Thank you Jean and Tex,
It can be so confusing sorting out what's good and true information and what is not. I will check out the dietdoctor site. I've read your success story post Jean, very inspirational and helpful.
Tiffany
Cautiously optimistic but need help w/latest enterolab
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Tiffany said:
Yes I have normal BM's.Do you have totally normal BM's now, as in not ribbon stool or MCmud? If so, how long did it take to get there? Or is there never really a "back to normal" on this front?
During initial bout of MC, back in 2010, after I went from WD to mcmud I had MC mud for about 6-8 weeks. Due to pressure from my employer (weird I know)
I went on budesonide for 4.5 months at this time.
During 9 month reflare, after I progressed from WD to MCmud I had MC mud for about 6-8 weeks and then I went on cholestyramine.
Both the budesonide and cholestyramine worked well for me. I responded to both within a day or so.
The problem was I had side effects from both drugs. When I took my last budesonide pill I knew it was my
last budesonide pill ever as the side effects were too severe. A tiny amount of the cholestyramine worked
really well for me. The problem was that after a month my throat started swelling. I had to discontinue
the cholestyramine and it is not an option in the future.
Tiffany I thought I'd add that during my 9 month reflare another thing that helped me to go from WD
to mcmud was discontinuing oral supplements.
Hope this helps and provides insight.
-
tiffanyvaughn
- Posts: 13
- Joined: Mon Oct 22, 2018 7:17 pm
Thank you Brandy,
Really helpful to know your timeline of getting to normal-ish, just to get a sense, though I know we are all different.
I'll definitely consider the supplements...I've been doing the mg glycinate/malate and vitD3, but I did add the Thorne methyl guard plus. It has definitely helped my energy, but I wonder if it's too soon.
You said you had severe throat swelling with the cholestyramine eventually...What were your side effects/reaction to the budesonide if you don't mind telling?
I'm starting to see and connect some definite histamine patterns now that I've considerably limited foods. This has been frustrating and puzzling but had a feeling there was some connection with what was going on with me symptom-wise, especially after reading a lot of posts here, Tex's books, and reading up a lot on histamine in general. It's definitely worse during hormonal fluctuation times. What I still don't get all the time is how do you know if it's a histamine/mast cell reaction, or the hormone thing, or just a high level of inflammation from the MC? And Tex, anyone else please chime in.
I read through your whole post on the kidney/creatinine...so glad you are still good! I noticed Tex's comment in the thread about how a lot of us seem to have kidney issues with MC, especially if the MC has been there more than 6-8yrs, and wondering if it's a symptom or side effect. What effects might one feel or have symptoms of if there is compromised kidney function or some of these numbers that you posted? Hope that question makes sense. I know you said you had zero physical symptoms.
Thanks again, hope everyone had a great Thanksgiving!
Tiffany
Really helpful to know your timeline of getting to normal-ish, just to get a sense, though I know we are all different.
I'll definitely consider the supplements...I've been doing the mg glycinate/malate and vitD3, but I did add the Thorne methyl guard plus. It has definitely helped my energy, but I wonder if it's too soon.
You said you had severe throat swelling with the cholestyramine eventually...What were your side effects/reaction to the budesonide if you don't mind telling?
I'm starting to see and connect some definite histamine patterns now that I've considerably limited foods. This has been frustrating and puzzling but had a feeling there was some connection with what was going on with me symptom-wise, especially after reading a lot of posts here, Tex's books, and reading up a lot on histamine in general. It's definitely worse during hormonal fluctuation times. What I still don't get all the time is how do you know if it's a histamine/mast cell reaction, or the hormone thing, or just a high level of inflammation from the MC? And Tex, anyone else please chime in.
I read through your whole post on the kidney/creatinine...so glad you are still good! I noticed Tex's comment in the thread about how a lot of us seem to have kidney issues with MC, especially if the MC has been there more than 6-8yrs, and wondering if it's a symptom or side effect. What effects might one feel or have symptoms of if there is compromised kidney function or some of these numbers that you posted? Hope that question makes sense. I know you said you had zero physical symptoms.
Thanks again, hope everyone had a great Thanksgiving!
Tiffany
Tiffany A. Vaughn
Hi Tiffany,
Regarding ways to identify histamine issues. For many of us (though not necessarily everyone), we will have a common histamine symptom that helps to identify the problem. Such as a facial flush, throat congestion, tickling or itching in the face, nose, eyes, or throat; runny nose, watery eyes, or a heart rate that increases more than 10 %, soon after a meal. Or a rash or hive might pop up anywhere on the body. It could also present as bloating or abdominal discomfort, but that's an ambiguous symptom, because it could also be associated with a conventional MC digestive reaction.
In my case, I'll usually notice one or more hives, usually on my rib cage or abdomen, but occasionally on or near an ankle, or a rash, usually above an ankle, but occasionally on the top of one or both of my feet. For me, I'll begin to notice these symptoms anywhere from a few hours to almost half-a-day after the indiscretion. But some of the symptoms listed above can show up anywhere from a few minutes to as long as a few hours after eating. Usually though, they appear about 10 to 20 minutes after eating, for most people (I believe — I could be wrong).
I hope this helps.
I assume your question about kidney/creatinine issues was intended for Brandy, so I won't go through my pitch again.
Tex
Regarding ways to identify histamine issues. For many of us (though not necessarily everyone), we will have a common histamine symptom that helps to identify the problem. Such as a facial flush, throat congestion, tickling or itching in the face, nose, eyes, or throat; runny nose, watery eyes, or a heart rate that increases more than 10 %, soon after a meal. Or a rash or hive might pop up anywhere on the body. It could also present as bloating or abdominal discomfort, but that's an ambiguous symptom, because it could also be associated with a conventional MC digestive reaction.
In my case, I'll usually notice one or more hives, usually on my rib cage or abdomen, but occasionally on or near an ankle, or a rash, usually above an ankle, but occasionally on the top of one or both of my feet. For me, I'll begin to notice these symptoms anywhere from a few hours to almost half-a-day after the indiscretion. But some of the symptoms listed above can show up anywhere from a few minutes to as long as a few hours after eating. Usually though, they appear about 10 to 20 minutes after eating, for most people (I believe — I could be wrong).
I hope this helps.
I assume your question about kidney/creatinine issues was intended for Brandy, so I won't go through my pitch again.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.