It's been a while since I've posted since I've pretty much stopped exploring what my core issues are and am just putting up with being "as good as it gets." In 2017 I tried everything under the sun for GI issues, most of which made me feel worse. My GI finally said we were at the end of the line for what he could offer so I'm back on Entocort solely to keep myself from having night-time D. I take 3mg every other day and have found that's where I'm at. WD is my norm with mud as a perk 4-5x day. I worry about the long-term effects of the on-going inflammation but have been struggling with MC since 2007 and am tired of poop being all I think about.
In 2017 I tried lialda (big mistake), colestipol, entocort with cholestyramine, was knocked on my behind by Lymes disease and took doxycycline to get it under control which then caused a nasty little yeast infection. As a bonus, I had completely normal stools during the two week period I was on antibiotics in which my MC resumed after I was done with it. I took the lactulose breath test for SIBO which came back negative but indicated elevated levels of methane but nothing more was done. I tried Lugois iodine drops, oil of oregano, Floragen 3 probiotic, Atrantil (natural supplement), Metronidozole (bad, bad, bad), Xifaxan, Diphenoxylate/atropine (had to stop taking my LDN and had my pain levels that are not MC related increase considerably), tried doxycycline again with no change this time around, robinul, robinul plus immodium, Restore 3 (another natural supplement), and viberzi. In 2018 I tried welchol, creon for pancreatic enzyme deficiency, and finally settled back to entocort. I finally got burned out and regretted missing out on life during that time because I felt horrible the entire time.
My GI told me it is possible I am not reaching remission due to the suppression of my TSH due to my history of thyroid cancer. Not sure if he is grasping at straws or if that could be it. I lost the battle of increasing my dose of Armour but since my PCP is the only doc I could find that would allow me to it, there isn't much I can do. Altough this December I had an excess of pills since they filled it monthly and I requested a 3m rx for insurance purposes so it was refilled again. I started taking 1/4 pill more since this past Decmeber without asking but I haven't noticed any improvments aside from my shoulder blade pain has lessened. That is huge for me but I was hoping for more. I am due for my annual in April so I will have to see what my numbers are and fess up if I want to continue at the slightly higher dose.
I fight the never-ending feeling of needing a nap but I am stuck between is it GI related or thyroid related? To make it worse, the never-ending snow in the month of February has created more muscle fatigue because I am in an endless loop of moving snow at home, at work, then at my folk's house when needed. I am so looking forward to spring. I ended up in the walk-in this weekend due to a UTI that came out of nowhere. I was determined to avoid more antibiotics and I was going to try oregano oil and apple cider vinegar as a natural remedy. After a night of intense discomfort I decided not to prolong the agony. I am now taking nitrofurantoin and am horrified of what this will do. I have two bottles of florajen probiotic that I will take but have never had any luck with probiotics but figure it can't hurt aside from making my pocket book a little lighter. :)
On a personal note, I am happy to say my son celebrated his first year of marriage this summer and is now working in the field he wanted since graduating from college. He works in child protective services as a social worker. What a complete joy to see your child find his place in the world. His PSC is status quo and his crohns and UC is under control so that is a relief. I looked at his pretty normal life style and all the pills he takes and thought I'd give it a try hoping I could have some normalcy- apparently that isn't for me, haha. This fall he had an accident that could have turned out much worse than it did. I got a call on on Sunday afternoon from his wife that he had a cooking accident and was in the ER. Long story-short.... I ended up driving him to UW Health in Madison, about an hour and a half away, for him to be treated for 3rd degree burns on his hand since the ER where he lives could not handle his case. The whole process was a mess, a botched suregery with the scheduling, a skin graft, and five trips later he is ok. It was an eye opener that he could have easily died that day and it wasn't due to his liver.
Checking In with a UTI
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Checking In with a UTI
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
Hi Deb,
Glad to hear that your son is OK after that accident, and that he's doing well in his career. He's faced a lot of challenges in his life that you've helped him to overcome.
The thyroid has a lot more control over our body systems than most people (including doctors) give it credit for. Remember when I had the stroke, almost two years ago? A few weeks before that, I had an arrhythmia (my heart was skipping beats). No one in the ER could figure out why. Everything seemed to be OK, except that my heart was skipping beats.
Four or five months after I had the stroke, I had a repeat (that is, my heart was skipping beats for no obvious reason — at least no one could figure out why).
A month or two later I figured out why: Every time I had an arrhythmia, my EGFR was way down (around 38). A little Googling produced a medical research article showing that untreated or undertreated hypothyroidism can cause reduced kidney function. A little more Googling located a medical research article that showed how reduced kidney function is associated with arrhythmias. And it's common knowledge that thyroid output (or thyroid supplementation level) is associated with heart rate, metabolism, and who-knows-what-all.
Anyway, my point is, prior to my arrythmias, my doctor had cut my thyroid treatment (armour) in half. I showed all my research to my doctor, and asked if we could restore my armour to the previous dose (that I had been taking for about ten years, before he cut it in half). He agreed, and I've had no more arrythmias since then (and over 7 months have passed since increasing the dose). In addition, I've lost all that weight (15 or 20 pounds) that I gained after he cut the dose, even though I'm eating more now. In general, I'm feeling much better now. My TSH was within range before we restored the dose. We haven't even bothered to check it since doubling the dose.
All this may be irrelevant to your situation, or it might be the missing key.
Since your GI doc seems to be sympathetic, and more open-minded (possibly even more knowledgeable) than your endo, I'm wondering if he might be willing to intervene and negotiate on your behalf, as one specialist to another.
Tex
Glad to hear that your son is OK after that accident, and that he's doing well in his career. He's faced a lot of challenges in his life that you've helped him to overcome.
I have no particular medical references in mind when I say this, but I have a hunch that he's right. Here's why:Deb wrote:My GI told me it is possible I am not reaching remission due to the suppression of my TSH due to my history of thyroid cancer.
The thyroid has a lot more control over our body systems than most people (including doctors) give it credit for. Remember when I had the stroke, almost two years ago? A few weeks before that, I had an arrhythmia (my heart was skipping beats). No one in the ER could figure out why. Everything seemed to be OK, except that my heart was skipping beats.
Four or five months after I had the stroke, I had a repeat (that is, my heart was skipping beats for no obvious reason — at least no one could figure out why).A month or two later I figured out why: Every time I had an arrhythmia, my EGFR was way down (around 38). A little Googling produced a medical research article showing that untreated or undertreated hypothyroidism can cause reduced kidney function. A little more Googling located a medical research article that showed how reduced kidney function is associated with arrhythmias. And it's common knowledge that thyroid output (or thyroid supplementation level) is associated with heart rate, metabolism, and who-knows-what-all.
Anyway, my point is, prior to my arrythmias, my doctor had cut my thyroid treatment (armour) in half. I showed all my research to my doctor, and asked if we could restore my armour to the previous dose (that I had been taking for about ten years, before he cut it in half). He agreed, and I've had no more arrythmias since then (and over 7 months have passed since increasing the dose). In addition, I've lost all that weight (15 or 20 pounds) that I gained after he cut the dose, even though I'm eating more now. In general, I'm feeling much better now. My TSH was within range before we restored the dose. We haven't even bothered to check it since doubling the dose.
All this may be irrelevant to your situation, or it might be the missing key.
Since your GI doc seems to be sympathetic, and more open-minded (possibly even more knowledgeable) than your endo, I'm wondering if he might be willing to intervene and negotiate on your behalf, as one specialist to another.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi DebE,
I’m sorry to hear that things have been up and down for you. Re: UTIs-several here have had success w D-Mannose supplements. I’ve taken them with good results and no adverse effects. A friend of mine said they were helpful for her chronic UTIs (she should be the test case).
DebE and Tex- I’m very interested in following your conversation regarding hypothyroidism and decreased kidney functions. I have occasional arrhythmias, typically very brief, but it never hurts to be aware of how it’s all connected.
Take care-
Carol
PS- DebE, as a former clinical and school psych I’ve worked with my share of social workers from child protective services. They are a special group of people and play a valuable role in society that is difficult and rarely recognized. Kudos to him and to you for raising such a caring son.
I’m sorry to hear that things have been up and down for you. Re: UTIs-several here have had success w D-Mannose supplements. I’ve taken them with good results and no adverse effects. A friend of mine said they were helpful for her chronic UTIs (she should be the test case).
DebE and Tex- I’m very interested in following your conversation regarding hypothyroidism and decreased kidney functions. I have occasional arrhythmias, typically very brief, but it never hurts to be aware of how it’s all connected.
Take care-
Carol
PS- DebE, as a former clinical and school psych I’ve worked with my share of social workers from child protective services. They are a special group of people and play a valuable role in society that is difficult and rarely recognized. Kudos to him and to you for raising such a caring son.
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Thanks for your experience Tex. I’ve always taken inspiration from your self advocacy. I haven’t given up hope but have been coasting since I seem to be in a no-win situation. I’ll have to talk with my GI again and see if there are any options. In the past it’s just been bouncing between the two specialties without any real team work.
I don’t have an endo currently.... tried three of them and landed on a PCP out of town since he was literally the only doc in my area that would entertain NDT. I can’t go off on my own for dosingsince I still have annual follow ups for the thyroid cancer. I can’t imagine any doctor that would be willing to treat me if I’m not getting my meds from them.
My PCP has made it clear my case makes him uncomfortable since he is not an endo but understands my frustration to a point. I’ve often debated what’s more valuable- QOL or cancer surpression. I have a mystery node in my neck that we’ve been monitoring for years (cancer dx in 2013, TT to remove it) so the idea of recurrence is always in the back of my mind. It’s quite troubling even though I truly had the best case scenario.
I’m not sure how my PCP would respond to a request to ignore TSH surpression for life in order to see if my D would improve with higher numbers.
The only thing that boggles my mind is the normal stools when I was on antibiotics for Lymes disease. The armour dosage was the same. The only thing I could come up with was my immune system was distracted by the Lymes and forgot about my MC. It was one crazy fluke. I don’t recommend seeking out a deer tick to see if it will help with MC, haha. It was an awful experience.
Carol, thank for the suggestion. I’ll keep it in mind - I generally don’t have issues with UTIs so it’s a bit surprising. It also brought on a second period of the month which is a joy. I’ve never once had an irregular period so it was a bit alarming.
It does take a special breed to work in CPS and my son is one of them. He overcame a few obstacles to get to this position and it makes me very proud. He is very active in the schools. After he graduated he took a temporary position as a parol officer and has experience with doing his internship in the drug court. I though he would go into that branch but ended up finding the job of his dreams. I worry about him and what he deals with on a daily basis since he is on the initial assessment team but he frequently reminds me that someone has to watch out for the kids and he knows what he signed up for. I never fail to smile when I think of him. It’s a joy to know your child turned out ok.
I don’t have an endo currently.... tried three of them and landed on a PCP out of town since he was literally the only doc in my area that would entertain NDT. I can’t go off on my own for dosingsince I still have annual follow ups for the thyroid cancer. I can’t imagine any doctor that would be willing to treat me if I’m not getting my meds from them.
My PCP has made it clear my case makes him uncomfortable since he is not an endo but understands my frustration to a point. I’ve often debated what’s more valuable- QOL or cancer surpression. I have a mystery node in my neck that we’ve been monitoring for years (cancer dx in 2013, TT to remove it) so the idea of recurrence is always in the back of my mind. It’s quite troubling even though I truly had the best case scenario.
I’m not sure how my PCP would respond to a request to ignore TSH surpression for life in order to see if my D would improve with higher numbers.
The only thing that boggles my mind is the normal stools when I was on antibiotics for Lymes disease. The armour dosage was the same. The only thing I could come up with was my immune system was distracted by the Lymes and forgot about my MC. It was one crazy fluke. I don’t recommend seeking out a deer tick to see if it will help with MC, haha. It was an awful experience.
Carol, thank for the suggestion. I’ll keep it in mind - I generally don’t have issues with UTIs so it’s a bit surprising. It also brought on a second period of the month which is a joy. I’ve never once had an irregular period so it was a bit alarming.
It does take a special breed to work in CPS and my son is one of them. He overcame a few obstacles to get to this position and it makes me very proud. He is very active in the schools. After he graduated he took a temporary position as a parol officer and has experience with doing his internship in the drug court. I though he would go into that branch but ended up finding the job of his dreams. I worry about him and what he deals with on a daily basis since he is on the initial assessment team but he frequently reminds me that someone has to watch out for the kids and he knows what he signed up for. I never fail to smile when I think of him. It’s a joy to know your child turned out ok.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
Hi DebE,
I don’t know your age but I have to tell you from personal experience that if you are in the pre-menopausal stage all kinds of unusual things will show up that you haven’t dealt with before. Extra periods are one of them. It’s like you’re dealing with a completely unfamiliar system. Pre-menopause is much worse than menopause itself. It will mess up your regulatory system too- sleep, body temp...almost any system. Just some thing to be aware of.
Your son’s attitude is exactly what is needed. One of the elementary schools I was at developed a program for autistic kids out of necessity, when our enrollment included 5 kids who were very young and clearly on the spectrum. The special ed teacher was amazing. In a brainstorming meeting one day someone said ‘why us?’ And it struck me- why not us? Who better to provide for and serve our autistic kids? We were accepting, compassionate, talented, and competent. After I pointed that out everyone smiled and agreed. We were the best place and the best people for this challenging job. That is the attitude of successful people in tough helping professions.
Those are my random thoughts for this morning.
I hope you have a good week.
Carol
I don’t know your age but I have to tell you from personal experience that if you are in the pre-menopausal stage all kinds of unusual things will show up that you haven’t dealt with before. Extra periods are one of them. It’s like you’re dealing with a completely unfamiliar system. Pre-menopause is much worse than menopause itself. It will mess up your regulatory system too- sleep, body temp...almost any system. Just some thing to be aware of.
Your son’s attitude is exactly what is needed. One of the elementary schools I was at developed a program for autistic kids out of necessity, when our enrollment included 5 kids who were very young and clearly on the spectrum. The special ed teacher was amazing. In a brainstorming meeting one day someone said ‘why us?’ And it struck me- why not us? Who better to provide for and serve our autistic kids? We were accepting, compassionate, talented, and competent. After I pointed that out everyone smiled and agreed. We were the best place and the best people for this challenging job. That is the attitude of successful people in tough helping professions.
Those are my random thoughts for this morning.
I hope you have a good week. Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Note that thyroid issues can also be the cause of an irregular period.
Is your current TSH above 2.5 mIU/L? Many thyroid experts would consider that to be hpothyroid (or undertreated).
Tex
Is your current TSH above 2.5 mIU/L? Many thyroid experts would consider that to be hpothyroid (or undertreated).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I’ll be 48 in August. I’ve never had an irregular period ever. Missed it when I was pregnant, obviously, but have always been like clock work so this was a bit surprising. I know menopause is on the horizon but it’s hard to tell what’s what. Ever since the year prior to my thyroid cancer my thermostat is unpredictable. It’s gotten better considering I used to wear thermal long sleeve shirts in July. It would blow my mind to be cold in 80 degree weather. My temp is all over the place pretty much on a daily basis (have told my doc) and I get very cold at times but sweat all day long. I’ve read it’s common for those with no thyroid to sweat more than the average person. It’s very annoying but there’s not much I can do. Deodorant/antiperspirants are I effective and I’m often damp under the pits. I don’t use deodorant often anyway since the ingredients scare me. Baking soda is generally my go-to so I’m not offensive in the warmer seasons. I’m not looking forward to it since weird is already my normal, haha. I’m assuming the infection threw me off some but it will be interesting to see what happens.
Thanks for your thoughts- I’ve always been fascinated at how people find their nitche in life. Thank God we are all different in what we find fulfilling.
Tex- it’s crazy how many bodily functions are influenced by that little gland.
My last TSH was 0.015 uIU/mL and the time before that was 0.01. I’m not sure how to do the conversion between the units of measure. That’s where I’m at without fail and it seems to make the doctors happy. Suppressed is the goal. My employer offers a wellness program in which they do labs annually. The nurse calls me every year because my TSH raises a red flag for normal people. They are always very concerned and want me to make an immediate appointment for my severely low TSH. I can only laugh and say that’s the plan.
My FT3 was 3.3pg/mL
FT4 was 1.2 ng/dL
Reverse T3 was 16.9 ng/dL
Thanks for your thoughts- I’ve always been fascinated at how people find their nitche in life. Thank God we are all different in what we find fulfilling.
Tex- it’s crazy how many bodily functions are influenced by that little gland.
My last TSH was 0.015 uIU/mL and the time before that was 0.01. I’m not sure how to do the conversion between the units of measure. That’s where I’m at without fail and it seems to make the doctors happy. Suppressed is the goal. My employer offers a wellness program in which they do labs annually. The nurse calls me every year because my TSH raises a red flag for normal people. They are always very concerned and want me to make an immediate appointment for my severely low TSH. I can only laugh and say that’s the plan.
My FT3 was 3.3pg/mL
FT4 was 1.2 ng/dL
Reverse T3 was 16.9 ng/dL
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
Hi DebE,
I am not helpful at all with the thyroid discussion, but I can chime in with the UTI and yeast stuff......I had a terrible UTI over a year ago (can't remember exactly when) but I do know after I took the antibiotic recommended here for our MC for that particular issue, I also maintained with some D'Mannose. I did my research on Silver Biotics (rxsilver.com) and Saccharomyces Boulardii (get it at Vitacost) and have come up with what has been working for me a great combination of safe bacteria/yeast/mold/fungus control. I have to remind myself that Yeast (and cancer if anyone is curious) loves sugar so I try to be careful how much I allow in my diet on a daily basis....I notice when I start craving sugar it is probably that candida yeast rearing its ugly head so I better take notice.
I had never had a UTI ever in my life and it was the most painful experience besides childbirth I kid you not!
I hope you figure all your thyroid thoughts out....such a tangled web it weaves!
Kudos to your son!
I hope he heals well too.
I am not helpful at all with the thyroid discussion, but I can chime in with the UTI and yeast stuff......I had a terrible UTI over a year ago (can't remember exactly when) but I do know after I took the antibiotic recommended here for our MC for that particular issue, I also maintained with some D'Mannose. I did my research on Silver Biotics (rxsilver.com) and Saccharomyces Boulardii (get it at Vitacost) and have come up with what has been working for me a great combination of safe bacteria/yeast/mold/fungus control. I have to remind myself that Yeast (and cancer if anyone is curious) loves sugar so I try to be careful how much I allow in my diet on a daily basis....I notice when I start craving sugar it is probably that candida yeast rearing its ugly head so I better take notice.
I had never had a UTI ever in my life and it was the most painful experience besides childbirth I kid you not!
I hope you figure all your thyroid thoughts out....such a tangled web it weaves!
Kudos to your son!
I hope he heals well too.To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Deb,
0.015 uIU/mL = 0.000015 mIU/mL = 0.015 mIU/L
Your TSH is only about 0.6 % of the 2.5 mIU/L threshold I mentioned, so you're correct — your TSH is very suppressed. That's what's causing your excessive perspiration, but it may be par for the course, for patients without a thyroid.
When I ran out of magnesium about 4 years ago, and my TSH got down to .07, I would wake up sweating like horse, I would have shallow rapid breathing, and my heart rate would be in the 110–115 category. That's when my PCP cut my armour dose in half, which helped for a while.
Incidentally, it was tempting to say that I was sweating like a pig, but pigs can't sweat, except on their snouts (noses), believe it or not. That's why they easily overheat and die on hot days if they can't get to water to cool off in time. (Just a bit of trivia that's helpful to know in case you ever decide to raise some hogs.
)
Tex
0.015 uIU/mL = 0.000015 mIU/mL = 0.015 mIU/L
Your TSH is only about 0.6 % of the 2.5 mIU/L threshold I mentioned, so you're correct — your TSH is very suppressed. That's what's causing your excessive perspiration, but it may be par for the course, for patients without a thyroid.
When I ran out of magnesium about 4 years ago, and my TSH got down to .07, I would wake up sweating like horse, I would have shallow rapid breathing, and my heart rate would be in the 110–115 category. That's when my PCP cut my armour dose in half, which helped for a while.
Incidentally, it was tempting to say that I was sweating like a pig, but pigs can't sweat, except on their snouts (noses), believe it or not. That's why they easily overheat and die on hot days if they can't get to water to cool off in time. (Just a bit of trivia that's helpful to know in case you ever decide to raise some hogs.
)Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks for your suggestions Erica- it's always something to deal with. The antibiotics did their job and I'll keep taking the probiotics for a while. I've tried so many and have never seen any improvements but I figure it can't hurt. I did a test a while back that gave data about my individual gut biome and it showed I had almost no beneficial gut bacteria and was lacking many more. It was a fascinating report yet not useful in the fact of I have no clue on how to restore it. All the suggestions on-line listing the foods that are good to eat don't do me much good since fermented foods do not agree with me or I simply cannot eat them due to my MC.
Tex, I had to laugh about the pigs..... I didn't realize that they can only sweat through their snouts. I do love trivia. It certainly seems I am in a catch 22 situation. I saw my surgeon a few years ago for a second opinion when we first found the mystery enlarged lymph node that we've been monitoring and he said their criteria for treatment has now changed and had I been dx now with cancer they would not do a total thyroidectomy. It would now be a wait-and-see protocol. I do respect him and understand the concept of "overdiagnosis" but do not agree with them. I have no medical background whatsoever but I could not imagine waiting. Waiting for it grow..... waiting for it to spread..... doing nothing but letting it sit in the back of my mind. Of course, mine were microcarcinomas, so that is why they would wait but why would I want to wait for it to grow? or does the body eventually get rid of it? I don't know but I do my body is so screwed up, I doubt it would do anything beneficial, haha. I still believe had I gotten my MC under control sooner I never would have developed hashimotos and the problems I have now. It's water under the bridge but still a sad reality that bounces around in my head on bad days.
I stopped taking my magnesium since it was listed as possibly interacting with the nitrofurantoin and I noticed the difference over the past week. Thanks again for all the good info here because I never would have thought to take magnesium or vit D.
Tex, I had to laugh about the pigs..... I didn't realize that they can only sweat through their snouts. I do love trivia. It certainly seems I am in a catch 22 situation. I saw my surgeon a few years ago for a second opinion when we first found the mystery enlarged lymph node that we've been monitoring and he said their criteria for treatment has now changed and had I been dx now with cancer they would not do a total thyroidectomy. It would now be a wait-and-see protocol. I do respect him and understand the concept of "overdiagnosis" but do not agree with them. I have no medical background whatsoever but I could not imagine waiting. Waiting for it grow..... waiting for it to spread..... doing nothing but letting it sit in the back of my mind. Of course, mine were microcarcinomas, so that is why they would wait but why would I want to wait for it to grow? or does the body eventually get rid of it? I don't know but I do my body is so screwed up, I doubt it would do anything beneficial, haha. I still believe had I gotten my MC under control sooner I never would have developed hashimotos and the problems I have now. It's water under the bridge but still a sad reality that bounces around in my head on bad days.
I stopped taking my magnesium since it was listed as possibly interacting with the nitrofurantoin and I noticed the difference over the past week. Thanks again for all the good info here because I never would have thought to take magnesium or vit D.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
Hi Deb,
I'm sorry to read that you're struggling. Like you, I tried many medications for my MC and was unable to get it under control even with major diet modifications. Eventually, I decided to try Humira and it's been a successful treatment option for me. I realize it's a radical approach and it's a decision I weighed carefully for some time. If you and your doctor ever decide to explore that option, I'd be happy to chat with you about it.
Wishing you well!
Lisa
I'm sorry to read that you're struggling. Like you, I tried many medications for my MC and was unable to get it under control even with major diet modifications. Eventually, I decided to try Humira and it's been a successful treatment option for me. I realize it's a radical approach and it's a decision I weighed carefully for some time. If you and your doctor ever decide to explore that option, I'd be happy to chat with you about it.
Wishing you well!
Lisa