Hello all. Flare and help!

armstrongpilot · Post by **armstrongpilot** » Wed Jan 22, 2020 12:46 pm

Should I take drs best magnesium or do I need to wait for some relief first? Tex?

Post by **tex** » Wed Jan 22, 2020 5:31 pm

If you're having constipation symptoms, the magnesium should be OK. If you're having diarrhea, I would wait until I was back in remission for a while (at least a few days).

Tex

armstrongpilot · Post by **armstrongpilot** » Fri Jan 24, 2020 7:38 am

Struggling with heartburn still that keeps me up at night and lots of mucus in stool. Very frustrated and only eating safe foods....not much relief. Going for 5yr colonoscopy tuesday

Post by **tex** » Fri Jan 24, 2020 9:30 am

Take an H2 Blocker as needed (and according to the label). Examples of H2 blockers are:

famotidine (Pepcid, Pepcid AC)
cimetidine (Tagamet, Tagamet HB)
ranitidine (Zantac)
nizatidine (Axid)

These are available over the counter, and by prescription in stronger doses. They will safely reduce the amount of acid produced by the stomach without the serious risks imposed by taking a proton pump inhibitor (PPI).

This should bring relief from heartburn.

Tex

armstrongpilot · Post by **armstrongpilot** » Fri Jan 24, 2020 10:04 am

That's a good idea. My d has been better with prednisone. The only thing I cannot seem to stop is the constant mucus and urgency....any ideas on that? I'm only eating rice chex......steamed white rice and 93% lean turkey.

Post by **tex** » Fri Jan 24, 2020 2:50 pm

Mucus is the result of a lot of inflammation. Stopping that will require some healing time, but that should improve soon, unless you're sensitive to rice.

Tex

armstrongpilot · Post by **armstrongpilot** » Fri Jan 31, 2020 7:53 am

Still struggling. Off prednisone and on generic budesonide.....however am now getting worse. Main inactive ingredient in generic budesonide is corn starch.....is that messing me up? Endocort economic does not have corn starch in it however my insurance wont cover it because it isnt generic.

armstrongpilot · Post by **armstrongpilot** » Fri Jan 31, 2020 7:54 am

Corn is a known bad trigger for me.

Post by **tex** » Fri Jan 31, 2020 9:52 am

Yes, if corn is a known trigger, then the budesonide will not be able to overcome that problem. If you can't get a safe formulation for budesonide (without any corn ingredients), try to get your doctor to write a prescription for compounded budesonide that uses safe inactive ingredients. Take that prescription to a compounding pharmacy. Compounded prescription drugs are almost always much cheaper than commercial equivalents, so cost shouldn't be a problem.

Hopefully, budesonide without any corn ingredients should solve the problem.

Good detective work, by the way.

Tex

armstrongpilot · Post by **armstrongpilot** » Fri Jan 31, 2020 11:54 am

Spot on sir! I called a compounding pharmacy and they can make it for 90.00 a month with out cornstarch. They cautioned me that it will not be encapsulated like entocort ec due to the technology required. Will that be an issue? They can put it in a m4e coating that will be kind of a delay release.

Btw entocort ec without being insurance covered is 2400.00 a month....how is that even legal. I have really good work insurance but they don’t seem to care what I need or think.

Post by **tex** » Fri Jan 31, 2020 1:18 pm

I'm not familiar with that coating, but several other members have had to use compounded budesonide in the past, and I don't recall ever hearing any complaints about it.

This just shows how much profit Big Pharma makes on most prescription drugs. Consumers pay the price, because they feel that they have to have it — while our government looks the other way. Drugs are much, much cheaper in most other countries. It amounts to a legal ripoff.

Tex

armstrongpilot · Post by **armstrongpilot** » Sat Feb 01, 2020 8:54 am

Is there an allergy medicine available that doesnt contain corn in it? Was looking at trying allegra d but it has pregelatinized corn starch in it.....? Trying to cover all bases.

Post by **tex** » Sat Feb 01, 2020 12:43 pm

I'm not aware of a safe antihistamine that you might use. Zyrtec coesn't contain corn, but it contains casein and titanium dioxide, both of which are contraindicated for most of us. Maybe someone else knows of one that might work.

Tex

armstrongpilot · Post by **armstrongpilot** » Fri Feb 07, 2020 7:50 pm

Finally got on the real entocort ec.....and amazing. Mostly. Took 2 days for d to stop...

Now I am kinda c......need a happy medium. Flew three trips today and feeling good.

Post by **tex** » Fri Feb 07, 2020 9:00 pm

Great!

Tex