Frequent flares of D and New symptoms

[anntye]

Diagnosed with LC in 2013 and went GF, have controlled it with 2-3 flares a year. But have been having D a lot since Nov 2017. Determined I was also sensitive to rice and rice products because every time I ate rice I had explosive D. Started having A LOT of mucous in throat, difficulty swallowing, D and chest pain (stress?). Saw my internist & she put me on PPI. I didn't feel right about it, didn't take it and started researching. Thank goodness for Wayne's book. I had never read the chapter on MAST Cells and so many of what was written I identified with. In my research I found studies that PPIs induce symptoms it is used to treat.
Started a low histamine diet and symptoms got much better. Anyone have input, not a lot of foods I can eat. Again thank you Wayne for you book, so glad I got it years ago, spent 2 days reviewing it.

[tex]

Hi Ann,

Welcome to the forum. And thank you for the kind words about the book. Good for you for doing your own research and showing much better judgement than your internist, That almost surely saved you a lot suffering as you tried to wean back off the PPIs if you had taken them.

I have histamine issues so I know what you mean about your food choices. Dried, smoked, fermented, foods etc. are all off limits. I can eat chicken soup (provided the chicken is fresh), but if the leftovers are stored in the refrigerator and I eat some a day later, I can notice some minor symptoms, if I look for them. If I eat some of the soup 2 days later, I won't have to look for the symptoms, they will be obvious (some bloating, minor to moderate itching, etc.). If I eat some of the soup 3 days after it was put into the refrigerator, I'll have serious bloating, diarrhea, I'll itch like mad, etc. Leftovers have to be immediately frozen, or many will become high-histamine feeds, even at normal refrigeration temperatures.

I like to eat a frozen banana with cashew butter slathered on as a snack. But in order to get away with that, the bananas have to be peeled and frozen just as they barely begin to get ripe. By the time they get ripe, they have become high-histamine foods, and the histamine content gets worse with each passing day. This appears to be true of virtually all fruit — the riper it gets, the higher the histamine level.

Have you ever done the EnteroLab tests? That might pinpoint something else that could be causing the 2 or 3 flares per year. Again, welcome aboard, and please feel free to ask anything.

Tex

[tasmtairy]

Hi Ann,

Welcome to the forum. And thank you for the kind words about the book. Good for you for doing your own research and showing much better judgement than your internist, That almost surely saved you a lot suffering as you tried to wean back off the PPIs if you had taken them.

I have histamine issues so I know what you mean about your food choices. Dried, smoked, fermented, foods etc. are all off limits. I can eat chicken soup (provided the chicken is fresh), but if the leftovers are stored in the refrigerator and I eat some a day later, I can notice some minor symptoms, if I look for them. If I eat some of the soup 2 days later, I won't have to look for the symptoms, they will be obvious (some bloating, minor to moderate itching, etc.). If I eat some of the soup 3 days after it was put into the refrigerator, I'll have serious bloating, diarrhea, I'll itch like mad, etc. Leftovers have to be immediately frozen, or many will become high-histamine feeds, even at normal refrigeration temperatures.

I like to eat a frozen banana with cashew butter slathered on as a snack. But in order to get away with that, the bananas have to be peeled and frozen just as they barely begin to get ripe. By the time they get ripe, they have become high-histamine foods, and the histamine content gets worse with each passing day. This appears to be true of virtually all fruit — the riper it gets, the higher the histamine level.

Have you ever done the EnteroLab tests? That might pinpoint something else that could be causing the 2 or 3 flares per year. Again, welcome aboard, and please feel free to ask anything.

Tex

I like that about frozen foods, I usually cook and put everything in the fridge, I guess going from frozen to a meal isn't that difficult, I will start that tomorrow when I cook. Thanks

[brandy]

Many of us eat narrow diets. If it keeps me in remission I'm okay with eating just a few foods.

[Gabes-Apg]

Hi Ann
welcome to the group

For me what resolved lifelong histamine/mast cell issues: -

- bland low amount of ingredients eating plan. cooking fresh or from frozen.
- fixing Vit D3, B6 and magnesium deficiency (best way is via active B6 called P5P and good quality magnesium)
- minimising histamine foods, but you cant avoid them totally.
- minimising external toxins, chemicals, pollution, EMF etc, to reduce toxin load on the body

be patient with the healing journey, there is no quick fix for this.