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Discussions on the details of treatment programs using either diet, medications, or a combination of the two, can take place here.

Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

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JFR
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Post by JFR »

I use pure curcumin powder from BulkSupplements.com. I mix it with water along with pure magnesium glycinate from the same company. I also add a couple of other supplements that have no additives, mix it in a blender and drink the mixture down. It doesn't taste great but it is drinkable. Of course I am in remission so the fact that I don't react to any of this is probably a result of having successfully healed my system. I never would have tried this early on. The curcumin does seem to help with joint pain.

Jean
hollyweb
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Post by hollyweb »

Just a quick note in case someone else ever has this issue. I've used pure turmeric for cooking in the past (while symptomatic with MC but prior to diagnosis) as well as supplements such as Berberine which contain turmeric, and found that I cannot take them. They turn my fingernails the color of the ingredient - golden yellow! Since I used to take Echinachea with goldenseal regularly for years prior to MC, I believe that I'm not able to properly absorb this ingredient any more. Wish I could; I've read of all the wonderful properties that it has. But as has been stated here ... we each have to find what works for us. If we can't absorb/digest/utilize something ... it's not going to help us, no matter how wonderful it may be!!

~ Holly
2015 Hashimoto's, MTHFR
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis

"I strive to live in my heart, not in my head!"
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extremeelle
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Post by extremeelle »

Thank you for the golden tea recipe. I have access to fresh turmeric at our weekly farmers market and just this week started grating it into homemade chicken stock with cut up baby carrots - which really gives it some zip. I knew about the need for freshly ground pepper, but didn't know that I should be cooking it first in oil or even that Ghee was a dairy-free alternative. I'm new to the group - this is my first post. While I've had symptoms for 20 yrs (since mid-20s), it took me until last year to try to figure out why I've felt like I've been on a 20-yr colonoscopy cleanse. Diagnosis - collagenous colitis. I've been on an elimination diet for six weeks and am thankful to have some alternate recipes as seen posted in this forum. I'm now working towards finding out exactly what my food sensitivities are.
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tex
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Post by tex »

Hi,

Welcome to the group. Sorry to hear that you've been having to deal with this disease for so long. I've been dealing with it for about that long also, but thank goodness I've been in remission since 2004 as a result of diet changes. If you need help tracking down all your food sensitivities, there's always EnteroLab.

Again, welcome aboard, and please feel free to ask anything.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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extremeelle
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Post by extremeelle »

Thanks Tex, I'm glad to hear that you have been able to maintain for the past ~15 yrs on diet changes alone. That's the route I unsuccessfully pushed for at the time of diagnosis a year ago and got so derailed and confused that I lost the entire year. Recently finding Wayne Persky's books and post such as yours has energized me again! I do have some specific questions before my first GI appointment (with a new, hopefully more open-minded doctor) since my initial diagnosis. I'll post as a new thread in the coming days as my appointment is less than two weeks away and I want to be better prepared than I was a year ago.
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tex
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Post by tex »

Good plan and I hope the appointment goes well. More and more gastroenterologists are beginning to admit that the diet works, but there are still plenty of hard-headed holdouts who will insist that diet has nothing to do with MC. You'll find out pretty fast which kind you have and how much your doctor knows about treating MC when you start asking questions. If she or he is open-minded, great — consider yourself very fortunate. If not, smile, nod in agreement, and be very diplomatic in describing why you would rather not try any treatments that have not worked in the past. In other words, stay on the doctor's good side in case you want some tests or prescriptions in the future, but be your own doctor and make your own decisions for now.

For the record, I'm Wayne Persky, so I appreciate that you've found the books to be helpful.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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extremeelle
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Post by extremeelle »

Nice to meet you, your books have changed my life - so helpful is an understatement. Thank you for everything you have done/are doing to help others get through their own personal MC journeys. I was not sure how to tackle this medical problem before discovering your books and this forum.
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