Lifetime of GI issues and here I am....

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tex
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Post by tex »

The Pepto should be soothing to your stomach because that's what it's sold to do. You might be allergic to one of the ingredients.

Or, this sounds more like side effects due to dropping the SSRI. Usually, one can't stop an anti-depressant without significant/severe side effects. They often cause side effects for weeks or months.

Cymbalta Warning: Discontinuing May Result in Severe Withdrawal Symptoms

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Janet794 »

I thought I weaned myself off the Cymbalta slowly over two weeks, then when the random nausea and vomiting started,i had similar symptoms when I tried Cymbalta a few years ago and abruptly stopped taking it, so I expected the symptoms. I also had excessive sweating with the Cymbalta that has significantly diminished and is probably gone, except if I say it is😂😂. I thought my stomach issue was from stopping the Cymbalta, but then I started to take notice more closely and the pain is more significant after taking the Pepto tablets. This evening I have general nausea and stomach pain less severe, similar to what I have had in the past with Gastritis. Ginger ale seems to help, of course severely restricts diet, along with Tramadol.
I thought I was getting somewhere, but here I am right back where I was before. Twenty people for Thanksgiving preparing and serving food that 90% I cannot eat. I do lov my family together though. I treated myself to a bakery gluten free apple pie, I hope it is good👍
Thanks for listening and have a great turkey day❤️
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Gabes-Apg
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Post by Gabes-Apg »

looking at your eating drinking plan...
This is different. My diet includes, GF toast, butter, cinnamon sugar, smooth peanut butter, potatoes, chicken, fish, salmon, and sometimes green beans. Tea, weak coffee, water, and ginger ale for the nausea.
butter - what sort of butter??
cinnamon sugar - is high risk for wheat. low gi sugars like coconut sugar are better option
peanut butter - some react to peanuts
ginger ale - better option is grated ginger in warm water no additives, no sugars, most people here avoid carbonated drinks when trying to heal

do all of your meals have good serves of the the safe proteins and veges??
are you taking VIt D3 and using topical magnesium??
Gabes Ryan

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Post by Greengoddess »

I have had GI issues since a child! Diverticulosis preceded the MC. Why I don’t know. Vit D, magnesium and B12 of the right kind the most important thing. I use Metagenics D3 sublingual 2000. They can be carried around in their blister pack.
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Post by Janet794 »

At the height of this most recent flare of MC, after visiting this forum and reading the Microscopic Colitis book, which read like my diary, I did try Vit D and Magnesium. My stomach was also a mess as I was weaning off Nexium. I decided to eliminate rather than add at that point. I think I will wait until my belly settles more before trying them again. All of the foods I mentioned I have been eating for over a month without issues and they have been a “go to” for me. It was starting the Pepto That started the stomach problems again. 20ish years ago, I drank Pepto right from the bottle. My Gastro at the time said, oh no! Not so much. Move forward and now they are doing large doses. Pretty sure if one would name any drug, diet, or treatment, except Viberzi, I have done/taken it all. In the manner prescribed/suggested at the time. I will keep on trying and I truly appreciate any and all suggestions👏👏👏. Except coconut 🥥😂
Have a happy day!!!
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tex
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Post by tex »

Greengoddess wrote:Diverticulosis preceded the MC.
Me to. Diverticulitis has the same type of lymphocytic infiltration as LC in the mucosal lining of the colon. IOW it has the same type of inflammation as LC.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by tex »

Janet,

Food tolerances are not chiseled in stone. 7 or 8 years ago I was still tolerant of soy. I even tested negative at EnteroLab. Then a couple of years ago I ate some peanuts (which I had eaten plenty of times before) and my digestive system stopped working (the medical term for this is ileus). In the ER, while waiting for test results to come back, it started working again. But that got my attention.

I did an EnteroLab test and found that I was now sensitive to soy (peanuts are a legume, and most people who are sensitive to soy are also sensitive to most legumes). We have to keep an open mind about potential food sensitivities. Just because we could eat certain foods in the past, doesn't mean that we can tolerate them today.

That said, I agree, it does sound as though you are sensitive to Pepto.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Janet794 »

Thanks for validating my thinking😬. 40 years of modifying, adapting, and changing my diet to keep from spending my life in pain and in the bathroom. One day, I hope I live long enough they will figure this out. But, as you mentioned, what one can eat often changes. One’s diet is so individualized, there has to be some other component they just haven’t figured out yet. For me, in addition to the allergy/intolerances, there are foods I cannot eat before noon, but can for dinner. My stomach has never been my friend.😥
I think long term IBS sufferers will be taken much more seriously one day because I think for some, IBS is a precursor to the Inflammatory Bowel conditions. Hopefully the Scientists will find the “trigger” that kicks one from a functional to an inflammatory disease. Or may-be they will stop making Frankenfood. I rarely eat anything processed,but once upon a time I did. The garbage they are selling cheaply, in my opinion, is the source of many of our illnesses. Then the pesticides and herbicides, oh my!
Imagine how different looking and tasting the first Thanksgiving would have been. We are fortunate to have access to fresh free range turkeys. Would never go back.
Gobble, gobble, enjoy the day!
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Janet794
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Post by Janet794 »

Another update. GI thinks Pepto set off a Gastritis, if not an ulcer. I have had about half a dozen peptic or duodenal ulcers in my lifetime. Started on Zantac 300mg/day, in divided dose. Today I feel quite a bit better, yay!! On the poop side, I was a bit sluggish while this was going on, but now moving things out. Not raging diarrhea, but crampy almost normal poop. Onward. Oh, my Gout is flared up too. 👹
Question, anyone have Selective IgA decificiency? My PCP questioned if there was some Association with this autoimmune disorder.
Have a great day!
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Janet794
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Post by Janet794 »

I’m back😩. So, pepto nixed, Nexium nixed, diarrhea and pain in belly and back severe, and stomach a mess. I waffle between stomach pain and nausea. I have a call into my GI, but it usually takes awhile for a return call. I couldn’t get an appointment for two months and have a couple more weeks to go. I think I have to “give it up” and go back on the Entocort. Boo. So, looking for suggestions on how to move forward with the Entocort. Pretty sure I have an ulcer (again), but have to wait to see her to schedule the Endo. They say good things take time, but I am guessing that person didn’t have GI issues.😳
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Post by carolm »

Hi Janet,
I’m sorry to hear you are struggling again.... but it happens. I was looking back through this thread and saw Polly’s question as to if you’d tried cholestryamine ( a bile acid binder)? If not, that may be worth looking into, especially if you have a Dr appointment coming up soon.

I hope you get some relief soon.

Carol
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Post by JaneTX »

Hi! I'm new too. Enough oral magnesium can also cause diarrhea (that's why they use it OTC for constipation), you might try a magnesium lotion in the mean time.

Also, watch the inert ingredients in medicine which may not be so inert - particularly what they use as starches for the fillers (frequently corn derivatives), and the totally unnecessary dyes. Gelcaps sometimes work better as they usually don't contain starches, if you have no problems with gelatin. We get much of our medicines compounded using a filler called Loxoral (very expensive but it works), we're not quite ready to try the cheaper microcrystalline cellulose the compounding pharmacy also uses.

My daughter struggled with anxiety, and when she got sick, a pediatric cardiologist who is an expert with dysautonomia diagnosed her with dysautonomia - an irregular resting heartbeat, fortunately not POTS - and started her on 60 mg propranolol. The propranolol has been a miracle drug with her anxiety and she was able to totally quit Zoloft. The idea being that anxiety may not necessarily cause heart symptoms, but rather heart symptoms may cause anxiety because the body can't figure out what's wrong and is trying to tell the conscious self something's amiss. I've read that beta blockers are contraindicated for LC, I'm not sure why, so we need to look at this closer, though her abdominal issues started before she started propranolol. That had gotten me to thinking that anxiety might also be caused by unresolved gut issues as well, I know when I eat something that disagrees with me, I get very anxious before I pass it, then I feel fine again.

That has also started me to wondering if we (my daughter and I'm her caregiver) can just dig ourselves out of the hole we're currently in and get her gut healed, if the need for propranolol might even go away - thinking that the gut is adding to or pulling out water from the bloodstream as needed, which may mess with blood pressure, blood volume, and subsequently heart rate.

I've been joking (somewhat sarcastically as I despise cooking and no one will do it for me) that we all need to learn how to prepare food all from scratch like our grandparents had to! (I'm not about to go slaughter my own chickens though - one story had my grandfather inviting the neighbors over to slaughter the pig while he hid in the bedroom ...)

Over 20 years ago I once read a short science fiction story about how everyone ate highly processed prepared food, and a little boy and his grandparents started cooking fresh food and everybody couldn't believe how good it was. I can't remember what the title was, the author, or where I read it (wondering if it was in an Asimov monthly sci-fi magazine). Wow, our society is pretty much at that point today!

Good luck - Jane
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