Diet is key. Those who are not on proper diet will relapse after taking their last budesonide.
If you are really struggling and depressed then budesonide will help. I was on it for 4.5 months. We find for those who take it it seems to work best for longer stints of 4.5 or 5 for 6 months or so. The American docs typically only prescribe it for only 3 months which forum members find is not long enough time. We recommend a very slow taper at the end. 1 pill every other day for a month, 1 pill every third day for a month etc before getting off.
22 Male, Lymphocitic Colitis Symptoms
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Hi Joel,
I’m catching up on posts here and thought I’d chime in and say that, like Brandy, I took Budesonide for 4 1/2 months and I did find it helpful. Basically it helped calm inflammation while I worked to get my diet gluten free, dairy free, and soy free. You do have to taper off slowly like Brandy described above. If you don’t have your diet in order you will likely relapse when you stop the Budesonide. It’s the diet that heals.
When in a big flare like you described I also had to eliminate sugar, fat, caffeine, fiber, and any acidic foods . I also became aware that strenuous exercise, fatigue, and my seasonal allergies were irritants/triggers during that time.
Omega-3 supplements typically contain soy so if you haven’t stopped those supplements I agree with the others that you should. Stay with the chelated magnesium and D3.
I hope you are doing better since your last posts.
Carol
I’m catching up on posts here and thought I’d chime in and say that, like Brandy, I took Budesonide for 4 1/2 months and I did find it helpful. Basically it helped calm inflammation while I worked to get my diet gluten free, dairy free, and soy free. You do have to taper off slowly like Brandy described above. If you don’t have your diet in order you will likely relapse when you stop the Budesonide. It’s the diet that heals.
When in a big flare like you described I also had to eliminate sugar, fat, caffeine, fiber, and any acidic foods . I also became aware that strenuous exercise, fatigue, and my seasonal allergies were irritants/triggers during that time.
Omega-3 supplements typically contain soy so if you haven’t stopped those supplements I agree with the others that you should. Stay with the chelated magnesium and D3.
I hope you are doing better since your last posts.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
8,000 to 10,000 IU of vitamin D per day should help to control the GERD. A week or so after you get it under control you can lower the dose to 4,000 to 5,000 IU per day. If you're still taking the fish oil, that's probably contributing to the GERD.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I take 10,000 of Drs. Best D3 and I do fine with it. If anyone’s stomach is ridiculously sensitive it’s mine. I take that brand of chelated magnesium too.
Best of luck-
Carol
Best of luck-
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
That's one of the possible symptoms of MC, caused by delayed stomach emptying. It should fade as digestion improves. Sometimes magnesium helps to relax the lower pyloric sphincter and keep it from spasming.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I've learned from a nurse that a half dose of benadryl 12.5 mg will help with any nausea....as does it also help with any histamine too. Like any med, a bit extra magnesium is a must in order for the med not to keep depleting the stores in the body. You shouldn't have to take but one half dose during the day of benedryl to see results.....if you are nauseous before bed a full 25 mg dose will help give a good night sleep....it is not a body dependent med but I wouldn't take it long term either, just long enough to get me over the hump.
Erica
Erica
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Hi Joel- it’s common to go through phases and I can relate to dizziness while healing. I’m glad to hear you say that the dizziness is subsiding. I would say that right side pain is not unusual, when you consider you are dealing with so much inflammation. Cramping and spasms are not unusual either, and virtually all of us have dealt with cramping to some degree. Even gas that you would have never noticed before can be painful right now.
How are you doing with your magnesium supplementation? Keeping those levels up will help with cramping and muscle spasms.
Carol
How are you doing with your magnesium supplementation? Keeping those levels up will help with cramping and muscle spasms.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
If it's a dangerous strain (such as the bird flu), I take 150,000 IU of vitamin D for 3 or 4 days, otherwise for ordinary strains such as the stomach flu, I take nothing. 
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.