Tapering off Entocort...Question??

rudi · Post by **rudi** » Wed Sep 18, 2019 1:07 pm

Rudi again,
How do you visit others who are not gluten free snd be able to eat in their home

brandy · Post by **brandy** » Wed Sep 18, 2019 5:20 pm

Hi Rudi,

Is it for one meal?

Or is it for like a week?

One meal...I typically eat before I go and ask the hostess if I can bring a dish to share due to my food sensitivities.
Then I eat my dish at the meal and also share it.

One week--I typically will buy my own foods at the grocery and cook my own meals. Sometimes I'll buy a cheapo
frying pan and foil pans for my foods.

My two nieces are not GF but really eat GF and also my sister is the same so it is not tough when visiting them.

jessica329 · Post by **jessica329** » Thu Sep 19, 2019 7:36 am

I always pack and bring my own meals. We do the same for our son. For example, he had a classmate's bday party at a children's bouncy house center and we brought gf pizza for him. No one seems to care, especially since allergies are rampant these days.

jlbattin · Post by **jlbattin** » Fri Sep 20, 2019 9:02 am

I take my own food always. Sometimes I cook it and sometimes I cook ahead of time and freeze it and just take a big cooler with frozen food that I can reheat.

rudi · Post by **rudi** » Fri Sep 27, 2019 12:58 pm

Hi all rudi again
Was wondering why enterlab results say normal is 10 units no matter what the test. I find it strange and would question the results. Dr fne has not published any proof that they have the correct tests.

Post by **tex** » Fri Sep 27, 2019 2:50 pm

Because that's the way that the tests are calibrated for best results. These are standard ELISA tests, used by many, many labs. The uniqueness lies in that EnteroLab uses them to get maximum accuracy. He proved that the tests work when he received a patent on them. That's why they're the only lab that offers these particular stool tests. Over the years, we've found the accuracy and reliability of EnteroLab's results to be superior to any other lab in the world.

By the way, 10 is not a normal result for those tests. Normal is below 10.

Tex

rudi · Post by **rudi** » Sun Jan 12, 2020 2:08 pm

Hi, rudi again,
I have been doing well, still on budesonide, but started on sulfalasine (sp)
To try to get off the endocort, but going more after only a few days
I have been gluten and dairy free almost a year now, all I want is to stop medicines, any suggestions?.

Post by **tex** » Sun Jan 12, 2020 5:06 pm

Have you tried avoiding soy and eggs also? If not, that may be why you are still reacting.

Tex

carolm · Post by **carolm** » Sun Jan 12, 2020 8:03 pm

Hi Rudi,
I took sulfasalazine before I was on Budesonide (because I took the poor advice of my GP) and it made me sicker than my LC did and had many more side effects than Budesonide. So be careful with the sulfa drugs. They come with some horrid side effects. Some people have found that taking an antihistamine is helpful when titrating off of Budesonide.

If you want to taper off Budesonide you have to have your diet cleaned up and free of your intolerances and you need to do a very slow taper....like get to 3 mg every day for 3-4 weeks, then 3mg every other day for a few weeks then 3 mg every third day.

What kind of taper schedule have you tried?

Carol

jlbattin · Post by **jlbattin** » Sun Jan 12, 2020 8:13 pm

I agree with Carol. When I went off budesonide, I did a very slow taper and had totally cleaned up my diet of all gluten, dairy, and soy. I think I did 3 mg ever other day for about a week and then every 3rd day for about a month or so, and then even every 4th day for awhile until I finally just quit with no issues at all! It won't work if you haven't totally cleaned up your diet of everything that is giving you issues.

I also agree with Tex. Have you tried cutting out the soy and eggs? I had to be careful about soap I used and lotions I put on my body, etc. Everything matters.