Perception

What are the immediate and long-term effects of living with this disease?

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Marcia K
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Perception

Post by Marcia K »

Hello. I'll be 58 in May. On Monday I went to the funeral of a man who would have been 58 in October. He looked healthy & fit, a heart attack took his life. On Monday evening I went to the viewing of a woman who would have been 58 in July. She also had a heart attack, secondary issue was diabetes. Needless to say I was washed out by the end of the day but in looking back at that day, how lucky I am to be alive. Yes, I have LC and it stinks. It has affected my life but I am here and alive and kicking. I am so very grateful to be here with my family. Wishing you all a good day and happy days ahead!
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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tex
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Post by tex »

Hi Marcia,

Thanks for sharing your thoughts. That was very eloquently phrased.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Erica P-G
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Post by Erica P-G »

kinda puts things into perspective... :iagree:
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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Gabes-Apg
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Post by Gabes-Apg »

quite often I am happy to say that my MC diagnosis enhanced my life

it led me to this group of amazing people,
it led me into choices /changes in my life that I would not otherwise done,
I have learnt about inflammation, toxins and been able to help others with their awareness of these issues...
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Post by MCR »

Are there some people in this group who still write on this forum and who have been in remission for a while. I would love to hear from you.

MCR
Hopeful For Remission
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tex
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Post by tex »

Most ride off into the sunset and resume their lives when the symptoms start disappearing, but a few are kind enough to leave a report of their recovery. You can read many of those stories at the link below.

Member Success Stories

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
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Post by Gabes-Apg »

MCR I am one that has been good remission from the MC for a few years.
and in stable condition with the other auto immune issues that were chronic a few years ago.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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skp
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Post by skp »

While I haven't written a member success story, I am in remission. I wouldn't be without this amazing forum and seriously taking the advice given. While I don't contribute often, I log in several times a week and read most posts because I am keen to continue learning and know that if I ask a question, there will be a response to help me.

It is rare now for me to have D and if I do it is usually the result of too much fiber. My diet remains gluten free, dairy free, soy free, egg free (except for duck eggs) and reduced fiber. I've learned to travel in the US but have to prepare for the constipation that comes with that travel. As long as I can keep my bowels moving with Miralax or Senekot and Colace, I am fine. Travel to the UK in the spring of 2019 will be a new challenge but I am hoping for the best.

My heart goes out to newbies as I, like so many others, know how traumatic it is to get the diagnosis of MC. Thankfully, they have found this forum and will hopefully write their own success story one day.

Susan
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Post by JulieS »

MCR, I too am a success story. I check in with the Forum every month or so to learn and see if I can offer any help.
My life has essentially returned to normal with the exception that I avoid all gluten and limit dairy. I have been accidentally "poisoned" 3 times in the last 6 months. Each time the symptoms have been uncomfortable, yet minor. I would not characterize it as a relapse. I feel blessed.

About this time last year I received my diagnosis. Finding this Forum enabled me to stay medicine-free and control my symptoms with diet. I ate nothing but plain chicken, cooked carrots, sweet potatoes, grits, bacon, and dark chocolate (gotta have my chocolate!) for 3 months. I slowly added eggs, dairy, fruits, and veggies back into my diet. I then successfully added wine, gluten free beer, and coffee. Now, as I said life is good. I wish the same for all you you.

Julie
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Post by Grahm »

I too have done so well after finding this board. I was diagnosed in 2014 with Lymphocitic colitis. This board saved my life. I read, read ...... My doctors had no idea. I’ve had so many friends ask me to call a person (per say) that had the same symptoms i’ve Had.. I ‘ve done that, just today, I did. I owe so much to this site that I need to check in more and pay back back. Thanks to everyone and i’m Back to help. I will be checking in each day!
I did ck in every day when I was working with my computer right on my desk. I retired last JUly and now I have to make it a priority to check my emails and ck on this website.
I promise to do better.

Love,
Connie
Live, Laugh & Love Much
Marcia K
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Post by Marcia K »

Hi,MCR. I am in remission through dietary changes alone. I took Pepto to stop the D but after that everything I learned on managing this disease was from this site. Read the forums, ask a lot of questions and you will find the help that you need to get your life back. Tex's book listed in the upper right hand corner was helpful to me as well. My 5 year diagnosis anniversary is in August. At that time I never thought I would live a normal life again. But I do, as long as I watch what I eat. I accept that there are foods that I will never be able to eat again and that's ok. Being able to be out & about and not chained to the bathroom makes it all worthwhile. Good luck to you on your journey to healing.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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