1 step forward and 2 back

[tex]

Tex

[grannykathy]

Well those 2 steps back just keep plaguing me. Since my last post I have had to go back on Budesonide. I kept trying to stay off of it , but no go. I had to take 6 mg Monday (3 bad spells of watery D with incontinence - thankfully I was at home) Took 3 mg yesterday. Haven't decided what I'll do today. Yesterday I had one not too horrible BM. Nothing yet today, but its early and haven't eaten yet.

When I get this settled down, I think I have resigned myself to taking a 3 mg capsule probably twice a week. If that will keep me from having these frequent flares then I would rather just take them. I am staying gluten free, but have been using a few gf products like bread and pasta. Maybe that's my problem? I made a meatloaf with gf bread crumbs. I had eaten that the night before this last spell happened. I just keep trying to prepare something that the hubby and I can eat together, but probably just need to go back to cooking for us separately.

They say getting old is not for sissies. Getting old with MC is definitely not for sissies. :)

[tex]

Based on their descriptions, GF baked products are a Godsend for most people who are gluten-sensitive. But that's just the claims of the manufacturers. I was never able to tolerate most of them (nor most mixes) while I was recovering, and I still can't tolerate many of them. IMO, GF baked products are for celiacs, not MC patients. I have a hunch that more than a few MC patients have never been able to reach remission because they trusted such products and continued to use them.

One of the problems is that even if all the ingredients are safe, certain combinations of ingredients tend to cause some of us to react, and that combination can vary by the individual. That makes such products minefields for MC patients.

All baked goods are primarily carbohydrates. MC causes us to lose our ability to digest normal amounts of carbohydrates, because the inflammation causes us to lose our ability to produce normal amounts of the enzymes needed to digest the various carbs. That's why we recover sooner if we minimize carbs and maximize protein in our recovery diet.

They say getting old is not for sissies. Getting old with MC is definitely not for sissies. :)

The flip side of that is that once you learn how to control MC, such a personal victory is very empowering, and you should be able to deal with just about anything that comes along in the future.

Tex

[grannykathy]

Hmmm, well that's all good information. Never would have occurred to me that MC'ers and celiacs would react differently to gf products. I guess because I see my gluten sensitivity as just a milder version of being celiac. Guess its more complicated than that.

"once you learn how to control MC, such a personal victory is very empowering, and you should be able to deal with just about anything that comes along in the future."

I'm sure this is true because even though I don't yet have victory, just having gone through this for the last 6 months has made me feel like I am much more able to deal with lesser issues that I use to consider to be really big issues.

I guess what they say is true -"whatever doesn't kill you makes you stonger" The good Lord doesn't allow these afflictions for no reason.

[tex]

I believe a lot of us are much more sensitive to gluten than many celiacs. A lot of celiacs can eat gluten for weeks or even months before they begin to react. A few of us are like that, but most of us begin to react to gluten in 3–6 hours after exposure.

Tex

[Gabes-Apg]

Aside from the small amounts of gluten, baked goods tend to be high in sugar /carbs and have multitude of ingredients.

As per the low inflammation gut healimg eating plan, we encourage small amount of ingredients each meal, lots of animal protein more so than carbs, and healthy protein snacks rather than carbs.

Hope this helps.