Hi Everyone,
I was diagnosed with MC about a month ago and I'm looking for a doctor who can be helpful in treating this in Boston, MA. Does anyone have any recommendations?
Thank you in advance!!
All the Best,
Lisa
Doctor in Boston?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
we have a couple of members that have seen a good Gi in that area Dr Ngari i think his name is
the members are not as active in the forum so maybe contact them via Private Message joefnh and Nancyl are two that come to mind.
if you use the search function and use words like Boston you will also find previous discussions
hope this helps
the members are not as active in the forum so maybe contact them via Private Message joefnh and Nancyl are two that come to mind.
if you use the search function and use words like Boston you will also find previous discussions
hope this helps
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
using just the search word boston
found this info pretty quickly
Tex I have been going to Dr Nagri in Nashua NH
Dartmouth Gastroenterology: Nagri Srikrishna MD
21 East Hollis Street, Nashua, NH 03060-2928
603-577-4081
found this info pretty quickly
Tex I have been going to Dr Nagri in Nashua NH
Dartmouth Gastroenterology: Nagri Srikrishna MD
21 East Hollis Street, Nashua, NH 03060-2928
603-577-4081
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hi Lisa (and Gabes:),
I’m interested in hearing about GI’s in the Boston area. I took a look at the websites of the teaching hospitals in Boston as I thought it might be a good idea to talk with another GI. I was sad to see that MC is hardly mentioned at most hospitals. I didn’t pursue finding another GI as my diet changes and vitamin supplements were giving me good results. I’d love to hear about your experiences though and wish you all the best.
Best wishes to you ~
Pam
I’m interested in hearing about GI’s in the Boston area. I took a look at the websites of the teaching hospitals in Boston as I thought it might be a good idea to talk with another GI. I was sad to see that MC is hardly mentioned at most hospitals. I didn’t pursue finding another GI as my diet changes and vitamin supplements were giving me good results. I’d love to hear about your experiences though and wish you all the best.
Best wishes to you ~
Pam
Thanks, Gabes! Yes, Nancy wrote back and that was the MD she recommended. Unfortunately Nashua is a bit far for me for regular apts, although I could go for a consult if needed.
I have been been searching the boards and came across a Dr. Mathew Hamilton that previous posters seemed to like a lot. He's at Brigham and Womens, which is thankfully very close to me. I am going to call this week and see if it's possible to get a second opinion there (I image the wait will be rather long).
Pam: I will keep you posted. I have a note into my PCP as well to get some recommendations.
I have been been searching the boards and came across a Dr. Mathew Hamilton that previous posters seemed to like a lot. He's at Brigham and Womens, which is thankfully very close to me. I am going to call this week and see if it's possible to get a second opinion there (I image the wait will be rather long).
Pam: I will keep you posted. I have a note into my PCP as well to get some recommendations.
Good Luck, Lisa! I hope that he turns out to be helpful.
From your first post, it looks like you're fairly new in this MC journey. I was (and am) very frustrated by the lack of resources that seem to be available in the general medical community when it comes to MC....the belief that it "comes and goes". I don't know where I would be without this wonderful forum and the advice that has helped me so much. Changing my diet has been key to my recovery. I'm six months into this and am seeing Norman more often than not, expanding my diet, and have seen the brain fog lift. While it would be helpful to have a GI that supports the notion that diet/food sensitivities, etc. play a key part in this disease, it has been possible to see significant improvement without their help.
I made oatmeal for my husband this morning and wanted some in the worst way. Last night, I made chili for the family. As much as I miss those foods, nothing compares to feeling well. I'm actually at the point where I think I've made peace with things and am grateful for all the wonderful foods that I can eat.
I wish you all the best and look forward to hearing about your visit at B and W. It is wonderful hospital and if anyplace were to have someone to look at MC in a different light, I believe it would be them.
Good luck!!!
Pam
From your first post, it looks like you're fairly new in this MC journey. I was (and am) very frustrated by the lack of resources that seem to be available in the general medical community when it comes to MC....the belief that it "comes and goes". I don't know where I would be without this wonderful forum and the advice that has helped me so much. Changing my diet has been key to my recovery. I'm six months into this and am seeing Norman more often than not, expanding my diet, and have seen the brain fog lift. While it would be helpful to have a GI that supports the notion that diet/food sensitivities, etc. play a key part in this disease, it has been possible to see significant improvement without their help.
I made oatmeal for my husband this morning and wanted some in the worst way. Last night, I made chili for the family. As much as I miss those foods, nothing compares to feeling well. I'm actually at the point where I think I've made peace with things and am grateful for all the wonderful foods that I can eat.
I wish you all the best and look forward to hearing about your visit at B and W. It is wonderful hospital and if anyplace were to have someone to look at MC in a different light, I believe it would be them.
Good luck!!!
Pam
Brigham and Women's Hospital is the leading facility in the U. S. for MC patients and others who have Mast Cell Activation Disorder (MCAD), mastocytosis, or other mast cell issues that affect the digestive system and other organs. As far as I am aware, Dr. Maria Castells there has trained every current expert on these issues in the country, and many have established practices in various parts of the country, mostly in the East.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Doctor in Boston
Lisa
I see Dr. Sunil Sheth at Beth Israel Deaconess and am very pleased with him. He was the one who finally, after many years of being told by others that it was just nerves, diagnosed my MC. Dr. Sheth is also the only one of my Drs. that will call me back directly if I am having issues. I have never once had to go through a nurse or other office personnel, either he himself or one of his fellows (he is professor of medicine at Harvard) will call me back.
Wish you the best in your search.
Martha
I see Dr. Sunil Sheth at Beth Israel Deaconess and am very pleased with him. He was the one who finally, after many years of being told by others that it was just nerves, diagnosed my MC. Dr. Sheth is also the only one of my Drs. that will call me back directly if I am having issues. I have never once had to go through a nurse or other office personnel, either he himself or one of his fellows (he is professor of medicine at Harvard) will call me back.
Wish you the best in your search.
Martha
I just wanted to follow up for anyone who is Boston area. I have an apt with Dr. Joshua Krozenik in a few weeks at Brigham and Womens. My primary care recommended him and it was fastest to get an apt with him. I don't believe I have any symptoms of mast cell disorder, so I will start with him.
My primary care also noted that there is a program at Mass General dedicated to Microscopic Colitis (see link below). She thought that Mass General would be a longer wait for an apt. Also based on the good reviews here of Brigham, I decided to book at Brigham.
I was originally diagnosed by a supposedly top doctor at Tufts, who was at least quickly able to pinpoint the problem and give me a diagnosis. However, based on follow-up apts my primary and I both agree that I may need another GI for treatment and management. Feel like I'm completing a tour of Boston hospitals -- phew! :)
Here's the Mass General Link:
http://www.massgeneral.org/gastroentero ... px?id=1737
Thanks for all the input and support!
Lisa
My primary care also noted that there is a program at Mass General dedicated to Microscopic Colitis (see link below). She thought that Mass General would be a longer wait for an apt. Also based on the good reviews here of Brigham, I decided to book at Brigham.
I was originally diagnosed by a supposedly top doctor at Tufts, who was at least quickly able to pinpoint the problem and give me a diagnosis. However, based on follow-up apts my primary and I both agree that I may need another GI for treatment and management. Feel like I'm completing a tour of Boston hospitals -- phew! :)
Here's the Mass General Link:
http://www.massgeneral.org/gastroentero ... px?id=1737
Thanks for all the input and support!
Lisa
Lisa,
Definitely please keep us posted. I am suppose to f/u in January with my GI in the MetroWest suburbs of Boston and have been dragging my feet about making the appointment. It’s good to know there may be better options an hour away. Martha, I had noticed that BI’s website seemed to have more info regarding MC than the other medical centers. It’s good to hear of your good experiences there!!
Pam
Definitely please keep us posted. I am suppose to f/u in January with my GI in the MetroWest suburbs of Boston and have been dragging my feet about making the appointment. It’s good to know there may be better options an hour away. Martha, I had noticed that BI’s website seemed to have more info regarding MC than the other medical centers. It’s good to hear of your good experiences there!!
Pam
Hi All,
I wanted to update. I met with Dr. Joshua Krozenik and his team last week at Brigham and Women's. He's the director of the Chron's and Colitis program and I would recommend him for anyone looking for another opinion! I had a great experience and would be happy to discuss in more detail with anyone over PM.
A few things we discussed:
--Connection between microscopic colitis and SSRIs
--Supplements (He suggested adding Boswellia and Tumeric and increasing my Magnesium and Vitamin D)
--Possibility of mast cell connection (I have a family history of mast cell activation disorder)
--Alternative treatments (in my case, acupuncture)
He wasn't as well versed as I would have liked in nutrition (who ever is?) but we openly discussed nutrition and a nutritionist immediately reached out to me to schedule a follow-up appointment.
Overall, was a positive experience. Would recommend if you're in the Boston area. Hope that helps!
I wanted to update. I met with Dr. Joshua Krozenik and his team last week at Brigham and Women's. He's the director of the Chron's and Colitis program and I would recommend him for anyone looking for another opinion! I had a great experience and would be happy to discuss in more detail with anyone over PM.
A few things we discussed:
--Connection between microscopic colitis and SSRIs
--Supplements (He suggested adding Boswellia and Tumeric and increasing my Magnesium and Vitamin D)
--Possibility of mast cell connection (I have a family history of mast cell activation disorder)
--Alternative treatments (in my case, acupuncture)
He wasn't as well versed as I would have liked in nutrition (who ever is?) but we openly discussed nutrition and a nutritionist immediately reached out to me to schedule a follow-up appointment.
Overall, was a positive experience. Would recommend if you're in the Boston area. Hope that helps!
Lisa,
I was just reading this thread with great interest. I am the Nancyl that goes to Dr. Nagri in Nashua, NH and live about 40 miles west of Boston. I like my GI a lot, but like with others does not advise about food intolerances. I have done that on my own with the help of this forum.
I know it's been several months since this thread was posted and not sure if you have posted elsewhere, but was wondering how you are doing.
Also, wanted to mention that I had increased my Vitamin D a couple of years ago and within the last 6 months or so increased my Magnesium intake and think it has helped a lot. I also regularly visit an acupuncturist. I go now once a month for maintenance.
I want to keep the name of your doctor in Boston, you never know when you might need it. An update from you would be great.
Nancy
I was just reading this thread with great interest. I am the Nancyl that goes to Dr. Nagri in Nashua, NH and live about 40 miles west of Boston. I like my GI a lot, but like with others does not advise about food intolerances. I have done that on my own with the help of this forum.
I know it's been several months since this thread was posted and not sure if you have posted elsewhere, but was wondering how you are doing.
Also, wanted to mention that I had increased my Vitamin D a couple of years ago and within the last 6 months or so increased my Magnesium intake and think it has helped a lot. I also regularly visit an acupuncturist. I go now once a month for maintenance.
I want to keep the name of your doctor in Boston, you never know when you might need it. An update from you would be great.
Nancy