So happy to have found this forum.
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
So happy to have found this forum.
I was diagnosed 3 years ago after having "IBS" for 3 years prior. I have done my courses of pepto and Budesonide with short term remission. Also did a trial of cholestyramine with a 3rd trial of Budesonide. Nothing has kept me in remission. I am very angry and disappointed that not one of the 2 internal med or the GI specialist that I saw EVER mentioned diet changes. I did not like the side effects of anything I have tried to date. I have been reading through this website for several days now and have decided to use Enterolab....to start there and modify my diet. Reading through the success stories is promising, and has been the only bright light at the end of this long tunnel. Wish me luck!
Hi,
Welcome to the group. Glad you found us. Apparently most medical professionals still incorrectly believe that diet has nothing to do with this disease. That's like insisting that breathing polluted air or coal dust all day has nothing to do with asthma, COPD, or lung cancer.
If I recall correctly, published medical research shows that approximately 85 % of MC patients normally relapse after their budesonide treatment is ended. Strangely, doctors continue to prescribe it as if it's going to work next time even though it didn't work the first time or two. Doh!
Relapses seldom happen if we change our diet when we begin the budesonide treatment, extend the treatment slightly, and then wean the dosage very slowly. But if you correctly change your diet, you can heal your digestive system without taking any drugs. Some people take the budesonide anyway, in order to mask the symptoms while the diet is healing their digestive system.
It sounds as though you already know what to do. Good for you. Good luck on your journey to recovery. Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to the group. Glad you found us. Apparently most medical professionals still incorrectly believe that diet has nothing to do with this disease. That's like insisting that breathing polluted air or coal dust all day has nothing to do with asthma, COPD, or lung cancer.
If I recall correctly, published medical research shows that approximately 85 % of MC patients normally relapse after their budesonide treatment is ended. Strangely, doctors continue to prescribe it as if it's going to work next time even though it didn't work the first time or two. Doh!
Relapses seldom happen if we change our diet when we begin the budesonide treatment, extend the treatment slightly, and then wean the dosage very slowly. But if you correctly change your diet, you can heal your digestive system without taking any drugs. Some people take the budesonide anyway, in order to mask the symptoms while the diet is healing their digestive system.
It sounds as though you already know what to do. Good for you. Good luck on your journey to recovery. Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Just a few thoughts today! I have been in the medical field for 35+ years, and maybe it's my age, but I have always trusted my health care providers to "know what is best." I guess I was blind sided by MC and given misinformation...or my HCP just haven't done the research.
I have been reading through this site and it's in a way comforting to know that my itchy eyebrows, difficulty swallowing at times, bloating, cramping, seasonal eczema......and knowing in advance of leaving my house where every bathroom is located.......are all related. The members here have alleviated a lot of my anxiety about living with and controlling MC.
I have only been GF for 2 days, but already the urgency is gone, and I have decreased my Imodium to 1mg twice daily successfully.
I will never take Entocort again r/t side effects, which are listed in the PDR as rare: cataracts went from 0-30% in the year I was on a maintenance dose...as well as changes in my bone density and skin integrity. And Cholestyramine ramped up my triglycerides to a critical high level.
So....lesson learned. "TRUST YOUR GUT."
I thank everyone who has contributed to this site. I know only 2 days of gf isn't amazing, but it's a start!
I have been reading through this site and it's in a way comforting to know that my itchy eyebrows, difficulty swallowing at times, bloating, cramping, seasonal eczema......and knowing in advance of leaving my house where every bathroom is located.......are all related. The members here have alleviated a lot of my anxiety about living with and controlling MC.
I have only been GF for 2 days, but already the urgency is gone, and I have decreased my Imodium to 1mg twice daily successfully.
I will never take Entocort again r/t side effects, which are listed in the PDR as rare: cataracts went from 0-30% in the year I was on a maintenance dose...as well as changes in my bone density and skin integrity. And Cholestyramine ramped up my triglycerides to a critical high level.
So....lesson learned. "TRUST YOUR GUT."
I thank everyone who has contributed to this site. I know only 2 days of gf isn't amazing, but it's a start!
Welcome....
In regards to trusting an HCP....I do still when it comes to needing certain medical advice and to the surgeons that can fix things and sew us back up again! When it comes to the MC thing.....nope....not even a little bit until our pharmaceutical companies stop making it so hard on them that they don't have to push chemicals as a means of 'fixing' a person.
It would be nice if our Doctors could blend some natural along with the medical now days...let them learn and practice beyond the chemical way of treatment....I know there are some starting this path but there are not enough of them based on the degree of need as seen from this site. Makes me wonder if Big Pharma is forcing certain requirements on our Regular Practicing Doctors to only offer their product, and then those that become Functional Medicine Doctors aren't as supported due to Big Pharma not being interested in them.
I really wish our medical community could be more open minded, it's not like we require such a shift in order to heal MC/LC/CC but it is enough that it changes a person's lifestyle perhaps more than we'd like, and we need support!
On a good note....most of the symptoms you mention...I no longer have to worry about
We Can and Do heal, it just takes time and a willingness to change our diet and lifestyle a bit.
In regards to trusting an HCP....I do still when it comes to needing certain medical advice and to the surgeons that can fix things and sew us back up again! When it comes to the MC thing.....nope....not even a little bit until our pharmaceutical companies stop making it so hard on them that they don't have to push chemicals as a means of 'fixing' a person.
It would be nice if our Doctors could blend some natural along with the medical now days...let them learn and practice beyond the chemical way of treatment....I know there are some starting this path but there are not enough of them based on the degree of need as seen from this site. Makes me wonder if Big Pharma is forcing certain requirements on our Regular Practicing Doctors to only offer their product, and then those that become Functional Medicine Doctors aren't as supported due to Big Pharma not being interested in them.
I really wish our medical community could be more open minded, it's not like we require such a shift in order to heal MC/LC/CC but it is enough that it changes a person's lifestyle perhaps more than we'd like, and we need support!
On a good note....most of the symptoms you mention...I no longer have to worry about
We Can and Do heal, it just takes time and a willingness to change our diet and lifestyle a bit.To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
mloriras,
Regarding your thoughts: When you and I were kids, we trusted our doctors completely (and so did our parents). Doctors were mostly free agents who were able to treat their patients as they saw fit. Today, there are too many fat cats telling doctors what they can and can't do. Physicians are forced to treat their patients according to how the government, the hospital administrator and board of directors, the hospital lawyers, various insurance companies, and their drug company reps think patients should be treated. That leaves doctors with very little leeway with regard to treating patients. Most of them have long since lost their initiative and if they aren't already burned out, they will be soon.
Tex
Regarding your thoughts: When you and I were kids, we trusted our doctors completely (and so did our parents). Doctors were mostly free agents who were able to treat their patients as they saw fit. Today, there are too many fat cats telling doctors what they can and can't do. Physicians are forced to treat their patients according to how the government, the hospital administrator and board of directors, the hospital lawyers, various insurance companies, and their drug company reps think patients should be treated. That leaves doctors with very little leeway with regard to treating patients. Most of them have long since lost their initiative and if they aren't already burned out, they will be soon.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.