25 W D in 12 hours

Ingrid · Post by **Ingrid** » Tue Jul 16, 2019 2:34 pm

Is this normal? I have been good after my first and last course of budosenide (Aug-Oct 2018) yesterday had to go to toilet 25 times? Is this normal in LC or what? Never happenes before!

Post by **tex** » Tue Jul 16, 2019 3:11 pm

Well, it's not normal, but that's commonly what happens to many of us when something triggers our MC to cause a flare.

Tex

Ingrid · Post by **Ingrid** » Tue Jul 16, 2019 3:19 pm

Thank you for amswering, I do not what happend, I was very carefully with mi diet. Maybe was a strong period of stress

Post by **tex** » Tue Jul 16, 2019 5:56 pm

Yes, stress can cause a relapse that can be very difficult to resolve. It can be physical stress, emotional stress, or mental stress.

Have you started taking any new medications or supplements (or contraceptives or HRT) within the last few months? Or have you added anything to your diet within the last few months?

Tex

Ingrid · Post by **Ingrid** » Tue Jul 16, 2019 8:29 pm

I added magnesium doctors best 300 mg, zinc 60 mg and that is all. The thing that anguish the most is that my poo it is just Water. Specially when i drink water it comes worst. If I not drink it seems to come every each hour or two. I did eat a very greasy food two days prior to this

Post by **tex** » Wed Jul 17, 2019 7:42 am

Greasy food is very difficult to digest, especially when our intestines are inflamed or sensitive for some other reason. That might have started your flare, or at least made it worse.

Stool that's the consistency of water is typical of an MC flare. You must keep drinking water anyway, or you will end up in the Emergency Room with dehydration. Watery diarrhea quickly depletes electrolytes. Please read the post at this link:

https://perskyfarms.com/phpBB2/viewtopic.php?t=992

I would stop taking any oral magnesium if I were in a flare. If you want to use magnesium, apply some magnesium oil or lotion to your skin. It's pointless to take oral supplements when in a flare , because they will just go straight to the toilet, anyway. And the magnesium might just be making the diarrhea worse. Wait until you are in remission to take any supplements.

If you can get a prescription for budesonide, start taking a full dose again again. That should stop the diarrhea. Without any treatment, flares such as this are difficult to stop. They can last a long time — months or years.

Eat or drink turkey stock (or soup), or chicken stock (or soup), if you're not sensitive to chicken. It's easier to absorb nutrients from soup or stock or bone broth when we have watery diarrhea. You have to continue eating and drinking water, no matter how bad the diarrhea gets, or you will get very weak and sick.

Tex

Ingrid · Post by **Ingrid** » Wed Jul 17, 2019 12:31 pm

Thank you Tex, my GI gave me lidamidine 4 mg / 8 hours for 3 days. In 15 hours I have not visited the toilet. I could drink 600 ml of pedyalite. Feeling so tired though. I am also drinking the chicken bone broth that you recommended me. Hopefully he put me on budosedine soon. It really helped me the last time

brandy · Post by **brandy** » Wed Jul 17, 2019 6:01 pm

Yes, WD 25 per day I'd consider get back on budesonide full dose.

Ingrid · Post by **Ingrid** » Wed Jul 17, 2019 8:36 pm

Thank you Brandy and Tex. With lidamidine pill 1 each 8 hour I have been 24 hours off the toilet, however I do want to get back to my GI to get budosenide as I will be off to Spain next week and I am so nervoous about the flight. I was wondeeing if while taking budosenide I can take enterolab test without these being altered?

Post by **tex** » Thu Jul 18, 2019 8:24 am

For a couple of months or so, budesonide will not affect EnteroLab results, but after taking it longer, the tests will not be as effective. After about 5 or 6 months or so, some food sensitivities may not be detected at all. So it's not good to wait more than 2 or 3 months after starting budesonide.

If you can see that you will need to wait longer before you order a collection kit, you can catch a sample and freeze it before you get the kit, if you understand how to do that without contaminating the sample. A sample will keep for at least a year or so, if kept frozen.

Tex

Ingrid · Post by **Ingrid** » Thu Jul 18, 2019 5:01 pm

Just came back from my GI he did not prescribe budosenide bit an antibiotic, acromycin, :( and racecadotril, I really want budosenide, does anyone have heard of racecadotril before? Can it help?

tommyboywalker · Post by **tommyboywalker** » Thu Jul 18, 2019 6:29 pm

Ingrid wrote:Just came back from my GI he did not prescribe budosenide bit an antibiotic, acromycin, :( and racecadotril, I really want budosenide, does anyone have heard of racecadotril before? Can it help?

Unless I'm missing something, I don't understand why the GI doctor would prescribe an antibiotic. Antibiotics will not likely help you unless this is a true bacterial infection which only testing could point to, and it is possible that antibiotics may even cause you more distress.

Did you discuss Budesonide?

I'd push for it. Or get another opinion.

Ingrid · Post by **Ingrid** » Thu Jul 18, 2019 6:45 pm

Thanks Tommy, I asked for budosenide but he said no, I think i really need it as I am losing too much weight!

tommyboywalker · Post by **tommyboywalker** » Thu Jul 18, 2019 7:02 pm

Ingrid wrote:Thanks Tommy, I asked for budosenide but he said no, I think i really need it as I am losing too much weight!

Many GI doctors are sadly very misinformed about the treatment of Microscopic Colitis. Your current GI doctor could very well be one of those misinformed folks.

Unless Budesonide is contraindicated to you for a particular reason, I'd either seek another opinion from a different GI doctor or I would just buy the Budesonide locally as you mentioned that is an option for you and start treatment on your own with a full dose as Tex recommended above. Fully agree with that.

Sometimes you gotta take this into your own hands. You are the ONLY and the BEST advocate of your health.

All the best to you; please keep us posted....we're pulling for you!

Ingrid · Post by **Ingrid** » Thu Jul 18, 2019 7:26 pm

He said that I have an infection because my poo is green (never happened before) I do have a entire box of budosenide from last treatment. How many months should I take it? 33?