Hi, so I was in pretty bad pain with my MC and went to the walk in where they showed a dilated bowel and that in turn they told me to go to the ER because I they thought I might have a block, so I went and they did a CT and it showed dilation, no block but then they told me that they wanted a stool sample.
today the nurse called me saying they found lactoferrin found and to go see my GI. has anyone had this? is this now ulcerative colitis? or IBD?
thank you!
Sheila in WI
lactoferrin found
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Sheila,
Microscopic colitis (mc) IS an IBD. Most of us have bloating and pain when our MC is active. Those are some of our most common symptoms.
Lactoferrin is produced by neutrophils. While it's true that neutrophils are more common with Crohn's Disease and ulcerative colitis than with microscopic colitis (MC), they're not exactly absent from the colonic mucosa when MC is active. Exactly how much lactoferrin did they find? A small-to-moderate amount would not be unexpected with MC.
They should have checked your calprotectin level, not your lactoferrin level (neutrophils produce both). (For all I know, maybe they did, and it was low — if so, they just confirmed that you have MC.) You can have your calprotectin level tested in order to rule out Crohn's or UC. Still, calprotectin levels can range up to about 100 in some MC cases.
The bottom line is that you're probably just having a typical MC reaction, similar to what most of us here have gone through many times in the past. Unless you have blood in your stool, it's unlikely that your symptoms were caused by anything other than MC. At least, that's my opinion.
I hope that helps.
Tex
Microscopic colitis (mc) IS an IBD. Most of us have bloating and pain when our MC is active. Those are some of our most common symptoms.
Lactoferrin is produced by neutrophils. While it's true that neutrophils are more common with Crohn's Disease and ulcerative colitis than with microscopic colitis (MC), they're not exactly absent from the colonic mucosa when MC is active. Exactly how much lactoferrin did they find? A small-to-moderate amount would not be unexpected with MC.
They should have checked your calprotectin level, not your lactoferrin level (neutrophils produce both). (For all I know, maybe they did, and it was low — if so, they just confirmed that you have MC.) You can have your calprotectin level tested in order to rule out Crohn's or UC. Still, calprotectin levels can range up to about 100 in some MC cases.
The bottom line is that you're probably just having a typical MC reaction, similar to what most of us here have gone through many times in the past. Unless you have blood in your stool, it's unlikely that your symptoms were caused by anything other than MC. At least, that's my opinion.
I hope that helps.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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sheilafray
- Posts: 11
- Joined: Fri Jun 22, 2018 6:12 pm
Hello Shelia,
Sorry to hear about your current flare up. Before I was put on budesonide about 6 weeks ago, I had very little appetite and felt like I had been hit by a bus. I have begun to get my appetite back, there are good days and bad days. I also have chronic gastritis, GERD, and Barrett’s esophagus. So i am feeling like this limits my appetite as well.
Sending healing energy your way!
Cheers,
Eliza
Sorry to hear about your current flare up. Before I was put on budesonide about 6 weeks ago, I had very little appetite and felt like I had been hit by a bus. I have begun to get my appetite back, there are good days and bad days. I also have chronic gastritis, GERD, and Barrett’s esophagus. So i am feeling like this limits my appetite as well.
Sending healing energy your way!
Cheers,
Eliza