update from an oldbie, joined in 2010
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update from an oldbie, joined in 2010
Hello fellow MCers,
I was diagnosed with CC in 2010. I had a rough two years before I went into remission using budesonide for 4.5 months and diet for two years. I had a reflare in 2016. It was kind of rough for about 9 months last year. Budesonide was not an option as I had side effects the first time. Through diet alone I am back in a very solid remission.
It is really only through the love and support of the folks on our forum that I am in a drug free remission.
I've had some correspondence with Tex (Wayne) and he seemed frustrated that our expenses continue to rise...web hosting....cost of server and more.
The Microscopic Colitis Foundation needs your financial support. We have a stellar group of board members, Wayne, Jessica, Holly and Rosalyn. Read about them here. http://www.microscopiccolitisfoundation ... ut-us.html
Our board members are unpaid and graciously volunteer their time.
http://www.microscopiccolitisfoundation.org/
Please consider an end of year financial donation to our foundation to help support research into our disease and IT (web hosting, server and more)
Love, Brandy
I was diagnosed with CC in 2010. I had a rough two years before I went into remission using budesonide for 4.5 months and diet for two years. I had a reflare in 2016. It was kind of rough for about 9 months last year. Budesonide was not an option as I had side effects the first time. Through diet alone I am back in a very solid remission.
It is really only through the love and support of the folks on our forum that I am in a drug free remission.
I've had some correspondence with Tex (Wayne) and he seemed frustrated that our expenses continue to rise...web hosting....cost of server and more.
The Microscopic Colitis Foundation needs your financial support. We have a stellar group of board members, Wayne, Jessica, Holly and Rosalyn. Read about them here. http://www.microscopiccolitisfoundation ... ut-us.html
Our board members are unpaid and graciously volunteer their time.
http://www.microscopiccolitisfoundation.org/
Please consider an end of year financial donation to our foundation to help support research into our disease and IT (web hosting, server and more)
Love, Brandy
Thanks so much for bringing this to our attention, Brandy. I could not agree more! If it wasn't for everyone's kind and loving support on this forum I would not be doing as well as I am. What I learned on here helped me more than any medication or any physician in gaining remission and keeps helping me when advising my daughters (unfortunately, all three have to be very careful what they eat).
I love the monthly donation option and just set it up (it takes less than 2 minutes)
Love, Patricia
I love the monthly donation option and just set it up (it takes less than 2 minutes)
Love, Patricia
Be gentle with yourself. Be kind to yourself. You may not be perfect, but you are all you’ve got to work with.
- Bhante Gunaratana
- Bhante Gunaratana
- humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Brandy,
Thank you for this post and the link for making donations to the Microscopic Colitis Foundation.
I was originally very impressed that if purchases are made through Amazon Smile a donation would go to MCF. I am far less impressed now knowing how little of that goes to MCF, but at the same time am grateful for the donations that are made from purchases.
As I look back to when I first experienced noticeable symptoms of LC, and then the time lapse of almost a year before I was diagnosed, and then still another 1-1/2 years before I found this forum.... I spent so much money and nothing worked.
Thank you to everyone here for all the knowledge and support given. I joined this group the end of 2011 and was able to reach remission because of all the knowledge I gained here. I reached remission through diet only - never took any prescription medications.
For all those who are new here, please know that it really does work!
Love,
Thank you for this post and the link for making donations to the Microscopic Colitis Foundation.
I was originally very impressed that if purchases are made through Amazon Smile a donation would go to MCF. I am far less impressed now knowing how little of that goes to MCF, but at the same time am grateful for the donations that are made from purchases.
As I look back to when I first experienced noticeable symptoms of LC, and then the time lapse of almost a year before I was diagnosed, and then still another 1-1/2 years before I found this forum.... I spent so much money and nothing worked.
Thank you to everyone here for all the knowledge and support given. I joined this group the end of 2011 and was able to reach remission because of all the knowledge I gained here. I reached remission through diet only - never took any prescription medications.
For all those who are new here, please know that it really does work!
Love,
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
Done! Thanks for bringing this to our attention!
Sue
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Thanks Patricia, Paula, and Sue. Anyone making donations will get a donation statement that they can use when submitting their taxes to the IRS.
It is amazing how drastically different my gut is Dec 2016 compared to Dec 2017. During Dec 2016 I was coming off of the 6 month flare and still eating mostly protein, bananas, avacados, a little overcooked carrots and green beans and a little rice and a little potatoes but probably 70% protein.
Now that I am in remission I am eating 1 tiny salad a day, 1 tiny mandarin orange a day, 1 tiny apple a day in addition to the above listed foods.
I've been having textbook perfect normans for the last 8 weeks.
I'm really working on handling of stress to try to stay in remission.
It is amazing how drastically different my gut is Dec 2016 compared to Dec 2017. During Dec 2016 I was coming off of the 6 month flare and still eating mostly protein, bananas, avacados, a little overcooked carrots and green beans and a little rice and a little potatoes but probably 70% protein.
Now that I am in remission I am eating 1 tiny salad a day, 1 tiny mandarin orange a day, 1 tiny apple a day in addition to the above listed foods.
I've been having textbook perfect normans for the last 8 weeks.
I'm really working on handling of stress to try to stay in remission.
- jessica329
- Adélie Penguin
- Posts: 214
- Joined: Thu Oct 11, 2012 6:47 pm
- Location: CT