Hi all,
It took some time, but now I am really in remission and like to share my success story with you!
In january 2011 colonoscopy revealed that I had LC. Before that I had wd for 4 months and I struggled my whole life with IBS.
My gi put me on budesonide, what helped me quickly, but I didn’t succeed in discontinuing it and it was bad for my health. I had very often the flu, infections, etc., was tired and the d came back, even more quickly. For three years I was on and off budesonide and it worked less and less. Then my gi, who earlier said that diet wouldn’t change anything, suggested that I should try glutenfree for some weeks. In November 2014 I started glutenfree and my d disappeared within 3 days. After 3 weeks I discontinued budesonide and never had to take it again. After 2 or 3 months my problems returned and I started on advice of the forum the elimination diet in march 2015. Immediately was clear that I reacted bad to casein and soy and some other food and I skipped them from my diet. In 2015 I developed osteoarthritis and got lyme disease and had to take antibiotics. For a long time it was not clear if the osteoarthritis was related to lyme or LC. My intestines healed slowly, but I had often d, while it was unclear what I ate wrong.
In march 2016 I went to a doctor specialised in food sensitivities and had the IGG blood test Imupro to detect further food sensitivities. That was positive for 42 of 270 allergens. Most interesting were the extreme high levels for some fishes. Gluten was also positive, although I was 100% gf since 15 months. Casein was negative. I followed my new diet strictly, but my osteoarthritis (especially in one hand, but also in my toes, knees and shoulder), eyeproblems (burning, dry eyes) and mucous in my throat didn’t disappear and warned me if I had eaten something wrong, most of the time more than my intestines. It was very difficult to detect what I ate wrong, because very often there are more possibilities and sometimes it takes some days.
Since 2015 my diet was mostly paleo with rice and potatoes. In September 2016 I started the paleo imuum protocol to detect all my sensitivities. It took me more than one year to discover them and to develop a safe diet. Some food affects my intestines and/or gives me jointpains, other food (especially nightshades) gives me eyeproblems and/or mucous, some foods give me everything.
In the meantime I made in 2017 the mistake during holiday in France to ‘test’ goatcheese again with awful results. Since then I have a more or less chronic pain in one leg, that almost disappears when I stick to my diet and warns me if I eat something wrong. At the same time I tested positive for lyme again and had to take antibiotics for three weeks. At the moment it look likes this was a false positive result, probably related to my MC, but I don’t know yet for sure (I posted about this topic).
My road to healing took seven years, but it looks like I reached my destination. I know now what I can eat, feel and look good and manage to live with my restrictions. Very positive is that I can tolerate some organic white wine! That makes life much more pleasant!
My diet makes my life a lot more complicated than it was before. I keep strict to my diet, take magnesium and D3 and some other supplements and drink daily my homemade bonebroth. I’m often busy with food, because I buy only one ingredient food and make everything myself. I used to love to go out to dinner and did it a lot, but now I only go to restaurants if it is necessary and my experience is that good cooks manage to give me a safe meal, but compared to what the others get it is simple and I know most of the time that I (and my husband to!) can do better than that!
You can see that I am a member since october 2012, but it took me years to accept that I needed to change my diet drastically.
I’m sure I could never have reached this remission without this forum and Tex’ book and I can only guess how my life would have been without. So thank you all very, very much!!
Sonja
Seven years on my successful journey to healing
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Mars, starfire, Polly, Joefnh
Hi Sonia,
Thank you for taking the time to write this post. Reading it is a great way to start the week.
It takes a lot of hard work and dedication to learn how to control this disease, so it's very gratifying to see that you have been successful.
I hope that your remission will last for a lifetime.
Tex
Thank you for taking the time to write this post. Reading it is a great way to start the week.
It takes a lot of hard work and dedication to learn how to control this disease, so it's very gratifying to see that you have been successful.
I hope that your remission will last for a lifetime.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
