I have frequented the forum in the past (Thank you for all your answers :) )
Im just going to lay out a few questions and am hoping to get whatever I can grab from the grains.
- Does anyone suffer from a Lower Left stomach pain (Duodenal area) that feels like a burning/fluish pain ?
- Does anyone suffer from fairly active nausea ? I take Domperidone for it but would prefer not to be dependant on it as I am currently.
- I have a terrible fear of throwing up; every time I get these sensations, which aren't so sensational, I get tremendously terrified and subsequently taken away from work and school and ones I love.
My question that is abridged to the above discussion is, for those of you that do suffer from the latter, what should I do ?
Joel
Feeling embarrassed but I am looking for knowledge.
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Hi Joel,
I had intense daily nausea prior to remission, mostly in the mornings. I’m talking nausea so intense I was afraid to move for fear I’d make it worse. My Dr had me try PPIs, which helped initially (I don’t recommend them). After several months I discontinued those and switched to Zantac. When I took one at night, I had much less nausea in the morning. But the thing that helped me conquer the nausea was acupuncture. After 6-8 sessions I was able to go almost one year without severe daily nausea. There are clinical studies showing acupuncture’s positive effects at stopping nausea.
I also tend to have reflux and very recently started taking digestive enzymes and my entire upper GI tract is much calmer.
I don’t have the pain you describe but I definitely understand having nausea. It’s been (to varying degrees) my constant companion and has historically been more problematic for me than any lower GI issues when it comes to interfering with my ability to meet social obligations.
Soy will give me horrible nausea- like dry heaving for hours- so make sure you are eliminating foods that you can’t tolerate. You may have to keep a food log.
As for the fear and anxiety that you are experiencing... looking back, anything that made me feel empowered greatly reduced my anxiety. I had to remind myself this is a temporary sensation and that I have strategies that will help me. I had meds that helped, I had an acupuncturist who would help anytime I needed, and I could manipulate my schedule to help myself. I could meditate and try to relax. If we had plans to go out, my family and friends were just as happy to bring take-out to our house so I could take it easy but still socialize. I made ‘escape plans’ wherever I was and gave myself permission to use them, for example, if I was at church I sat where it was easy to slip out quietly and quickly if needed. (I’ll add that I made escape plans but in reality I very rarely used them. My fear was bigger than reality). As I have healed and my nausea has reduced significantly and so has my worry and fear. I rarely have anxiety now.
I hope this helps.
Best wishes,
Carol
I had intense daily nausea prior to remission, mostly in the mornings. I’m talking nausea so intense I was afraid to move for fear I’d make it worse. My Dr had me try PPIs, which helped initially (I don’t recommend them). After several months I discontinued those and switched to Zantac. When I took one at night, I had much less nausea in the morning. But the thing that helped me conquer the nausea was acupuncture. After 6-8 sessions I was able to go almost one year without severe daily nausea. There are clinical studies showing acupuncture’s positive effects at stopping nausea.
I also tend to have reflux and very recently started taking digestive enzymes and my entire upper GI tract is much calmer.
I don’t have the pain you describe but I definitely understand having nausea. It’s been (to varying degrees) my constant companion and has historically been more problematic for me than any lower GI issues when it comes to interfering with my ability to meet social obligations.
Soy will give me horrible nausea- like dry heaving for hours- so make sure you are eliminating foods that you can’t tolerate. You may have to keep a food log.
As for the fear and anxiety that you are experiencing... looking back, anything that made me feel empowered greatly reduced my anxiety. I had to remind myself this is a temporary sensation and that I have strategies that will help me. I had meds that helped, I had an acupuncturist who would help anytime I needed, and I could manipulate my schedule to help myself. I could meditate and try to relax. If we had plans to go out, my family and friends were just as happy to bring take-out to our house so I could take it easy but still socialize. I made ‘escape plans’ wherever I was and gave myself permission to use them, for example, if I was at church I sat where it was easy to slip out quietly and quickly if needed. (I’ll add that I made escape plans but in reality I very rarely used them. My fear was bigger than reality). As I have healed and my nausea has reduced significantly and so has my worry and fear. I rarely have anxiety now.
I hope this helps.
Best wishes,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Joel,
Are you sure that your pain isn't originating in the sigmoid colon area (Lower left quadrant)? Diverticulitis involves the same type of inflammation as LC (lymphocytic infiltration). I point this out because when my own MC was active, I had frequent diverticulitis flares.
Also, as someone who has personally experienced a chronic magnesium deficiency a few years ago, I can unequivocally state that unreasonable (or severe) anxiety is a symptom of magnesium deficiency (which is a side effect of MC). It can get so bad as to seem like panic attacks. Been there, done that. None of my doctors had a clue (even though I described my symptoms to many, even in the ER). Doubling my magnesium supplementation resolved the anxiety problem in a day or so.
Tex
Are you sure that your pain isn't originating in the sigmoid colon area (Lower left quadrant)? Diverticulitis involves the same type of inflammation as LC (lymphocytic infiltration). I point this out because when my own MC was active, I had frequent diverticulitis flares.
Also, as someone who has personally experienced a chronic magnesium deficiency a few years ago, I can unequivocally state that unreasonable (or severe) anxiety is a symptom of magnesium deficiency (which is a side effect of MC). It can get so bad as to seem like panic attacks. Been there, done that. None of my doctors had a clue (even though I described my symptoms to many, even in the ER). Doubling my magnesium supplementation resolved the anxiety problem in a day or so.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Joel,
When my MC was at its worst I dealt with a lot of pain and nausea -- definitely no fun! The supplement Boswellia Serrata helped with the pain, although I know most folks find that fewer supplements are better early in healing.
Acupuncture has been instrumental in my healing -- so I will give another vote for that. In addition, a daily meditation practice has been a lifesaver to keep the anxiety at bay.
Best of luck to you!
Lisa
When my MC was at its worst I dealt with a lot of pain and nausea -- definitely no fun! The supplement Boswellia Serrata helped with the pain, although I know most folks find that fewer supplements are better early in healing.
Acupuncture has been instrumental in my healing -- so I will give another vote for that. In addition, a daily meditation practice has been a lifesaver to keep the anxiety at bay.
Best of luck to you!
Lisa