GI Specialist versus this Forum

[humbird753]

Hi Tex, and everyone else.

I was recently watching a video that explained in an organized manner how people get autoimmune "diseases" and how they can be prevented or reversed.

While watching the video it reminded me of my last annual check-up at Mayo last September. I don't believe I've posted this before, but if I have I apologize for repeating myself.

During my last doctor appointment, I was shocked when my doctor said, "When you were diagnosed with MC we were just on the cutting edge of learning more about it, but not quite there yet. And in spite of our lack of knowledge, you figured it out on your own."

I didn't figure it out on my own, but I found this forum with Tex and other veterans of MC who offered sound advice on how to turn things around with my MC to get my life back.

A huge thank you to you, Tex, and everyone else who are educating and helping others with MC.

[Marcia K]

I agree, Brenda. This forum was a life changer for me! I found some help by googling, but I hit the jackpot when I found my Persky people friends!

[humbird753]

That's how it worked for me, Marcia, after getting "some" help by googling, and then I found this forum! So thankful!

[tex]

Thanks for the kind words. They're much appreciated.

Tex

[JFR]

Without this forum I shudder to think what my life would be like. This forum took me from being housebound to having a life. I will be forever grateful.

Jean

[Janie]

DITTO for me too!!!! Though my GI Doctor never poo pooed anything and also told me to take any help that I could find. Said it was a nasty disease physically and emotionally.

[humbird753]

Jean, I agree! I don't know where I would be today if it hadn't found this forum. Housebound and in the bathroom, I'm sure.

Main point of my comment is that someone in the medical field not only acknowledged but agreed with all the great advice I found here. Prior to my last appointment they pretty much shook their heads every year when I went in for my physical - which was for 10 years.

[dhouts]

Same for me!

When I was first diagnosed, after 3 years of symptoms but not willing to go through a sigmoidoscopy, then caving in and getting it done, my sister told me not to go looking for a support group. They're all negative and scary, she said. And no more traveling outside of the country, she said.

So, for six years I managed this alone. While waiting for test results after my 3rd colonoscopy, I decided to look for a support group and this is the place I fell into. So, so thankful that I did. Here, I discovered the benefits of bone broth, vitamin D & magnesium, the importance of being completely gluten, dairy, & soy free, and EnteroLab. I read the book, I asked questions, and most of all, there was never anything negative. As the fog lifted and my brain cleared, I began to understand how to make my life better. I had a visit with GI #4; we reviewed my story, my journey with this disease, and she was pleased to hear that I had this under control and that I was as informed as I was. Keep on doing what you're doing, she said. That was three years ago and I doubt that she would even remember me if I saw her again. All that to say that if I hadn't found this group, I'd probably be in her office quite often.

I don't post all that often these days but I still log in and read the posts and I continue to learn. BTW, I've traveled to Cuba twice but don't let my sister know that

[Grahm]

Same goes for me.

I was diagnosed in 2014 and I think I might’ve died if not for Tex and this board. I was so sick and just kept losing weight. I did the EnteroLab testing and read for weeks from this board.

Thanks again Tex for all you do!!!

Love, Connie