GF for over 10 years. LF for 5 years. No eggs in a month. Had issues with soy in the past.
Eating wild fish, chicken, turkey, and what I thought were safe veggies. all low Fod-Map
Since connecting with this sight 2 weeks ago I have reduced fruit to a banana a day, and eliminated spices/herbs, reduced fat.
Taking 3 entocort daily since the fall.
Mad urgent dash w explosive D up to 8 times daily. Makes it difficult to get to work!
Questions:
1.Taking 1 tsp of slippery elm in water daily. Is this a No-No?
2. Does the Enterolab test A1 and C1 only verify allergy to gluten, lactose, casein, egg and soy? And if I haven't eaten any of these in a while is the test still be accurate?
3. How do I figure out what my other triggers are?
Guess I should add that work was extremely stressful in February. I worked long hours.
new here and overwhelmed
Moderators: Rosie, JFR, Dee, xet, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
HI Jn,
Just want to welcome you here...
It can take a little while to figure out what our Safe Food might be, so have you made sure you are not on any medications at this time and have pared way back to only a protein (turkey or wild game), a non starchy vegetable (sweet potato, yellow/red potato) maybe a White rice but only you know if you have had problems with this item in the past, and a mild liquid such as water (or if you have had coffee in the past perhaps that is still ok to - but with no additives like sugar or non-dairy creamers).
I had to basically start from scratch and learn to make bone broth, which I used Cornish Hen bone carcass and turned the broth into gluten free noodle soup using Tikiyada noodles and some carrots, celery and added the meat too. With this it is important to freeze in portions so as to not fight against the histamine issues that we all seem to butt up against as we go thru this healing journey. This was and has been my go to staple as I like warm meals and it provides liquid too.
Starting at this majorly low level of food options will allow you to slowly introduce an item but that is after you have stayed on this seemingly meager diet for a while or until you see you bathroom trips dropping off considerably. One needs to give the gut a major rest so it can begin to heal. Sometimes this meager diet needs to be tweaked in order to start seeing a healing response.
I haven't re-taken the Enterolab testing again so can not say if not eating those items makes the accuracy off or not. It will give you a status of where you are currently and that is just as important.
Stress will make any of us "off" so if you haven't seen any results from your February by now you may not and you'll need to address what else it may be.
If you are on 3 Entocort that may not be enough to stop the D....you'd need to bump yourself back to the 9mg get reestablished where there is no D again and start all over but this time do the meager diet along with it so by the time you slowly taper back down to the 3 again which may take another 2-3 months again since a fast taper I've learned from this site is not a good thing and will immediately bring on D if tapered to fast.
Ponder a few of these changes....I hope you find your perfect fit
Just want to welcome you here...
It can take a little while to figure out what our Safe Food might be, so have you made sure you are not on any medications at this time and have pared way back to only a protein (turkey or wild game), a non starchy vegetable (sweet potato, yellow/red potato) maybe a White rice but only you know if you have had problems with this item in the past, and a mild liquid such as water (or if you have had coffee in the past perhaps that is still ok to - but with no additives like sugar or non-dairy creamers).
I had to basically start from scratch and learn to make bone broth, which I used Cornish Hen bone carcass and turned the broth into gluten free noodle soup using Tikiyada noodles and some carrots, celery and added the meat too. With this it is important to freeze in portions so as to not fight against the histamine issues that we all seem to butt up against as we go thru this healing journey. This was and has been my go to staple as I like warm meals and it provides liquid too.
Starting at this majorly low level of food options will allow you to slowly introduce an item but that is after you have stayed on this seemingly meager diet for a while or until you see you bathroom trips dropping off considerably. One needs to give the gut a major rest so it can begin to heal. Sometimes this meager diet needs to be tweaked in order to start seeing a healing response.
I haven't re-taken the Enterolab testing again so can not say if not eating those items makes the accuracy off or not. It will give you a status of where you are currently and that is just as important.
Stress will make any of us "off" so if you haven't seen any results from your February by now you may not and you'll need to address what else it may be.
If you are on 3 Entocort that may not be enough to stop the D....you'd need to bump yourself back to the 9mg get reestablished where there is no D again and start all over but this time do the meager diet along with it so by the time you slowly taper back down to the 3 again which may take another 2-3 months again since a fast taper I've learned from this site is not a good thing and will immediately bring on D if tapered to fast.
Ponder a few of these changes....I hope you find your perfect fit
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Hi JAB,
Welcome to the group. It sounds as though you've had a tough go of it
Erica has given some good advice. I can't tell from your post if you've been reacting for the past 10 years, only for the past month or somewhere in between. Nevertheless, let's try to track down the problem. I'll try to answer your questions.
Stress can promote reactions by increasing our histamine activity. Many of us have histamine problems and have to drastically limit high-histamine foods. Fish and chicken are high-histamine foods. Turkey is not, and virtually none of us react to turkey. Quite a few of us react to chicken.
I hope that some of this is helpful.
Again, welcome aboard, and please feel free to ask anything.
Tex
P. S. By the way, the casein in all dairy products is a much bigger problem for us than the lactose.
Welcome to the group. It sounds as though you've had a tough go of it
Erica has given some good advice. I can't tell from your post if you've been reacting for the past 10 years, only for the past month or somewhere in between. Nevertheless, let's try to track down the problem. I'll try to answer your questions.
It's not a no-no, but I'm not sure that it's a yes-yes, either. Reports of any actual benefits for MC patients seem to be elusive.jn wrote:1.Taking 1 tsp of slippery elm in water daily. Is this a No-No?
Yes, for the A1 test. The C1 test considers antibodies to beef, pork, chicken, corn, rice, oats, tuna, walnut, cashew, almond, and potato. The A1 test would only verify whether or not your diet has been cross-contaminated. Most people find that their diet has not been nearly as pure as they think it has.jn wrote:2. Does the Enterolab test A1 and C1 only verify allergy to gluten, lactose, casein, egg and soy? And if I haven't eaten any of these in a while is the test still be accurate?
The C1 test from EnteroLab is a good place to start.jn wrote:3. How do I figure out what my other triggers are?
Chronic stress can defeat the best of diet programs. Even Budesonide will not always be effective against stress.jn wrote:Guess I should add that work was extremely stressful in February. I worked long hours.
Stress can promote reactions by increasing our histamine activity. Many of us have histamine problems and have to drastically limit high-histamine foods. Fish and chicken are high-histamine foods. Turkey is not, and virtually none of us react to turkey. Quite a few of us react to chicken.
I hope that some of this is helpful.
Again, welcome aboard, and please feel free to ask anything.
Tex
P. S. By the way, the casein in all dairy products is a much bigger problem for us than the lactose.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Welcome.......don't stress.........we've all been where you are and lived to tell about it..........I know........easier said than done!
Just wanted to say that 9 mg of Entecort/budesonide is 3 capsules...........so if you are taking that, you probably need to also work on getting your diet in order. There are great messages in here on how to get started.
Just wanted to say that 9 mg of Entecort/budesonide is 3 capsules...........so if you are taking that, you probably need to also work on getting your diet in order. There are great messages in here on how to get started.
Jari
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
new here and overwhelmed
WOW!
Thanks for all the fabulous information and assistance. You are better than doctors and cheaper!! lol
Do you take a digestive enyme? and is there a preferred one?
I am taking the Genestra HMF Intensive 500 probiotic.
It's expensive. Is there one more suited to MC? or what strains should a probiotic included to assist with MC?
Been making bone broth for years. It's my "morning coffee" as I have not had a coffee in over 30 years.
Does any one make Protein shakes? What are your ingredients?
Why is the MC diet no/low fat?
Thanks
Thanks for all the fabulous information and assistance. You are better than doctors and cheaper!! lol
Do you take a digestive enyme? and is there a preferred one?
I am taking the Genestra HMF Intensive 500 probiotic.
It's expensive. Is there one more suited to MC? or what strains should a probiotic included to assist with MC?
Been making bone broth for years. It's my "morning coffee" as I have not had a coffee in over 30 years.
Does any one make Protein shakes? What are your ingredients?
Why is the MC diet no/low fat?
Thanks
JAB
The only time I ever took a digestive enzyme, I was sick with projectile vomiting and a burning stomach for about 4 days before I could get up the nerve to try solid food again. Clearly, they are not for everyone. YMMV.
Statistically, maybe 1 or 2 % of the members who have tried probiotics during their recovery claim that it helped. The majority found that it made no difference, and the rest saw a worsening of symptoms, usually a severe worsening. I've never tried them.
Good for you — broth is a very beneficial way to start the day.
You have to be very careful of the ingredient list, but several members use protein shakes (or at least they tried them). Hopefully a few of them will notice this post and add their insight.
The fewer the carbs, the more nutritious your diet. Humans require protein and fat in order to survive — they specifically do not require carbs or fiber for survival or good health or anything else. Our ability to digest carbohydrates is severely compromised when our intestines are inflamed (our intestines can't produce enough of the specific enzymes needed). So carbs tend to ferment and produce gas and diarrhea. Consequently we do better when we get our calories from fat, but we have to be careful early on because we have trouble absorbing fat when our intestines are inflamed. Protein is necessary for healing so we go heavy on the protein.
Tex
Statistically, maybe 1 or 2 % of the members who have tried probiotics during their recovery claim that it helped. The majority found that it made no difference, and the rest saw a worsening of symptoms, usually a severe worsening. I've never tried them.
Good for you — broth is a very beneficial way to start the day.
You have to be very careful of the ingredient list, but several members use protein shakes (or at least they tried them). Hopefully a few of them will notice this post and add their insight.
The fewer the carbs, the more nutritious your diet. Humans require protein and fat in order to survive — they specifically do not require carbs or fiber for survival or good health or anything else. Our ability to digest carbohydrates is severely compromised when our intestines are inflamed (our intestines can't produce enough of the specific enzymes needed). So carbs tend to ferment and produce gas and diarrhea. Consequently we do better when we get our calories from fat, but we have to be careful early on because we have trouble absorbing fat when our intestines are inflamed. Protein is necessary for healing so we go heavy on the protein.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.