Hi Everyone,
Just got back at 1 am this morning. Aside from the 1,000 bug bits, we had a really terrific time. I haven't had a chance to catch up with the posts yet, but will do so over the next few days.
I had one dream of some of you gathered together in a room....maybe Dr. Fine's conferece....
Of course, the first thing I did this morning was to check my email for the Enterolab results...
Gluten Sensitivity Stool and Gene Panel Complete
Fecal Antigliadin IgA 28
Fecal Antitissue Transglutaminase IgA 14 Units
Quantitative Microscopic Fecal Fat Score 155 Units
Fecal anti-casein (cow's milk) IgA antibody 11 Units
HLA-DQB1 Molecular analysis, Allele 1 0501
HLA-DQB1 Molecular analysis, Allele 2 0502
Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)
This means I have active dietary gluten sensitivity, an autoimmune reaction to the human enzyme tissue transglutaminase secondary to gluten sensitivity, and no malabsorbed diet fat in stool.
I do not have the genes that predispose to celiac sprue, but do have two copies of a gene that predisposes to gluten sensitivity as indicated above. Having two copies, one from each of my parents, means an even stronger disposition to gluten sensitivity.
The anti-casein was 11 and 10 is the normal cut-off...so not sure if that means just a mild reaction....
Another big leap on the healing journey!
I encouraged my husband to get the gluten sensitivity test, even though he strongly believed he wasn't gluten sensitive. He didn't eat gluten for about six months, but has had it occassionally over recent months. Interestingly, he had pasta one evening on our vacation and he had facial itching at night and strong fatigue the next day. That got him thinking... So it wasn't a big surprise that his test results also indicated active gluten sensitivity.
By the way, what does the B mean in DQB1? They seem to ususally refer to it as DQ1....is that the same as with the B or different?
I looked forward to hearing what's been up with all of you.
All the best,
Celia
I'm back and tests results!
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I'm back and tests results!
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Hey Celia!!!!!!
You are pretty much a lot like me. My Fecal Antigliadin IgA score was 40, Fecal Antitissue Transglutaminase IgA is 16 and my casein was 15 units, and Fecal fat score was 109. I asked about my score of 16 when it came to the milk and they said even if you score a 10 you should most likely cut it out. Maybe call Dr Fine and see what he has to say. Unlike you I have both of the genes for celiac sprue.
When are you going to start your diet according to your tests? Or have you already started the diet? If you havent then maybe we can start around the same time so we can be diet buddies and could bounce ideas and such off of each other.
Glad you had a fun trip... I hope it was relaxing!
You are pretty much a lot like me. My Fecal Antigliadin IgA score was 40, Fecal Antitissue Transglutaminase IgA is 16 and my casein was 15 units, and Fecal fat score was 109. I asked about my score of 16 when it came to the milk and they said even if you score a 10 you should most likely cut it out. Maybe call Dr Fine and see what he has to say. Unlike you I have both of the genes for celiac sprue.
When are you going to start your diet according to your tests? Or have you already started the diet? If you havent then maybe we can start around the same time so we can be diet buddies and could bounce ideas and such off of each other.
Glad you had a fun trip... I hope it was relaxing!
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Hi Celia,
Welcome back.
I don't know what the "B" stands for, literally, but the "DQB1" designation is the newest form, and refers to molecular types resulting from DNA testing, (example, HLA-DQB1*0201). The older designation, (example, HLA-DQ2), is known as a seriologic equivalent, to allow matching to older testing methods.
IOW, the celiac gene, HLA-DQ2, is the seriologic equivalent of the HLA-DQB1*201 gene, (which I have, by the way).
I think that Dr. Fine generally claims that the numerical value of an IgA antibody test result is not a measure of clinical severity. Therefore, the casein test result of 11, presumably indicates a risk, (though not necessarily the same intolerance level), as a test result of, say, 8o, for all practical purposes. IOW, if you ingest casein, you will risk suffering adverse health consequences, (the actual degree of risk may depend on many other factors).
A fecal fat score under 300 indicates a lack of significant residual damage to the mucosa of your small intestine. I interpret this to mean that your gut has mostly healed from any damage the gluten might have acrued, and/or, depending on how long you have been GF), you are problaby not a celiac. Note that this interpretation is just my opinion, and is not a part of Dr. Fine's lab results assessment. The official position is that the test reflects the degree of damage to the small intestine.
That's very, very interesting that your husband tested to be gluten sensitive, also. Hmmmmmmmmm. You might find the recent discussions about viruses in the Discussions on Treatment Options Using Diet, and/or Medications forum to be rather interesting.
I hope the 1,000 bug "bits" weren't bed bug bites, which have been in the news so much, lately. LOL.
Thanks for posting all that information. That certainly adds to the database of information, here.
Wayne
Welcome back.
I don't know what the "B" stands for, literally, but the "DQB1" designation is the newest form, and refers to molecular types resulting from DNA testing, (example, HLA-DQB1*0201). The older designation, (example, HLA-DQ2), is known as a seriologic equivalent, to allow matching to older testing methods.
IOW, the celiac gene, HLA-DQ2, is the seriologic equivalent of the HLA-DQB1*201 gene, (which I have, by the way).
I think that Dr. Fine generally claims that the numerical value of an IgA antibody test result is not a measure of clinical severity. Therefore, the casein test result of 11, presumably indicates a risk, (though not necessarily the same intolerance level), as a test result of, say, 8o, for all practical purposes. IOW, if you ingest casein, you will risk suffering adverse health consequences, (the actual degree of risk may depend on many other factors).
A fecal fat score under 300 indicates a lack of significant residual damage to the mucosa of your small intestine. I interpret this to mean that your gut has mostly healed from any damage the gluten might have acrued, and/or, depending on how long you have been GF), you are problaby not a celiac. Note that this interpretation is just my opinion, and is not a part of Dr. Fine's lab results assessment. The official position is that the test reflects the degree of damage to the small intestine.
That's very, very interesting that your husband tested to be gluten sensitive, also. Hmmmmmmmmm. You might find the recent discussions about viruses in the Discussions on Treatment Options Using Diet, and/or Medications forum to be rather interesting.
I hope the 1,000 bug "bits" weren't bed bug bites, which have been in the news so much, lately. LOL.
Thanks for posting all that information. That certainly adds to the database of information, here.
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.