I have always found so much help in this forum and I am hopeful that this time will not be different. I have finally gotten off of the antihistamines that I used to taper off of budesonide and was going along well until this showed up 6 weeks ago. My mouth and tongue are "on fire" also with decreased saliva production. So I researched and diagnosed myself with thrush. I treated it with coconut oil pulling and tea tree essential oil & salt water rinses...it "went away" in about 1 week. Now 6 weeks later it is back and much worse. I went to my dentist who said it didn't look like thrush but it could be "burning mouth syndrome" he gave me a Rx for Nystatin. I had to start it because I couldn't even eat! Does anyone have any suggestions, experience, ideas?
I continue to follow a very strict Gluten free, dairy free and sugar free diet x almost 5 years. I eat only a hand full of various vegetables well cooked only. Occ. bananas or plantains. Lots of meat. I take MethylGuard, probiotics (culturelle), Vit D, Multi vitamin/mineral and folate.
No longer have explosive D usually very soft and formed with only occasionally urgency.
Do you think I have candida? Is it another autoimmune learn to live with condition!?
any help will be greatly appreciate!
New issue! Burning mouth and tongue syndrome
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
Hi,
This has come up before. I suppose it's possible that it could be due to a Candida overgrowth.
But if your mouth is inflamed, it's more likely that it might be a mast cell issue — you are probably allergic to something (you may be allergic to the yeast). You almost surely do have a Candida overgrowth. And IMO it's also possible that it might be connected with discontinuing antihistamines. Your body might have somehow developed a dependence on them (but this would be kind of a long shot). Below is a link to a thread that you may find interesting.
https://perskyfarms.com/phpBB2/viewtopic.php?t=22337
If you do a search of the archives, this thread, together with about 11 others should show up.
Tex
This has come up before. I suppose it's possible that it could be due to a Candida overgrowth.
But if your mouth is inflamed, it's more likely that it might be a mast cell issue — you are probably allergic to something (you may be allergic to the yeast). You almost surely do have a Candida overgrowth. And IMO it's also possible that it might be connected with discontinuing antihistamines. Your body might have somehow developed a dependence on them (but this would be kind of a long shot). Below is a link to a thread that you may find interesting.
https://perskyfarms.com/phpBB2/viewtopic.php?t=22337
If you do a search of the archives, this thread, together with about 11 others should show up.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Tex I should have been more clear about the antihistamines, I have only stopped taking Allegra for a couple of weeks and the burning mouth actually first appeared while I was still taking Allegra. I however notice that I am so sensitive to chemicals such as fertilizers or bug sprays and my tongue will feel numb. This problem has happened for years.
Thank you for your reply. I will follow your suggested thread.
Thank you for your reply. I will follow your suggested thread.
Burning mouth syndrome another question...TEX
Tex,
I read the older thread RE: burning mouth syndrome and also reread the Mast Cell info from one of my previous questions. I noticed in the MCAD info there is mention of Salicylate sensitivity. In your opinion, do you think that could be an issue for me and if so, is there a "test" for that other than an Elimination Diet?
My diet is VERY limited but I eat avocado, coconut oil, ripe bananas, sweet potatoes, broccoli, coffee and honey all of these EVERY single day! and all of these foods are high or extremely high in salicylates.
Also, will antihistamines decrease the response caused by these foods like it does with histamines?
Thank you!
I read the older thread RE: burning mouth syndrome and also reread the Mast Cell info from one of my previous questions. I noticed in the MCAD info there is mention of Salicylate sensitivity. In your opinion, do you think that could be an issue for me and if so, is there a "test" for that other than an Elimination Diet?
My diet is VERY limited but I eat avocado, coconut oil, ripe bananas, sweet potatoes, broccoli, coffee and honey all of these EVERY single day! and all of these foods are high or extremely high in salicylates.
Also, will antihistamines decrease the response caused by these foods like it does with histamines?
Thank you!
Hi,
According to the article cited below,typical symptoms are inflamed nasal passages and nasal polyps or asthma, but sometimes itching (all over), or intestinal inflammation are present. I suppose an inflamed mouth could be a qualifying symptom. The article says that salicylate intolerance causes lab symptoms involving prostaglandins and leucotrienes (rather than histamine). Of course, prostaglandins and leucotrienes still result from mast cell degranulation. There's no regular diagnostic test. Diagnosis is based on symptoms occurring immediately following ingestion of salicylates.
Salicylate Intolerance
An antihistamine probably wouldn't help, because it's not a histamine-based reaction.
Tex
According to the article cited below,typical symptoms are inflamed nasal passages and nasal polyps or asthma, but sometimes itching (all over), or intestinal inflammation are present. I suppose an inflamed mouth could be a qualifying symptom. The article says that salicylate intolerance causes lab symptoms involving prostaglandins and leucotrienes (rather than histamine). Of course, prostaglandins and leucotrienes still result from mast cell degranulation. There's no regular diagnostic test. Diagnosis is based on symptoms occurring immediately following ingestion of salicylates.
Salicylate Intolerance
An antihistamine probably wouldn't help, because it's not a histamine-based reaction.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi mwt,
Here is just one of many articles and journal entries regarding nano-silver and its effects on Candida Yeast (fungi, mold, bacteria etc) https://jnanobiotechnology.biomedcentra ... 015-0147-8
Another product to research on would be the S. Boulardii https://www.mygenefood.com/saccharomyce ... probiotic/ this is another potential helper in relieving some of the symptoms you are experiencing.
I can attest to their abilities as I am taking them both on a daily basis every morning and I have seen very good results and I no longer have been taking antihistamines for a few months now....in regards to your burning mouth sensation I assume you are getting good daily intake of VitD3 plus Magnesium? I notice you included VitD but not Magnesium in your list above....
Here is just one of many articles and journal entries regarding nano-silver and its effects on Candida Yeast (fungi, mold, bacteria etc) https://jnanobiotechnology.biomedcentra ... 015-0147-8
Another product to research on would be the S. Boulardii https://www.mygenefood.com/saccharomyce ... probiotic/ this is another potential helper in relieving some of the symptoms you are experiencing.
I can attest to their abilities as I am taking them both on a daily basis every morning and I have seen very good results and I no longer have been taking antihistamines for a few months now....in regards to your burning mouth sensation I assume you are getting good daily intake of VitD3 plus Magnesium? I notice you included VitD but not Magnesium in your list above....
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Erica
I have the ReMag but have only tried it once and it gave me D again. I do plan to get the more tolerated one mentioned on this site. I visited with my FM doctor today via skype and she is starting me on B12 injections again. She feel that the BMS is neurological and due to my inability to absorb B12. She is also starting me on Butyric Acid, RESTORE supplement, a GFCF probiotic called Probiotic HistaminX and Similase enzymes and eventually Enteragram. All of this is in addition of course to my strict diet. She is continuing my Methylguard supplement, Vit D 5000, multi vit/min, Folate, and iodine.
Whew!!! Hope I can keep up and afford all of this!
Oh, and she said to try Xyzal antihistimine as it was a more "pure" form of antihistamine. not mixed with other chemicals...
Any comments welcome!
I have the ReMag but have only tried it once and it gave me D again. I do plan to get the more tolerated one mentioned on this site. I visited with my FM doctor today via skype and she is starting me on B12 injections again. She feel that the BMS is neurological and due to my inability to absorb B12. She is also starting me on Butyric Acid, RESTORE supplement, a GFCF probiotic called Probiotic HistaminX and Similase enzymes and eventually Enteragram. All of this is in addition of course to my strict diet. She is continuing my Methylguard supplement, Vit D 5000, multi vit/min, Folate, and iodine.
Whew!!! Hope I can keep up and afford all of this!
Oh, and she said to try Xyzal antihistimine as it was a more "pure" form of antihistamine. not mixed with other chemicals...
Any comments welcome!
Good deal mwt,
a note about the ReMag...(it can be applied topically too if you can get it to sit on your skin without rolling off before it absorbs in-this is where the Remag lotion is really great)...it is so highly concentrated that you may do best with a few drops in your drink as compared to a 1/2 teaspoon or what ever you may have been taking....and just maintain a few drops along with any external Mag you can tolerate at this time. I know I am not able to get past a 1/4 teaspoon and I've had it for a long time in my fridge! LOL so don't feel bad, I seem to do fine with my 200mg KAL tablet morning and night and what little extra I may need mid day depending on the kind of day I am having.
It sounds like you know of your MTHFR gene relation and have taken steps to keep it corrected
You'll find your balance soon, as you are being very proactive!
a note about the ReMag...(it can be applied topically too if you can get it to sit on your skin without rolling off before it absorbs in-this is where the Remag lotion is really great)...it is so highly concentrated that you may do best with a few drops in your drink as compared to a 1/2 teaspoon or what ever you may have been taking....and just maintain a few drops along with any external Mag you can tolerate at this time. I know I am not able to get past a 1/4 teaspoon and I've had it for a long time in my fridge! LOL so don't feel bad, I seem to do fine with my 200mg KAL tablet morning and night and what little extra I may need mid day depending on the kind of day I am having.
It sounds like you know of your MTHFR gene relation and have taken steps to keep it corrected
You'll find your balance soon, as you are being very proactive!
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Hi,
I also have the burning mouth syndrome. I had it for the first time about 10 or 15 years before I developed MC, in a severe way.
Now I have it regularly in a mild way and in my case it comes together with candida. It appears when I have been eating something 'wrong', like a very tiny bit of sugar or yeast, mushrooms or maybe apple vinegar. I'm still finding out, but it is surely related to food in my case (or when my resistance is very low). I don't take medications for it, just wait untill it goes away and stick to my diet.
Good luck.
Sonja
I also have the burning mouth syndrome. I had it for the first time about 10 or 15 years before I developed MC, in a severe way.
Now I have it regularly in a mild way and in my case it comes together with candida. It appears when I have been eating something 'wrong', like a very tiny bit of sugar or yeast, mushrooms or maybe apple vinegar. I'm still finding out, but it is surely related to food in my case (or when my resistance is very low). I don't take medications for it, just wait untill it goes away and stick to my diet.
Good luck.
Sonja