When patients don't respond to their prescribed medications, their doctors immediately assume that the patients have some other disease. So they run a bunch of invasive and expensive tests, but they never find another disease when the original diagnosis is MC. If you want to rule out celiac disease, the endoscopy with biopsies test can do that. You might have celiac disease in addition to MC. But so what? As I've already mentioned, the tests can't rule out gluten sensitivity. Your doctor doesn't even have a test for non-celiac gluten sensitivity. As a result, the testing results will almost certainly all be negative if you already have a diagnosis of MC/CC/LC. As Gabes points out, it's kind of pointless to even bother to get a celiac diagnosis because the diet changes necessary to control MC symptoms disallow gluten anyway, so that will treat/control Celiac disease if you have it. Celiac disease is like a walk in the park compared with MC.
The physicians in New York and Maryland have persuaded their state legislatures to grant them a monopoly on ordering medical tests. Residents of those states are not allowed to order any medical testing for themselves or anyone else. To order EnterpLab testing you would need to have the sample collection kit delivered to a friend or relative across state lines, and drive there to pick it up. After filling the sample and getting it ready to ship, you would have to drive back across state lines to ship it back to EnteroLab. You will receive the test results by email. If you don't have a friend or relative close by, you might be able to make arrangements with another member here to receive the test kit for you. That's done fairly often.
Here's my perspective. I probably am a celiac myself but I'll never know because I'm not willing to go back down into the pits of hell in order to get an official diagnosis. A celiac diagnosis is irrelevant anyway, because I have to stay GF to control my MC. I have an HLA-DQ2 gene, which qualifies me to have fully developed celiac disease. If you don't have either an HLA-DQ2 or HLA-DQ8 gene, you can't possibly be diagnosed with celiac disease. Why expose yourself to the risk of such an invasive and risky test (an endoscopy killed Joan Rivers) when a simple gene test (only requiring an analysis of a cheek swab) can rule out celiac disease.
But that's just my personal opinion, FWIW.
Tex
Newly Diagnosed Lymphocytic Colitis
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
BarbieAnn,
I had to eliminate oral magnesium in order to work my way out of a flare last summer. It is safer to stick to Epsom salt baths and transdermal magnesium (magnesium oil) when you are really struggling with WD. Once you have solid stool you can experiment with oral magnesium glycinate
or dr. Dean's product.
I reread your thread. Your symptoms are all classic MC symptoms. I saw that you have a lot going on personally. Two other drug protocols you might try in conjunction with diet are cholestyramine and also the pepto bismol protocol. Our members respond to both of these regimens. Uceris is also prescribed but I'd stay clear of that since you had issues with budesonide.
Are you on any other prescription drugs or hormones? A lot of prescription drugs prevent remission.
Have you reviewed Gabes stage 1 food regimen?
I had to eliminate oral magnesium in order to work my way out of a flare last summer. It is safer to stick to Epsom salt baths and transdermal magnesium (magnesium oil) when you are really struggling with WD. Once you have solid stool you can experiment with oral magnesium glycinate
or dr. Dean's product.
I totally agree with this. Mom has celiac disease. She regular eats about 250 foods. I have MC. I have to stick with about 18 foods to stay in remission.Celiac disease is like a walk in the park compared with MC.
I reread your thread. Your symptoms are all classic MC symptoms. I saw that you have a lot going on personally. Two other drug protocols you might try in conjunction with diet are cholestyramine and also the pepto bismol protocol. Our members respond to both of these regimens. Uceris is also prescribed but I'd stay clear of that since you had issues with budesonide.
Are you on any other prescription drugs or hormones? A lot of prescription drugs prevent remission.
Have you reviewed Gabes stage 1 food regimen?
Update:
Last Wednesday was the day that realization dawned and I became aware that my diagnosis of mc was for life, after the nurse practitioner in my GI's office mentioned that they were hoping to bring me into remission. Prior to that I was clueless and thought I would take Budesonide for a couple of months ad be cured.
Worked Thursday and Friday; found this forum Saturday. Wow, what can I say, thank you guys from the bottom of my heart. Being a nurse I am well acquainted with bowel movements...all kinds of bowel movements. The good the bad and the ugly. Never in my career in health care which began in 1988 have I ever encountered anyone with the frequency, urgency, swings from rocks to watery mess that have been my bowel movements for the past 10 years. I told my daughters that when I am old and they put me in the nursing home the aids will smother me with a pillow..lol.
After reading many of the posts on this forum I resolved to start with the step one basic bland diet and eliminate gluten, soy, milk, fiber, eggs, spices. Basically cooked up a big pot of rice, a pork loin, and a pan of roasted sweet potatoes and have eaten that for the past couple of days. Already my pain and frequency are improved!! I was just restarted on a round of Budesonide as well but hoping and praying that I can get some healing going and be ready to taper off successfully this time.
Thanks to all.
Last Wednesday was the day that realization dawned and I became aware that my diagnosis of mc was for life, after the nurse practitioner in my GI's office mentioned that they were hoping to bring me into remission. Prior to that I was clueless and thought I would take Budesonide for a couple of months ad be cured.
Worked Thursday and Friday; found this forum Saturday. Wow, what can I say, thank you guys from the bottom of my heart. Being a nurse I am well acquainted with bowel movements...all kinds of bowel movements. The good the bad and the ugly. Never in my career in health care which began in 1988 have I ever encountered anyone with the frequency, urgency, swings from rocks to watery mess that have been my bowel movements for the past 10 years. I told my daughters that when I am old and they put me in the nursing home the aids will smother me with a pillow..lol.
After reading many of the posts on this forum I resolved to start with the step one basic bland diet and eliminate gluten, soy, milk, fiber, eggs, spices. Basically cooked up a big pot of rice, a pork loin, and a pan of roasted sweet potatoes and have eaten that for the past couple of days. Already my pain and frequency are improved!! I was just restarted on a round of Budesonide as well but hoping and praying that I can get some healing going and be ready to taper off successfully this time.
Thanks to all.
We may encounter many defeats, but must not be defeated. It may even be necessary to encounter the defeat, so that we can know who we are. - Maya Angelou
You're on your way toward recovery.