Best place to introduce myself and ask general questions?

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Lui
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Joined: Wed Feb 12, 2020 7:46 pm
Location: Northern California

Best place to introduce myself and ask general questions?

Post by Lui »

I've been lurking for about a week, so thought it time to put on my big-girl panties (brown, of course) and introduce myself. WOW! What an amazing resource you all are!
Where's the best place to post an intro and ask general questions?
Best,
Lui
Collagenous Colitis diagnosis February 2020
Marcia K
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Post by Marcia K »

HI, Lui. Welcome to our internet family. You are in the right place to ask questions. This is the best group around to help you on your journey! They have all helped me so much!
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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carolm
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Post by carolm »

Hi Lui,
This Main Message Board is a the right place to introduce yourself and ask questions.

Welcome-
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
CathyMe.
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Post by CathyMe. »

Welcome Lui. You'll find a great amount of information here and a supportive place to ask questions.
Grahm
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Post by Grahm »

Hi Lui,

Welcome aboard, you’ll love this board.

Love,
Connie
Live, Laugh & Love Much
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Erica P-G
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Post by Erica P-G »

Welcome Lui,
May you find many answers to all your questions here :smile:
Cheers
Erica
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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Lui
Posts: 17
Joined: Wed Feb 12, 2020 7:46 pm
Location: Northern California

Thank you for the warm welcome!

Post by Lui »

I apologize-I didn't think I'd had any responses to this, so I wrote an intro on the Main Message Board just now. Thank you, Erica, Connie, Cathy, Marcia & Carol!
Best, Lui
Collagenous Colitis diagnosis February 2020
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kittycolitis
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Joined: Sun Apr 23, 2017 12:16 pm

Doctors, Tests and Circles

Post by kittycolitis »

Hi, I have been lurking around this forum for 4 years. I've tried so many things to get this under control. I have read of others who must have the same doctor I have, i.e." doesn't matter what you eat". I did have tests that told me I was NOT gluten intolerant ( biopsy) and other than knowing certain sweeteners like inulin and maltitol blow me up, EVERYTHING else is in and out of me with great urgency within 1 day or less. I am currently doing a 5-day fasting-mimicking diet from Doctor Valter Longo. The last time I did it, I had 1 actual " norman". And then as soon as I started eating again, WHAM. This time I am going to go very slow, eat rice for a day, try some Kitchari, and see if easing into some foods will help me know what is happening.

I've been on Entocort trials and every other type of medicine they can throw at me, nothing has worked. I also don't have a gall bladder and wonder if Keto, which I also had been adhering to was contributing, what with coconut oil and lots of fat.

I will post when I'm through the fasting-mimicking diet, by the weekend, and as I try new foods. The coronavirus lockdown has me thinking I might be able to stick to paying attention to my body for a change!

Any ideas on the BEST way to test for food intolerances? I became intolerant of avocados 15 years ago after enjoying forever; then raw spinach. Now bananas. They are the only foods I actually know make me sick.
Thanks for listening!
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tex
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Post by tex »

When testing new foods, try them one at a time for three days, starting with a small portion and increasing the amount each day, If you don't react by the third day, that food is safe, and can be added to your diet. If you react, you'll need to get settled again, before trying another food.

The fact that you have no gallbladder grabbed my attention. Have you tried cholestyramine lately (The original Sandoz formulation, not some other brand, or a Lite version). You will have to experiment to find the correct dose, starting with a couple packs each day (divided between morning and night), and working up. It often works in seemingly hopeless cases. We have one member in a situation similar to yours who found that it takes seven packets per day in her case, but she gets good control, and now she can eat virtually anything.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kittycolitis
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Post by kittycolitis »

I'm just checking to see if the reply works after clearing the cache and cookies. And if it works here what I wanted to say:

I had two other ideas I wanted her to try for me. I'm desperate. What about Fecal bile acid test, and Serum 7C4 test, I know without a gall bladder, we had discussed bile acid malabsorption. I tried cholestyramine but can't stand the orange taste. I wonder if anyone has had these tests( Ill do a search on site) or if there is a natural swap for cholestyramine?

Thanks again for your help, Tex!
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tex
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Post by tex »

You're very welcome. I don't know of a way to mask the taste of cholestyramine. Maybe someone else does.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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