Anyone Else Get Acephalgic Migraines, aka Ocular Migraines?

Polls relevant to Microscopic Colitis, and related issues, can be posted here, to allow for the collection of data that might help to shed some light on this disease, and it's treatment options.

Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Have you ever experienced one or more ocular migraines or auras?

No, I've never experienced any.
14
38%
Yes, but I experienced it/them before I developed MC.
11
30%
Yes, I started having them early on after my MC symptoms began.
4
11%
Yes, I started having them a number of years after my MC symptoms began.
8
22%
 
Total votes: 37

User avatar
tex
Site Admin
Site Admin
Posts: 35066
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Anyone Else Get Acephalgic Migraines, aka Ocular Migraines?

Post by tex »

About 3-1/2 hours ago I experienced an acephalgic migraine. As is usually the case, it lasted about half an hour, with no other noticeable symptoms other than compromised vision and photosensitivity. It mainly consisted of a relatively narrow band of colored scintillating triangles linked in the form a parabola or squashed sem-circle. As usual, the band slowly progressed outwardly until it faded away.

The last time I had one was over 9 years ago. about 4–6 weeks before I had a TIA. My thoughts at the time were that they were caused by my eating some chips that contained monosodium glutamate (MSG).

Obviously I have been avoiding MSG ever since. But because this is a neurological event, I can't help but wonder if it might be associated with MC as a side effect of vitamin B-12 deficiency or magnesium deficiency, or as a result of prior damage to the nervous system by years of untreated gluten sensitivity.

I know that others here (at least in the past) have also experienced these visual auras, so I've worked up a little survey to see if we can shed some light on the situation. Please select the single best choice that fits your situation.

Many thanks for your insight.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
Erica P-G
Rockhopper Penguin
Rockhopper Penguin
Posts: 1815
Joined: Sun Mar 08, 2015 2:06 pm
Location: WA State

Post by Erica P-G »

These started in my at age 16 (I'm 51 right now) got really noticeable in my late 20's and into my 30's, and after those years perimenopause must have been beginning and they were less predicable but happened on occasion.

I exhibit less of them since my magnesium has been addressed and I can't remember the last time I had one now....maybe middle of last year, but they are not frequent anymore and I have researched that they are precursors to a migraine forming, which they seldom ever did for me, but I would get a mild headache or strain behind the eyes.

Because I don't get them like I did, I also do not get the migraines like I once did either, I can catch them by noticing that uneasy ambiance and applying mag lotion on my face and neck as needed and if done timely I can avoid the migraine getting to fruition.
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Kari
Rockhopper Penguin
Rockhopper Penguin
Posts: 1346
Joined: Sun Sep 05, 2010 4:26 pm
Location: Colorado

Post by Kari »

I just noticed this poll. My first incident of aura migraine was about 4 years after the MC diagnosis in 2001. A couple of years ago I had my first episode of Aphasia, which followed the aura migraine.

I had a very mild episode of both a few weeks ago and took the prescription med Butalbital, which minimized the duration and severity of the episode. I believe it came on when I was bending over petting my neighbor's dog, because it started as I stood back up again. I do a lot of Yoga, but have adjusted my practice so as not to keep my head below my waist.

The aura migraines used to last around 30 minutes, and did not really worry me much until they were followed by Aphasia. Now I take Plavix, which seems to help with both. I have not had a serious episode since I was in the hospital for the cerebral angiogram last May.
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
User avatar
carolm
Rockhopper Penguin
Rockhopper Penguin
Posts: 1346
Joined: Fri Sep 02, 2011 7:27 pm
Location: Kansas City

Post by carolm »

I have also had ocular migraines just like you describe above Tex, where I notice that there’s a flashing jagged line in the lower corner of my vision, then it will spread outward, interfere with my vision for 10-15 minutes then dissolve. I had decided that mine coincided with sinus pressure- at least they seemed to. But I didn’t consider it being part of magnesium deficiency. Now that my magnesium is where my functional med doc wants it, I’ll have to pay more attention if I get one.

C.
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
DonPapotti
Little Blue Penguin
Little Blue Penguin
Posts: 30
Joined: Mon May 07, 2018 11:36 am
Location: Argentina

Post by DonPapotti »

Hi, I used to have pain in my head and now also
And I felt pain in my eyes, behind them, and I had fasciculations in my body, eyelids, etc.
I got electromyography and brain resonance about 8 years ago and they did not find it.
Improve those symptoms with diet and sleep and avoiding artificial light at night.
I hope it helps you
TXBrenda
Gentoo Penguin
Gentoo Penguin
Posts: 470
Joined: Mon Jul 04, 2005 1:03 pm
Location: Amarillo, TX

Post by TXBrenda »

I experienced a migraine with aura last week (my first). I was at work - I check groceries part time. We weren't busy. Looking at my register screen I noticed a rainbow-like elliptical shape with jagged edges, like teeth of a gear. Since we weren't busy, I was able to call my optometrist office and get in to see him that afternoon.

I had no idea what was going on. The migraine was rather mild and short lived because I was able to take an Advil and drink a caffeinated drink quickly after the appointment.

I see my primary this next week for a diabetes check. We'll see what tests he wants to order, lol. I take the Doctor's Best magnesium glycinate twice a day. I think I will rub some magnesium gel on my legs nightly just in case. I don't want to start having these now.
Brenda
User avatar
tex
Site Admin
Site Admin
Posts: 35066
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Brenda,

Does anything you're eating contain monosodium glutamate (MSG)? At one time years ago I was regularly eating flavored corn chips. I had my first episode, and it was a classic visual aura. Over the next few weeks I had several of them. I noticed the chips contained MSG, so I stopped eating them. I can't say that doing that completely stopped the acephalgic migraines, but that was many years ago, and I haven't had but a couple of mild visual auras since I started avoiding MSG. I suspect that more than a few of the food additives commonly used are mild poisons to our bodies.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Deb
Rockhopper Penguin
Rockhopper Penguin
Posts: 1657
Joined: Sat Nov 20, 2010 7:01 pm
Location: Previously MN now GA

Post by Deb »

Interesting info. This is why I still follow this site nine years later (and have been pretty much in remission for at least 8 1/2 of them.) Thanks again, Tex, for all you do!
User avatar
tex
Site Admin
Site Admin
Posts: 35066
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Deb,

You're very welcome. Thanks for the kind words. We've learned a lot from you, too, over the years. You've written a heck of a lot of posts.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
TXBrenda
Gentoo Penguin
Gentoo Penguin
Posts: 470
Joined: Mon Jul 04, 2005 1:03 pm
Location: Amarillo, TX

Post by TXBrenda »

Thanks Tex. I bought a bag of lightly salted Fritos one day last week. I had not ate them in several months. That was my first suspect. The ingredients listed on the bag are corn, corn oil, salt.

I will double check labels for MSG.
Brenda
User avatar
tex
Site Admin
Site Admin
Posts: 35066
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Fritos should be safe. I think it was Doritos Salsa Verde chips that zapped me.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Perky22
Posts: 6
Joined: Fri Sep 29, 2017 10:12 am
Location: Texas

Aura with migraine

Post by Perky22 »

Yes, I have this type of migraine but only for the last 6 months or so. It’s kind of like a starburst in front of my eye(s) and lasts about 30 minutes.
User avatar
tex
Site Admin
Site Admin
Posts: 35066
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

I'm having an episode (an aura) right now. It's been at least several months, since I've had one, maybe longer. It's probably just a coincidence, but I stearted taking magnesium threonate a week ago, only one per day for a couple of days, and then I went to two per day (one at breakfast and one in the afternoon) for five days. I took two this morning, and I intended to take another one
later this afternoon, which would be the label dose. This is in addition to my regular magnesium glycinate. Three magnesium threonate capsules contain 147 mg of elemental magnesium, so I reduced my magnesium glycinate dose by one tablet (100 mg). I took one at breakfast, and I'll take one at noon. That might be too much (for me) at breakfast (~ 200 mg total mg).

Here's my logic: Since migraines are claimed to be caused by a sudden return to normal blood pressure after a slow buildup of pressure in the brain, I assumed that magnesium threonate might prevent the buildup of pressure from happening (by relaxing the blood vessels in the brain), which would prevent the eventual collapse of pressure. Either it's too soon (or the dose was too low) for the magnesium threonate to have an effect, or else the visual auras are due to some other cause (not the pressure collapse). At least that's the way it looks to me. Maybe there'll be some clues as time goes on.

The reason why a stroke does so much damage to a victim's memory and cognizance (and balance and coordination), is due to the loss of synapses in the brain. That reduces the opportunity for electrical nerve impulses (signals) to complete a connection. One of the benefits of magnesium threonate is to increase the number of synapses available. I was hoping that this action might reverse much of the damage done by a stroke (since it apparently reverses age-related demenia), but I could be wrong. Anyway, that's why I decided to try it.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
randyh
Adélie Penguin
Adélie Penguin
Posts: 104
Joined: Mon Oct 25, 2010 3:22 pm

Post by randyh »

I had to look this up, I have had these aura. I had no idea what they were, I went to tha ER one time but by the time they got to me it was gone. It had happened before but not as bad as the time I went to the ER. They told me at the hospital that I was probably an eye floater. Wow, I never thought of it being related to my LC. It's more unnerving than anything else, usually passes or fades in about 30 minutes.
Charles70
Posts: 7
Joined: Sat Aug 24, 2019 1:27 pm

Post by Charles70 »

Hi Tex

I have been having migraine auras for the past 35 years or so (since I was 13). I’ve been keeping a diary of them and normally get between 20 and 50 each year. They are the same as how you describe them in your first post and either go to the left or right. I don’t get the headache that normally follows the aura for other people (called migraine aura without headache or silent migraine) but I do get muscular tension and feel a bit washed out for the rest of the day. Inflammation is a known migraine trigger.

I was diagnosed with LC about a month ago and immediately stopped gluten and dairy. I’m on Budenoside for 3 months. I live in Europe and it doesn’t seem possible to do the Enterolab tests but I see there is an option for me to do IgG blood tests for food sensitivities.

I am sure it will be a long road ahead but my hope is that by getting to understand what is causing the LC inflammation (eg all the food intolerances), hopefully the migraines will improve. I’m not sure how long I had the LC before diagnosis but I feel they are related.

Any thoughts will be appreciated.

Thanks for all the efforts you put into this forum.

Kind regards,
Charles
Post Reply

Return to “Polls Related to Microscopic Colitis and Treatment Options”