Hi Tex,
As I was eating another plain rice cake it got me thinking. I had previously had a EnteroLab Expanded Antigenic Food Sensitivity Stool Panel. Rice and cashews were a 3+, tuna and walnut were 1+, mean value 9 units. I posted those results previously. I knew there was a reason I changed from Rice Chex to Corn Chex. That was it. I've been eating cream of rice, rice cakes and bone broth with rice, carrots and chicken. Could that have contributed to my problem last week? Also, I do remember an encounter last week with crumbs from my husband's wheat bread and his cereal, I cleaned it up. I read him the riot act, and told him has to clean it up his crumbs himself. Sometimes, he just doesn't get it! Anyway, Friday I finally started feeling better. I don't know if I mentioned it but I felt a numbness in my mouth and face, along with some TMJ trouble. That has gone away too. I started the cyclobenzaprine again for my fibromyalgia, my upper back was really bothering me, that's better too. All the times that I have taken budesonide for a flare, I don't remember having this much trouble a month into taking it, except for once when the flare was so much worse and needed to take Colestipol along with it. I'm thinking I was glutened in my cross contaminated kitchen (I haven't eaten out in a month or so). I never expected to feel the effects of being glutened while taking budesonide, I guess I thought the budesonide would mask those side effects.
Thanks,
Susanne
I tried a different path and it didn't work out
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With an overall score of 9, the other test results shouldn't matter. But as Dr Fine says, there are exceptions, and some of us may react anyway. EnteroLab only tests for the single most common problem protein in each food (in order to keep the cost of the tests down). Some of us may be sensitive to other proteins in some foods. This may be part of the reason why some of us have such a tough time reaching remission.
Budesonide does mask symptoms for some people, but not for all of us. Some of us will react despite taking budesonide.
Tex
Budesonide does mask symptoms for some people, but not for all of us. Some of us will react despite taking budesonide.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
A need to vent......and a vicious circle
Hi all,
I'm on month 2 of budesonide, right now taking 6 mg a day, soon to taper to 3 mg a day. So far so good. Bone broth with chicken and carrots has been my lunch of choice but it will be soon too hot here for a hot lunch, I'll have to think of something else.
I need to vent a little. I saw my new rheumatologist recently, I didn't like him very much. He asked about my exercising and as I was trying to explain that being in a bad colitis flare recently I didn't do much exercising, he told me that was no excuse. He obviously never had to deal with a flare, worrying about needing a toilet asap and the total lack of energy from a full fledge flare. He has ordered a Reclast infusion for me because my bone density scan results were bad. This will be my 4th Reclast infusion over the years. It is set up for the end of April. I started thinking that bisphosphonates could have been one of the triggers for my microscopic colitis (I took Fosamax for 8 years) along with overdoing it with Advil for many years and being on Prevpac too many times for what was diagnosed as a h pylori infection. So here I'm taking budesonide for my colitis flare and the Reclast could maybe contribute to future flares, isn't one offsetting the other? To top it off, my new podiatrist has diagnosed my 3 & 4th toes on my left foot (they are numb) as a neuroma. He told me to take Advil, I told him no and explained why. Then he wanted to prescribe steroids and I reminded him that I was already taking budesonide for my colitis, so that didn't happen. He was going to give me a steroid injection then decided not to. He had me purchase new sneakers (the correct width- Extra wide because of bunions) and he fitted them with orthotics, which are uncomfortable to wear but my toes aren't numb when I where them. When I take my sneakers off, the toes immediately go numb, so I don't think his fix is working, it's been about 3 weeks now. And I think the budesonide is making me very moody lately, I can't wait to be finished with it. Thanks for listening everyone!!
Thanks,
Susanne
I'm on month 2 of budesonide, right now taking 6 mg a day, soon to taper to 3 mg a day. So far so good. Bone broth with chicken and carrots has been my lunch of choice but it will be soon too hot here for a hot lunch, I'll have to think of something else.
I need to vent a little. I saw my new rheumatologist recently, I didn't like him very much. He asked about my exercising and as I was trying to explain that being in a bad colitis flare recently I didn't do much exercising, he told me that was no excuse. He obviously never had to deal with a flare, worrying about needing a toilet asap and the total lack of energy from a full fledge flare. He has ordered a Reclast infusion for me because my bone density scan results were bad. This will be my 4th Reclast infusion over the years. It is set up for the end of April. I started thinking that bisphosphonates could have been one of the triggers for my microscopic colitis (I took Fosamax for 8 years) along with overdoing it with Advil for many years and being on Prevpac too many times for what was diagnosed as a h pylori infection. So here I'm taking budesonide for my colitis flare and the Reclast could maybe contribute to future flares, isn't one offsetting the other? To top it off, my new podiatrist has diagnosed my 3 & 4th toes on my left foot (they are numb) as a neuroma. He told me to take Advil, I told him no and explained why. Then he wanted to prescribe steroids and I reminded him that I was already taking budesonide for my colitis, so that didn't happen. He was going to give me a steroid injection then decided not to. He had me purchase new sneakers (the correct width- Extra wide because of bunions) and he fitted them with orthotics, which are uncomfortable to wear but my toes aren't numb when I where them. When I take my sneakers off, the toes immediately go numb, so I don't think his fix is working, it's been about 3 weeks now. And I think the budesonide is making me very moody lately, I can't wait to be finished with it. Thanks for listening everyone!!
Thanks,
Susanne
Hi Susanne,
I have to wonder about your rheumatologist. I believe the label on bisphosphonates (at least the one that doctors see) specify that bisphosphonates are not to be used more than 5 years. According to published medical research, longer use than that greatly increases the risk of brittle bones and specifically, broken hips.
Tex
I have to wonder about your rheumatologist. I believe the label on bisphosphonates (at least the one that doctors see) specify that bisphosphonates are not to be used more than 5 years. According to published medical research, longer use than that greatly increases the risk of brittle bones and specifically, broken hips.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Too many Drs.
Hi Tex,
I wonder about all the Drs. that I've seen since first starting Fosamax, there have been too many due to retiring, insurance changing and moving from state to state. My ob/gyn in 2003 had me check with the GI specialist that I was seeing for "IBS" to make sure it was okay for me to take Fosamax. I looked through the few records that I have, I took Fosamax from 2003 to 2010. I was seen by an endocrinologist in 2010 who told me that I needed to try a different medication and ordered the Reclast. I didn't realize at that time that Fosamax and Reclast were the same type of medication. I had 2 more Reclast infusions in 2013 and 2016. I'm leaning towards cancelling the Reclast infusion scheduled for the end of April and wait until I'm on Medicare in November when I'll have a larger selection of rheumatologists to choose from. I didn't like that last one. Although he did mention that if I didn't get good results with this upcoming Reclast infusion I would be switched to Prolia. I don't know anything about that one.
BTW-I'll be in Houston for a weekend in April for a family wedding, first time in Texas. Is it fairly warm there that time of year? I'll be traveling with my budesonide (will be down to 3 mg a day) and Imodium, just in case I goof! Keeping my fingers crossed that I won't goof.
Thanks,
Susanne
I wonder about all the Drs. that I've seen since first starting Fosamax, there have been too many due to retiring, insurance changing and moving from state to state. My ob/gyn in 2003 had me check with the GI specialist that I was seeing for "IBS" to make sure it was okay for me to take Fosamax. I looked through the few records that I have, I took Fosamax from 2003 to 2010. I was seen by an endocrinologist in 2010 who told me that I needed to try a different medication and ordered the Reclast. I didn't realize at that time that Fosamax and Reclast were the same type of medication. I had 2 more Reclast infusions in 2013 and 2016. I'm leaning towards cancelling the Reclast infusion scheduled for the end of April and wait until I'm on Medicare in November when I'll have a larger selection of rheumatologists to choose from. I didn't like that last one. Although he did mention that if I didn't get good results with this upcoming Reclast infusion I would be switched to Prolia. I don't know anything about that one.
BTW-I'll be in Houston for a weekend in April for a family wedding, first time in Texas. Is it fairly warm there that time of year? I'll be traveling with my budesonide (will be down to 3 mg a day) and Imodium, just in case I goof! Keeping my fingers crossed that I won't goof.
Thanks,
Susanne
Hi Susanne,
Our daytime highs (here in Central Texas) are in the upper 60's and lower 70's now, with 40's or 50's for nighttime lows. Houston is a little warmer. You should see daytime highs of mid-70's to lower 80's there by April. Bear in mind that the humidity stays fairly high in Houston, so it may feel warmer than it actually is.
Tex
Our daytime highs (here in Central Texas) are in the upper 60's and lower 70's now, with 40's or 50's for nighttime lows. Houston is a little warmer. You should see daytime highs of mid-70's to lower 80's there by April. Bear in mind that the humidity stays fairly high in Houston, so it may feel warmer than it actually is.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.