I have not seen any other scores this high... New post but have been reading for weeks. Little background on me - I am Type 1 Diabetic, Hashimotos/Graves (being treated for Graves now) and November, 2019 diagnosed with CC via colonoscopy. I have had D since July, 2019. I eat mostly paleo and have been totally gf since January 4, 2020. I took Cholestyramine for about 6 weeks before deciding to attempt recovery with Fodmap diet changes. In meantime I found this site and learned of EnteroLab. Submitted testing. I believe I am mild compared to others? Currently I have 4 really good days (no bm) 2 iffy days (noise and feeling unwell in general) and 1 bad day (D and unwell feeling). Received the results below which took me by complete surprise. From reading previous posts, I apparently have been having issues significantly longer than symptoms. Any great advice would be appreciated. If I am interpreting this information correct, I think this will be a long and difficult road to recovery?
Quantitative Microscopic Fecal Fat Score Less than 300 Units (Normal Range is less than 300 Units)
Fecal Anti-gliadin IgA 11 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 187 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 58 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 126 Units (Normal Range is less than 10 Units)
Mean Value 11 Antigenic Foods 73 Units (Normal Range is less than 10 Units)
While all of the foods tested can be immune-stimulating, the hierarchy of reactions detected were as follows:
Food to which there was no significant immunological reactivity: None Food to which there was some immunological reactivity (1+): None Food to which there was moderate immunological reactivity (2+): Rice, Oat, Beef, Chicken, Tuna, Cashew, Walnut Food to which there was significant and/or the most immunological reactivity (3+): Rice Corn
Pork, Almond, White potato
Within each class of foods to which you displayed multiple reactions, the hierarchy of those reactions detected were as follows:
Grains:
Grain toward which you displayed the most immunologic reactivity: Corn
Grain toward which you displayed intermediate immunologic reactivity: Rice
Grain toward which you displayed the least immunologic reactivity: Oat
Meats:
Meat toward which you displayed the most immunologic reactivity: Pork
Meat toward which you were next most immunologically reactive: Beef
Meat toward which you displayed intermediate immunologic reactivity: Chicken
Meat toward which you displayed the least immunologic reactivity: Tuna
Nuts:
Nut toward which you displayed the most immunologic reactivity: Almond
Nut toward which you displayed intermediate immunologic reactivity: Cashew
Nut toward which you displayed the least immunologic reactivity: Walnut
Nightshades:
You displayed immunologic reactivity to white potato, the member of the nightshade family usually consumed most often and in greatest quantities. While this does not necessarily mean you would react to all other nightshade foods (tomatoes, peppers, eggplant), it is possible. In the realm of elimination diets for immunologic disorders, nightshades are usually eliminated as the entire food class (i.e., all four previously mentioned foods in this class). This is especially important to the clinical setting of arthritis.
So my diet of chicken, white rice and potatoes are now out. Any great advice?
EnteroLab Results-Wow. Just Wow.
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi,
Welcome to the group. Looking at your results, it if were me, I would probably base my recovery diet on turkey and/or lamb. Duck, goose, pheasant, quail, rabbit, venison and any other wild-type meat should be safe, even if farm or ranch-raised. Except for bison. All bison have domestic cattle DNA these days.
Looks like all the common grains are out. There are other grain options, however, many of them, such as millet, carry a high risk of being cross-contaminated. Grain sorghum is closely related to corn, so I doubt that it would work. If you feel that you need grain in your diet, you might consider quinoa as a substitute. Sweet potatoes and cauliflower are usually safe carb sources for most of us. Unless you had an allergy to them previously, shellfish such as shrimp, clams, oysters, prawns, mussels, etc., are usually safe for us. Hopefully, someone else will have some additional food suggestions.
Tex
Welcome to the group. Looking at your results, it if were me, I would probably base my recovery diet on turkey and/or lamb. Duck, goose, pheasant, quail, rabbit, venison and any other wild-type meat should be safe, even if farm or ranch-raised. Except for bison. All bison have domestic cattle DNA these days.
Looks like all the common grains are out. There are other grain options, however, many of them, such as millet, carry a high risk of being cross-contaminated. Grain sorghum is closely related to corn, so I doubt that it would work. If you feel that you need grain in your diet, you might consider quinoa as a substitute. Sweet potatoes and cauliflower are usually safe carb sources for most of us. Unless you had an allergy to them previously, shellfish such as shrimp, clams, oysters, prawns, mussels, etc., are usually safe for us. Hopefully, someone else will have some additional food suggestions.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thank you for the replies. I am going to certainly incorporate and restrict but I am losing too much weight and really would like to find some staple to eat regularly (paleo muffin/easy take to work foods). Do you think coconut, cassava or some other similar flour would be acceptable for right now? I am also debating on the dreaded modern medicine option due to weight loss however, I just don't want to hide the issue - I really would like to resolve it to the best of my ability.
Thank you for the replies. I very much appreciate it. Do you think coconut flour or cassava flour would be a good substitute for the almond flour I had been using? I am in a self debate regarding medicine. I can't afford to lose much more weight. I really would rather not go to prescription drugs if possible but am afraid if I lose much more, it would be more unhealthy for my body. Any thoughts? I did begin using allegra two days ago to assist in recovery while still attempting to find foods to reintroduce. I was surprised by the high numbers in my results - it seems I am sensitive to anything I put in my mouth so I guess I go with lesser of evils approach?
Mr. Tex - I thank you from the bottom of my heart for your time and your responses. Your site has given me a non-dramatic (ex. Facebook) place to connect with others in the same boat as I am. More appreciation goes to you than can be expressed. To the members who replied and all others - I thank you because on this day that I feel discouraged - I know I am not alone and you give me strength to carry on.
- Gretchen
Mr. Tex - I thank you from the bottom of my heart for your time and your responses. Your site has given me a non-dramatic (ex. Facebook) place to connect with others in the same boat as I am. More appreciation goes to you than can be expressed. To the members who replied and all others - I thank you because on this day that I feel discouraged - I know I am not alone and you give me strength to carry on.
- Gretchen
Gretchen
Regarding your questions, I've never used those two flours myself, but yes, they should work for you.
We've had many members who got very thin before they began to improve, including myself. Most of us tough it out, but if you feel that the weight loss is going too far, or recovery is taking too long, budesonide would probably help to not only stop the diarrhea, but also to gain weight. It doesn't work for everyone, but it does help in most cases. Antihistamines may not help much at this point. They come in handy for helping to maintain remission while ending a budesonide treatment.
Thank you for the kind words, they're sincerely appreciated. We don't allow trolls and troublemakers here. Most of us have enough to deal with without counterproductive or cruel remarks.
The path to recovery can be tough and longer than we prefer, but if we're dedicated, and we persevere with a squeaky-clean diet, we can do it.
Best of luck on your journey back to good health.
Tex
Regarding your questions, I've never used those two flours myself, but yes, they should work for you.
We've had many members who got very thin before they began to improve, including myself. Most of us tough it out, but if you feel that the weight loss is going too far, or recovery is taking too long, budesonide would probably help to not only stop the diarrhea, but also to gain weight. It doesn't work for everyone, but it does help in most cases. Antihistamines may not help much at this point. They come in handy for helping to maintain remission while ending a budesonide treatment.
Thank you for the kind words, they're sincerely appreciated. We don't allow trolls and troublemakers here. Most of us have enough to deal with without counterproductive or cruel remarks.
The path to recovery can be tough and longer than we prefer, but if we're dedicated, and we persevere with a squeaky-clean diet, we can do it.
Best of luck on your journey back to good health.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Gretchen-
You mentioned taking cholestyramine then stopping it in favor of going with just diet alone. I rarely post anymore because my life turned around 100% with cholestyramine .
Suffice it to say my Enterolab testing revealed I reacted to EVERYTHING at a 2+ or 3+. I modified my diet and was sorta ok for years but not great. Eventually things went nuts and I lost 23# and was living on like 6 food stuffs! If I never eat lamb, turkey or elk again it will be too soon!
Lots of testing and messing around with different meds with various Drs. Budesonide twice over the years (Skittles would have been more effective!), Pepto for months a few times, blah blah blah. Missed 2.5 months of work in 2017....actually thought this disease might actually kill me.
My feeling is that if nothing else is helping try the cholestyramine again, give it time to let things settle, increase dosage if needed. I went back and forth, started and stopped and messed with dosages with this stuff for a couple years. It became obvious to me that when I stopped it things went bad....
I eat whatever I want now. 3 years ago right now I was praying for anything that would stop the spiral I was going down. I had to fix myself Gretchen...thank goodness for this page as I became aware of cholestyramine , magnesium, betaine HCl right here..
I use Sandoz brand cholestyramine ...that is a generic. Questran was the original branded version. Because it is a generic, my health insurance thru work is happy and I pay $10 for 3 months of it. And I use ALOT of it! 12 60 pack boxes for 3 months . 8 packets a day.
I did not get better overnight. It’s like trying to turn the aircraft carrier around. The final piece of the puzzle was the betaine HCl and some digestive enzymes. Again, mentioned here then I did further research. If you are eating as much meat as I was to survive, I guess I needed way more STOMACH ACID (betaine HCl) to digest it.
I pop on here every once in awhile to give my peeps hope. We are all different , but this is how I healed myself..
Laine
You mentioned taking cholestyramine then stopping it in favor of going with just diet alone. I rarely post anymore because my life turned around 100% with cholestyramine .
Suffice it to say my Enterolab testing revealed I reacted to EVERYTHING at a 2+ or 3+. I modified my diet and was sorta ok for years but not great. Eventually things went nuts and I lost 23# and was living on like 6 food stuffs! If I never eat lamb, turkey or elk again it will be too soon!
Lots of testing and messing around with different meds with various Drs. Budesonide twice over the years (Skittles would have been more effective!), Pepto for months a few times, blah blah blah. Missed 2.5 months of work in 2017....actually thought this disease might actually kill me.
My feeling is that if nothing else is helping try the cholestyramine again, give it time to let things settle, increase dosage if needed. I went back and forth, started and stopped and messed with dosages with this stuff for a couple years. It became obvious to me that when I stopped it things went bad....
I eat whatever I want now. 3 years ago right now I was praying for anything that would stop the spiral I was going down. I had to fix myself Gretchen...thank goodness for this page as I became aware of cholestyramine , magnesium, betaine HCl right here..
I use Sandoz brand cholestyramine ...that is a generic. Questran was the original branded version. Because it is a generic, my health insurance thru work is happy and I pay $10 for 3 months of it. And I use ALOT of it! 12 60 pack boxes for 3 months . 8 packets a day.
I did not get better overnight. It’s like trying to turn the aircraft carrier around. The final piece of the puzzle was the betaine HCl and some digestive enzymes. Again, mentioned here then I did further research. If you are eating as much meat as I was to survive, I guess I needed way more STOMACH ACID (betaine HCl) to digest it.
I pop on here every once in awhile to give my peeps hope. We are all different , but this is how I healed myself..
Laine
"Do what you can, with what you have, where you are"-Teddy Roosevelt