Update

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Post Reply
Vandolyn
Little Blue Penguin
Little Blue Penguin
Posts: 47
Joined: Tue Dec 25, 2012 7:33 pm
Location: Keller, TX

Update

Post by Vandolyn »

It has been awhile since I posted. A bit of history - I started the diarrhea in 2004. No one had any idea and I just suffered until my colonoscopy in 2008. I was diagnosed with LC then. My GI doctor (just like the rest) did the 6 week Pepto and that did nothing. I then tried the beauticied drug for 90 days and that did not help. In 2012, a lady used the word microscopic colitis to me. I started researching and found Tex book. That book changed my life. I did the Enterolab tests in January, 2013. I only had a gluten intolerance and that was it. Got off gluten and with the help of this forum, got my diet changed. I had no diarrhea for 5 years. In January, 2018, I went to a new doctor. She had me on 28 different supplements. (She sells them). The diarrhea started and I could not stop it. Finally after coming back to this forum, I realized I had to stop them. I did and along with a new doctor I again stopped the diarrhea.

Where I am today - I am sitting in the recliner with a fractured left femur. The doctor before the one mentioned above did not believe in taking calcium. Nor she did she send me for a bone density. Finally, in 2017, I asked for one and it was really bad. I had osteoporosis. I started seeing an Endocrinologist in 2018. He did the ReClast. I was due to see him again on September 3rd.

I fell in our bedroom on the evening of August 8th and fractured this femur. I had surgery on the 9th. I received a great report on Thursday from my doctor. However, I can only do 50% of my weight on this leg for the next 5 weeks. I say this to all of you to encourage everyone of you to get the diarrhea stopped as quickly as you can. It can and will happen to you.

Tex, if you have any suggestions for me, I am certainly open. I say that to all of you. I am still buying Tex books to give as gifts as I run across people who have our issue.

God bless all of you on this journey. Do not be discouraged.

Vandolyn
User avatar
tex
Site Admin
Site Admin
Posts: 35068
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Hello Vandolyn,

Thank you for the update. That should be very helpful for others in a similar situation.

Regarding the osteoporosis, gluten sensitivity is the primary cause of osteoporosis. Another cause is a low vitamin D level. We can't absorb the calcium in our food (or in any supplements) if we don't have a good vitamin D level. And we also have to have a good magnesium level in order to enable our bodies to transport the calcium from our bloodstream to our bone cells, after we absorb it. Both magnesium and insulin are necessary to transport nutrients from our bloodstream to our cells, where they're needed.

The role of magnesium in the prevention of osteoporosis is something that very few doctors seem to understand. Consequently they mistakenly prescribe more calcium to prevent osteoporosis, when they should be prescribing more vitamin D and/or magnesium, instead. The bisphosphonates only harden bone, making it more brittle. To make bones stronger (without becoming brittle) we have to keep our vitamin D and magnesium levels up. This will add new bone cells and strengthen bones the way that nature intended.

Thanks again, for the update.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Vandolyn
Little Blue Penguin
Little Blue Penguin
Posts: 47
Joined: Tue Dec 25, 2012 7:33 pm
Location: Keller, TX

Post by Vandolyn »

Thank you, Tex. Both doctors were all over the Vitamin D levels. Mine have been good for several years. They were not on the magnesium levels. I learned from you on this forum. Thankfully, we have this forum.

The endocrinologist tells me I cannot reverse this osteoporosis. I hope he wrong!!
User avatar
tex
Site Admin
Site Admin
Posts: 35068
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

I believe a few other members of this forum have been able to reverse an osteoporosis problem, at least slightly. Are you aware that while bisphosphonates (such as Reclast) may reduce the risk of a hip fracture, they're associated with an increased risk of femur fractures?

Bisphosphonates and Mid-Thigh Fractures

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Vandolyn
Little Blue Penguin
Little Blue Penguin
Posts: 47
Joined: Tue Dec 25, 2012 7:33 pm
Location: Keller, TX

Post by Vandolyn »

Tex, no I did not know that! I have already told the endocrinologist no more ReClast. That really makes me angry that he would prescribe ReClast. Do you or someone else have a suggestion for a drug that might help.
Vandolyn
Little Blue Penguin
Little Blue Penguin
Posts: 47
Joined: Tue Dec 25, 2012 7:33 pm
Location: Keller, TX

Post by Vandolyn »

Tex, will you please direct me to something that tells me ReClast could increase the risk of femur fractures. This is frightening a UT Southwestern doctor would prescribe this!

Vandolyn
User avatar
tex
Site Admin
Site Admin
Posts: 35068
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Here's a link to a medical study that was published in 2015:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4480549/

Doctors almost always ignore adverse effects of drugs by claiming that only a small percentage of patients are affected. But brittle bones is not the only issue with bisphosphonates. They also destroy (rot) the jawbones of some patients.

Here's a link to an article from the Mayo Clinic that discusses the risk:

https://www.mayoclinic.org/diseases-con ... q-20058121

That said, since you broke your femur in a fall, Reclast may not have been responsible. Many of the breaks caused by bisphosphonates occur without a fall. Just the weight of the body may cause a fracture. But bisphosphonates definitely make bones brittle, so it probably contributed to your fracture. They're not nice drugs, because they prevent bones from healing whenever they're damaged in any way.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Vandolyn
Little Blue Penguin
Little Blue Penguin
Posts: 47
Joined: Tue Dec 25, 2012 7:33 pm
Location: Keller, TX

Post by Vandolyn »

Thank you! I really appreciate everything you do.

Vandolyn
Vandolyn
Little Blue Penguin
Little Blue Penguin
Posts: 47
Joined: Tue Dec 25, 2012 7:33 pm
Location: Keller, TX

ReClast

Post by Vandolyn »

I am looking for something to take for osteoporosis since the ReClast has probably caused this femur fracture. I found Ostinol. Has anyone tried that and if so, had any results with it.

Thank you,
Vandolyn
brandy
King Penguin
King Penguin
Posts: 2909
Joined: Sun Oct 16, 2011 9:54 am
Location: Florida

Post by brandy »

Vandolyn,

Look into strontium. You can buy it on line. I think the standard dose is 680 mg per day.
I've taken the 680 dose and also a half dose. Generally it is recommended to take it away
from meals. I ignore that and take it with a meal like I do with all supplements.
Do not buy it from algaecal. This is a ripoff website that prays on senior citizens.

NOTE: Strontium IS CONSIDERED CONTROVERSIAL. Do your own research. Make your own decision.

http://strontiumforbones.blogspot.com/2 ... trial.html

The inspire osteoporosis forum is worth a read. Most of the discussion is about prescription drugs.
Vandolyn
Little Blue Penguin
Little Blue Penguin
Posts: 47
Joined: Tue Dec 25, 2012 7:33 pm
Location: Keller, TX

Post by Vandolyn »

Thank you Brandy. I will look into it.

I did see my doctor yesterday and he said fracture was not caused by ReClast. That made me feel better.
Post Reply

Return to “Main Message Board”