talks about my journey, written by a low carb nutritionist. I was solicited for the article and said
"yes" because, despite being somewhat reticent, I think my story has important lessons that can be learned from it. My mantra, "if you want the results you must create the causes".

https://www.dietdoctor.com/low-carb-die ... oss-decade

Jean
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Post by Marcia K »

Great article, Jean! You are an inspiration!
Marcia
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Sue777
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Post by Sue777 »

Wow, I'm in great company - hope I am as successful with the Keto WOE as you two are! Jean, you're famous - what a great success story and it's VERY motivating!

Did or do you ladies count regular carbs or net carbs? At this point I'm doing net carbs because that's the way I did it on the Atkins Diet and it worked for me then.

It doesn't sound like you're eating a lot of fat, Jean. How about you, Gabes - are you? All the members of the keto forum I'm on really push eating lots of fat. I'm taking that slowly to make sure my body and gut can handle it but it sure does keep me nice and full when I add some!
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Post by JFR »

Sue - I do eat a lot of fat. I tend to eat ground meats with high fat content or cook them in coconut oil. I saute vegetables in coconut oil and eat salads with a homemade dressing of oil and vinegar. It's important to remember that all these people giving you advice don't have the challenges of MC that you have. You need to filter their advice through the lens of your own knowledge of your own body. Check out the dietdoctor.com site for good information on low carb eating. Even though the info is very credible there, you still need to filter it through that lens, especially the recipes which nearly always seem to contain eggs or cheese or something else I can't eat. I don't use recipes and stick with simply prepared one ingredient foods. Also remember that low carb is good for overall health, not just weight loss. Even if you don't lose weight you are improving the overall health of your body.

When we cut the carb content of our diets something has to increase, either fat or protein. By experimenting you will find what balance works for you. Lately I have been counting net carb, keeping them under 20 per day but when I started out I counted total carbs, stuck to Dr Bernstein's 30 total carbs per day divided into three meals of 6, 12 and 12. I eat only real food, no artificial anything, nothing out of cans or boxes except sardines and salmon.

Jean
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Post by JFR »

Thank you Marcia. I don't feel particularly inspirational although it would be nice if I could inspire people to improve their health. It's just that I don't like being sick. I much prefer good health. It allows me to make better use of my life.

Jean
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Post by Pam V »

Jean,

Thank you so much for sharing your story! I have always loved my carbs but am going to take a good look at how many carbs I’m eating each day. May I ask, what do you put in your salad? I’m just starting to have small amounts of bib or romaine a few times a week but haven’t added anything else yet.

Thank you again for sharing!!!

Pam
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Post by JFR »

Pam - The way I have come to see things is that how food tastes has to be a secondary consideration. The first consideration for me is whether or not the food I am ingesting is supporting the health of my cells and therefore the health of my whole body. If it is not I don't eat it. I have fond memories of lots of high carb foods, but is the taste of the food worth the damage they are doing to my body? I answer "no".

About salads. I went several years, maybe 5 years, not eating any salad and very few vegetables. Now I can eat salad without any trouble. Mostly I use leafy greens, romaine lettuce, bok choi, arugula and dandelion greens lately, with a small amount of leeks and radish thrown in, but I am about 8 years into this healing and can handle a lot more than most people here can probably handle. The key is to be very careful. Over the summer I grew tomatoes, peppers and cucumber and ate those too but now that the harvest is over I am no longer eating them. The tomatoes and peppers are higher carb and cause some people here problems beings nightshades. I used to avoid them too. The one vegetable that seems to give me problems still of the ones I have tried is cabbage so I don't eat it.

Jean
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Sue777
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Post by Sue777 »

Great advice and reminder about reading everything through a "colitis filter". And yes, even though it would be great to lose a few pounds, FEELING GOOD is what I've been striving for for years and I keep getting closer and closer. If I can get off the Budesonide I think my TSH (thyroid) levels will get more stable and that alone will make me feel better, and the only way to get off the Budesonide is to find the foods and way of eating that works for MY body.

I'm fortunate that I don't have a fussy palate.... taste isn't high priority for me - I am easy to please and things that other people think are below acceptable taste fine to me. And the things I've eaten on my quest to find a healthy lifestyle? My husband cringes and keeps on walking when he sees some of them. :)
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Post by Polly »

Jean!!!!

Kudos on the publication of your story!

Am so happy to know about your continued success! We have come such a long way, haven't we? I think that when we first "met" here, you were eating almost no fiber at all, except maybe 5 blueberries a day. It's wonderful to see that you can enjoy salads again.

With regard to your 3 major recommendations, I believe number #3 is key and is rarely to never mentioned in any diet advice. Creating the cause for success is so important, and it DOES take a lot of work (research, knowing what our own body can tolerate, trial and error, commitment, etc). It is so much easier for most folks to continue engaging in wishful thinking and the pursuit of that magic bullet (a drug, vitamin, herb, particular food) that can cure everything in one fell swoop. When in reality it takes tons of patience, introspection, and GRIT to find the answers.

The article says that coffee was your big treat, but I seem to remember that you allowed yourself a little (very little) dark chocolate each day....hahaha.

Anyway, isn't it fantastic to feel better now that we ever have in our lives?

Namaste,

Polly
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JFR
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Post by JFR »

Hi Polly - I was a wreck when I joined this forum and fiber was a major contributor to my troubles although far from the only one. For a while I was 0 fiber and then I could eat a few blueberries but I have given them up. I find I have a tendency to binge on them and that means too many carbs. Same thing with dark chocolate. If it's in my home it calls my name and I answer, so I jettisoned that too. I got derailed a bit for a while this summer, mostly from the stress of Alice's illness, and now, although the stress is not gone, I am back on track and I much prefer being in the place I am now with regard to food then hearing even "healthy" treats call my name. When it comes to carbs I am not able to be a well controlled eater and I certainly don't want to mess with my hard gotten "normans" nor with my svelte self.

I agree, the most important thing is to take responsibility for one's own health and then work diligently to create the causes that will bring it about. Everything else follows from that.

Being able to walk out of the house without feeling anxious makes everything I have done worthwhile. I intend to never go back to that place if I can possibly avoid it.

Jean

Just to clarify, when I get "derailed" it is never by eating off limit foods. I just will start to eat too much of my "safe" foods.
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B12 and folate too high

Post by Sue777 »

Hi Guys.
I had blood drawn yesterday to see if we were able to get my TSH down from it's skyrocket 2 months ago and on the test she had also ordered a bunch of others including Vitamin D, B12, Folate, Magnesium. My TSH has now plummeted (I guess my body doesn't do anything in a small way, too bad I don't like rollercoasters) and the other two that jump off the charts are my B12 and Folate.... very high!

My B12 was too low (consistently) over the years so at docs advice (and because I was vegan for 6 months) I started taking a B12 supplement daily. Well I guess it worked! I imagine I'll be hearing from my doc in a few days when she sees the results (I got them online, not through her) but until then, any idea if this high B12 and folate is due to the supplement or possibly because I've been eating ketogenically for the past 4 weeks? I'm guessing I should stop the B12 supplements, at least for now.

Anyone else have too high B12 and folate? Trying to figure out if I should panic or not because Dr. Google can do that to you but since the sudden shooting up of both is so recent, I'm guessing it has to do with either my diet or my supplements.

Thanks in advance for your thoughts.
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Post by tex »

Hi Sue,

I'm not sure if this applies to the folate, but if you're taking a B-12 supplement you have to stop taking it about a week or 10 days before a blood draw so that it has time to reach equilibrium. Otherwise it will always test high. The test will be accurate because the liver stores B-12 for up to 5 years. Apparently most doctors are not aware of this (need to stop a B-12 supplement) so many people get a high test result if they're taking a supplement.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sue777
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Post by Sue777 »

tex wrote:Hi Sue,

I'm not sure if this applies to the folate, but if you're taking a B-12 supplement you have to stop taking it about a week or 10 days before a blood draw so that it has time to reach equilibrium. Otherwise it will always test high. The test will be accurate because the liver stores B-12 for up to 5 years. Apparently most doctors are not aware of this (need to stop a B-12 supplement) so many people get a high test result if they're taking a supplement.

Tex
Thanks, Buddy.
I don't know what I (or any of us) would do without you! :pulsinghearts:
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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