There is life after (during) mc

LauraAnn · Post by **LauraAnn** » Thu Oct 20, 2016 9:32 pm

After being totally unable to function since the first of the year I thought I would never be where I am now. Thanks to every one here I have climbed over all the hurdles and am feeling like there is real hope for normal again. I am still not "normal" in the mornings, but only have to get get thru the first 30 minutes of rising and then the day is okay. I have been able to enjoy going out in the evening and enjoying living again.

I have religiously been paying attention to diet and taking my d, mag, and b's and am able to do things again. I have to brag a little and tell you all I went to see Bob Dylan last night and had a dinner out (pork belly tacos with avocado) and actually wepted with joy at the whole experience. Maybe I should have upped my my magnesium before I went!

I am always reading everyone's story's and just just wanted to thank you all for sharing your experiences and wanted to share mine. For those of you who are new.......hang in there and read all these posts. They will help in many ways, even if you don't immediately relate. Believe it or not, all of the storys I have read have come around to touch me at a time when I least expected it. We are indeed on this this strange voyage together and going to go thru the same experiences together at one time or another.

I think I'm getting a little sappy and weepy again, so will go take some more magnesium and head off to bed. Sweet dreams to all!

Laura

Post by **tex** » Thu Oct 20, 2016 9:48 pm

Pleasant dreams Laura,

It's nice to see that you are doing so much better.

And thank you for the insightful and inspiring update.

Tex

sunny · Post by **sunny** » Thu Oct 20, 2016 10:09 pm

Laura,
I am truly thankful you shared your encouraging life changes and also your tender, grateful heart. I was encouraged tonight by your story. And that's what encouragement does....it give courage to the fortunate heart who hears it.
Sunny

Erica P-G · Post by **Erica P-G** » Fri Oct 21, 2016 5:27 pm

How wonderful for you Laura!

Doing a Happy Dance for you

Marcia K · Post by **Marcia K** » Fri Oct 21, 2016 7:08 pm

Hi, Laura. So happy for you! To feel "normal" again and be able to do "normal" things is truly a gift that we don't take for granted. Thank you for sharing and being an encouragement to others.

tcbolander · Post by **tcbolander** » Sat Oct 22, 2016 12:38 am

Thank you for sharing. As a newbie these updates are so inspiring! God bless!
Tory

Vanessa · Post by **Vanessa** » Sat Oct 22, 2016 8:44 am

Yay Laura!

Gabes-Apg · Post by **Gabes-Apg** » Sat Oct 22, 2016 2:33 pm

great news Laura!!

hope the wellness and improvements keep coming XO

LauraAnn · Post by **LauraAnn** » Sat Oct 22, 2016 4:13 pm

Thank you everyone for the nice comments. I wasn't fishing for them, but sure do appreciate them.

I was hoping someone would have asked about the "pork belly tacos" because I had never heard of them before and was pleasantly surprised at how tasty pork belly is. I bet I live in the wrong part of the country to have been exposed to it before now. I did discover that Cosco sells it and will pick some up next trip.
Yum!

Laura

humbird753 · Post by **humbird753** » Sat Oct 22, 2016 4:23 pm

Good for you, Laura.

I remember my first experiences of being able to do things I had not been able to do in a long time - I cried with joy also. I never thought things would improve; but like you said, they do.

dolson · Post by **dolson** » Sat Sep 15, 2018 11:46 am

I want to write about Support Groups in general. Everything I've learned about my Disease List has come from Support Groups. I was self-diagnosed over the phone with Spasmodic Torticollis by a fellow ST'R! All my symptoms were his symptoms. He started a support group and everything I needed to know came from his group. I knew more about ST than many neurologists. Whenever I felt down, depressed, hurt, or even death looked good, I would call the ST support group line, talk with a fellow ST'R and all was right with the world. Many neurologists jumped on board and we had a quarterly magazine mailed to us on the latest and greatest information on ST, pain, pulling and the hell we went through living with this monster. It was 25.00/yr and money well spent. The neurologists on board the magazine kept us abreast on the latest and greatest information. I learned a lot! My neurologist in town was perplexed with my questions on ST. I fired her because she would not give me the proper amount of medication to help my neck. I left her and she wrote me a letter saying she fired me. So childish!!!! What do medical schools teach doctors? Not much. Don't doctors realize they learn from their patients? I think NOT!

Now I have found another great support group for MC. All the doctors in Savannah, Austin and Mayo would say..take Pepto or the other drug I refused to take. Took Pepto and was falling down and losing my balance. I get more information on MC with this support group than any doctor could ever give me. When I feel sick, depressed, despondent or out of sorts, I get on-line and ask for information with this great MC Support Group. I feel better.

Medicine is failing us. What has happened? Doctors, not all, go into medicine for money and prestige. I'd rather go see a veterinarian because they go to Veterinarian School because they love animals. 99.9% Vets love animals and they give my cat and two dogs the best care. They listen and love their work.

What has happened, y'all?

Post by **tex** » Sat Sep 15, 2018 4:46 pm

Dorothy,

I believe you've hit the nail on the head. A doctor's life is not what it used to be. Doctors may initially love their patients (and their work) the way that veterinarians do. But by the time they get out of med school they are already beginning to become disillusioned because of the constant pressure and all the red tape. Doctors really don't have much freedom to treat their patients any more. They're told what then can and cannot do by the government, the hospital legal staff, the insurance companies, the pharmaceutical companies and the heads of their department. Burnout rates for doctors are at record highs. Depression and suicide rates are above that of the general population.

Tex

skp · Post by **skp** » Mon Sep 17, 2018 10:58 am

Laura,
Your forum entry mean so much to me. MC is such a roller coaster and it's a pleasure to read when someone has come down from a difficult time and is enjoying life. Many of us have been there. I certainly have. I've felt like I've conquered MC and life is fine but then suddenly, something changes to upset the balance.

Thanks for sharing. Your message was an inspiration. I don't know what I'd do without this site.

Susan

Marcia K · Post by **Marcia K** » Mon Sep 17, 2018 1:28 pm

You are so right, Tex. My primary care doctor put a diagnosis code on my authorization for a mammogram that I do not have! I took it back to him and said that I do not have this, and I'm not having this diagnosis follow me the rest of my life. He said he needed the diagnosis code for the insurance to pay for my visit. {thunk} Needless to say he removed it.

Dolson, I so agree about the support groups. I have learned so much on this site and by reading Tex's book. Had I listened to my GI I would be on medication instead of healing my gut through dietary changes. I am forever grateful to this group!