I noticed this on the Mastocytosis Society website and thought some of you might be interested. I haven’t looked at it yet.
Teri
https://tmsforacure.org/stony-brook-chr ... nt-survey/
Jul 01, 2017 DO YOU HAVE A CHRONIC ILLNESS?
Scientists at Stony Brook University are conducting one of the largest, most important research studies ever undertaken to understand people’s experiences with chronic illness.
The knowledge we gain from this study will help scientists and physicians to improve care and develop effective treatments.
This anonymous, online questionnaire welcomes any adult who has a rare or non-rare chronic illness to participate. The questionnaire is voluntary and takes approximately 30 to 60 minutes to complete.
Please click on the link below if you are interested in participating!
https://stonybrookuniversity.co1.qualtr ... e9DEmqUpmZ
Thank you for your contribution to our knowledge about chronic illness!
Jennifer Nicoloro-SantaBarbara, M.S.W., M.A., Project Director and
Marci Lobel, Ph.D., Principal Investigator and Professor of Psychology
Stony Brook University
ChronicIllnessProject@stonybrook.edu
Approved: May 15, 2017
Expiration Date: May 14, 2018
Stony Brook University IRB (CORIHS B)
Stony Brook Univ chronic illness survey
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