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Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Thank you Ingrid,
I think you could have your results in as little as 2 weeks. I was surprised at how fast mine were completed this time.
I can eat more foods now than when I was first sick and diagnosed. For example my original tests showed I was reacting to eggs and pork. Now those are not an issue. So it does get better but it does take time and consistency. I will never be able to eat gluten or soy again and that’s fine with me. I’m relieved that almond flour doesn’t seem to be a problem. Basically I eat a paleo diet with occasional rice.
But where I started was with eating chicken, ground beef, carrots, green beans, red potatoes and rice, and that was pretty much all for an entire year. No caffeine, no sugar, no acidic foods (tomato or oranges), low fat and no or very low fiber. It’s a tough stage you are in but it does get better. Keeping a food log helps identify any trends. I tracked how I slept, my mood and general energy (or lack of) and any changes.
When I was first sick, I struggled to work at my usual pace. Fortunately I was around people who had worked with me for 15 years so they were very lenient with me. I used 8 sick days that year whereas in the past I used maybe 1-2 days a year. I was sent home twice by my bosses who thought I looked too sick to work (that’s a little humbling). I sat in meetings presenting information while I was dizzy. I missed many social events so I could rest instead. There were times I felt overwhelmed with it all and usually on those days I just went to bed early. And I was here- a lot!!! Talking to people and looking for hope and reading as much as I could.
Just remember to give yourself some compassion too. It’s okay to say ‘no’ to others and to do what is best for you. You have to be your #1 priority right now. All other things can wait.
Warm regards,
Carol
I think you could have your results in as little as 2 weeks. I was surprised at how fast mine were completed this time.
I can eat more foods now than when I was first sick and diagnosed. For example my original tests showed I was reacting to eggs and pork. Now those are not an issue. So it does get better but it does take time and consistency. I will never be able to eat gluten or soy again and that’s fine with me. I’m relieved that almond flour doesn’t seem to be a problem. Basically I eat a paleo diet with occasional rice.
But where I started was with eating chicken, ground beef, carrots, green beans, red potatoes and rice, and that was pretty much all for an entire year. No caffeine, no sugar, no acidic foods (tomato or oranges), low fat and no or very low fiber. It’s a tough stage you are in but it does get better. Keeping a food log helps identify any trends. I tracked how I slept, my mood and general energy (or lack of) and any changes.
When I was first sick, I struggled to work at my usual pace. Fortunately I was around people who had worked with me for 15 years so they were very lenient with me. I used 8 sick days that year whereas in the past I used maybe 1-2 days a year. I was sent home twice by my bosses who thought I looked too sick to work (that’s a little humbling). I sat in meetings presenting information while I was dizzy. I missed many social events so I could rest instead. There were times I felt overwhelmed with it all and usually on those days I just went to bed early. And I was here- a lot!!! Talking to people and looking for hope and reading as much as I could.
Just remember to give yourself some compassion too. It’s okay to say ‘no’ to others and to do what is best for you. You have to be your #1 priority right now. All other things can wait.
Warm regards,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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rcchild@gpcom.net
- Little Blue Penguin
- Posts: 44
- Joined: Sun May 26, 2019 2:09 pm
- Location: Nebraska
Carol M -
Your fecal fat score is almost as high as mine! But your other scores don't look too bad. I will be interested to hear how the pancreatic enzyme test turns out. I think my fecal fat was so high because I had been eating a lot of homemade lactose free yogurt (Specific Carbohydrate Diet) and did not realize I was casein intolerant. But maybe a part of my problem is the pancreas also. I've worried about that, but need to get the gut inflammation down before I take any type of supplements. Good luck figuring it all out.
Kari-
I believe I read in one of your old posts (can't find it now) that you gave up all alcohol (that caught my eye because I had continued to have my nightly glass of wine up until a month ago) and all grain. I've been eating rice and rice products, but think I'll have to limit them to 2 servings a day. I prefer rice to meat and just kept increasing the rice and decreasing the protein. So that may be why I'm not making as much progress as I'm hoping for. After you gave up all grain (if I'm correct and that was your post), how long did it take to get to a firmer BM and how long did you eat just meat and maybe a few vegetables. I never did find vegetables that agreed with me, I do eat a little banana.
I sure to appreciate all the help I've gotten from everyone here.
Ingrid -
I have been eating rice, meat (beef, pork, a little salmon), homemade meat broth, and banana. Am now trying to really cut the rice, so just meat, meat broth and a little rice or banana.
Carol C
Your fecal fat score is almost as high as mine! But your other scores don't look too bad. I will be interested to hear how the pancreatic enzyme test turns out. I think my fecal fat was so high because I had been eating a lot of homemade lactose free yogurt (Specific Carbohydrate Diet) and did not realize I was casein intolerant. But maybe a part of my problem is the pancreas also. I've worried about that, but need to get the gut inflammation down before I take any type of supplements. Good luck figuring it all out.
Kari-
I believe I read in one of your old posts (can't find it now) that you gave up all alcohol (that caught my eye because I had continued to have my nightly glass of wine up until a month ago) and all grain. I've been eating rice and rice products, but think I'll have to limit them to 2 servings a day. I prefer rice to meat and just kept increasing the rice and decreasing the protein. So that may be why I'm not making as much progress as I'm hoping for. After you gave up all grain (if I'm correct and that was your post), how long did it take to get to a firmer BM and how long did you eat just meat and maybe a few vegetables. I never did find vegetables that agreed with me, I do eat a little banana.
I sure to appreciate all the help I've gotten from everyone here.
Ingrid -
I have been eating rice, meat (beef, pork, a little salmon), homemade meat broth, and banana. Am now trying to really cut the rice, so just meat, meat broth and a little rice or banana.
Carol C
Carol C,
I cannot drink wine because of the histamines. Fortunately, I don't particularly care for it anyway. If I have a drink from time to time (tequila), it always affects my BM's, so I very rarely indulge. I don't believe in being fanatical about anything, so after long stretches of abstinence, I allow myself to have a drink on special occasions.
As far as giving up grains, it did not take long for firmer BM's, and has brought me a step closer to consistently doing better. I also stopped eating out (almost exclusively), which has also helped.
I was first diagnosed with LC almost 20 years ago, and it has been a constant struggle. No matter what I do, something always seems to get me. The biggest help in dealing with it has been meditation and yoga. Staying strong both mentally and physically is very helpful. Accepting what is going on is a giant help. Instead of beating myself up when things get off track, I try to embrace it as my reality, and continue doing the best I can.
Best of luck to you,
Kari
I cannot drink wine because of the histamines. Fortunately, I don't particularly care for it anyway. If I have a drink from time to time (tequila), it always affects my BM's, so I very rarely indulge. I don't believe in being fanatical about anything, so after long stretches of abstinence, I allow myself to have a drink on special occasions.
As far as giving up grains, it did not take long for firmer BM's, and has brought me a step closer to consistently doing better. I also stopped eating out (almost exclusively), which has also helped.
I was first diagnosed with LC almost 20 years ago, and it has been a constant struggle. No matter what I do, something always seems to get me. The biggest help in dealing with it has been meditation and yoga. Staying strong both mentally and physically is very helpful. Accepting what is going on is a giant help. Instead of beating myself up when things get off track, I try to embrace it as my reality, and continue doing the best I can.
Best of luck to you,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Kari- your outlook on managing this disease is both wise and compassionate. I also find meditation and a regular exercise plan to be very helpful. Acceptance of ourselves and of the unpredictability we experience is the best gift we can give ourselves.
Thank you for sharing your thoughts,
CarolM
Namaste’
Thank you for sharing your thoughts,
CarolM
Namaste’“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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I agree with you both, acceptance of what is is essential. It is even possible for me to feel gratitude for this disease, despite all the limitations it causes, for it has led me to a much healthier diet and lifestyle than I might otherwise have had. The disease may be physical in its manifestations but in order to attain remission there is mental/emotional work that must be done along with the dietary changes.
Jean
Jean
-
rcchild@gpcom.net
- Little Blue Penguin
- Posts: 44
- Joined: Sun May 26, 2019 2:09 pm
- Location: Nebraska
Kari -
Thank you for your words of wisdom! Acceptance - I know it is key, but I'm sure not there yet. I will keep trying. For this past year all I've done is read posts and study this disease. Right now I guess I'm just tired - tired of studying and trying so hard to find the answers and there don't seem to really be any answers. Anyway for the most part, I've kept a pretty good attitude, so I'll also look for that attitude again - it left me about a month ago when I went into a flare for no apparent reason.
I will look into meditation and I've been wanting to give yoga a try, so maybe now is as good a time as any.
Carol M and JFR - thank you so much for chiming in. I appreciate you all so much.
Carol C
Thank you for your words of wisdom! Acceptance - I know it is key, but I'm sure not there yet. I will keep trying. For this past year all I've done is read posts and study this disease. Right now I guess I'm just tired - tired of studying and trying so hard to find the answers and there don't seem to really be any answers. Anyway for the most part, I've kept a pretty good attitude, so I'll also look for that attitude again - it left me about a month ago when I went into a flare for no apparent reason.
I will look into meditation and I've been wanting to give yoga a try, so maybe now is as good a time as any.
Carol M and JFR - thank you so much for chiming in. I appreciate you all so much.
Carol C
Okay- my Pancreatic Elastase enzyme test results came today and as I expected- it’s low. My score was 260ug. The desired range is above 400ug. So I’ve emailed my functional med doc after looking up supplements specifically for pancreatic enzyme supplementation. They are a subgroup of the enzymes I’ve been taking, but in much larger quantity.
I’m not sure how all of this will shake out but this could be one more piece of the puzzle. Improving this and my apparent gluten exposure is bound to have an impact on these last few symptoms that have been so persistent the last few years.
Carol C- it is common to feel tired of reading and worrying about being sick/ wanting to feel better. I once told my doctor that what I hated the most about this disease is how self-centered it had made me. Fortunately as I moved toward and into remission that also has changed. I now am able to dedicate some thoughts and energy toward other pursuits again. You will too, but those early stages are tough. Hang in there. Hugs - Carol M
I’m not sure how all of this will shake out but this could be one more piece of the puzzle. Improving this and my apparent gluten exposure is bound to have an impact on these last few symptoms that have been so persistent the last few years.
Carol C- it is common to feel tired of reading and worrying about being sick/ wanting to feel better. I once told my doctor that what I hated the most about this disease is how self-centered it had made me. Fortunately as I moved toward and into remission that also has changed. I now am able to dedicate some thoughts and energy toward other pursuits again. You will too, but those early stages are tough. Hang in there. Hugs - Carol M
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Dear Carol (m),
Glad you got your results and can now start to focus on getting another piece of the puzzle solved. Wishing you radiant health !!!.
Love,
Kari
Glad you got your results and can now start to focus on getting another piece of the puzzle solved. Wishing you radiant health !!!.
Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein