Hello, again, CAROL - How grateful I am for you sharing your experience with me! I know it takes time from your day, so as I mentioned to TEX, I do take it quite seriously and feel immense gratitude to you for offering me this invaluable assistance!
About Lialda - Thanks for telling me about what happened to you. TEX cautioned me about it also and about not being on 2 such meds simultaneously. I AM going to get off this Lialda! I Cut back from 4 to 2 again.
Do you (or TEX) think it would be ok to stop Lialda all at once, after taking 2 daily for 5 years? Or is cutting back slowly better? (I'm still on Budesonide)
While you were on the Budesonide, had you received the Entero Lab Test results yet, so you already knew what foods to include safely while still in your early stages of "D"? (I did order the tests again and am waiting for the kit)
How long does someone safely stay on Budesonide? 3 to 6 months or more?
Thank you so much!
TREESE
PLEASE Help Get Me Re-Started
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
CAROL and TEX
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Treese
Here are my thoughts:
Tex
Here are my thoughts:
If you have been taking Lialda (mesalamine) for 5 years, that greatly increases the odds that you may have developed a sensitivity to it, or your body may have developed a tolerance for it so that it is no longer effective for you. mesalamine is not a steroid, so you can stop it cold turkey at any time without any health risks. The reason why we can't stop taking steroids (like budesonide) cold turkey after we have been using them for a long time is because steroids alter our adrenal glands' ability to produce cortisol, so that if we stop taking them suddenly, we will be short of cortisol, and that will severly mess with our minds and general ability to function as a human being.Treese wrote:Do you (or TEX) think it would be ok to stop Lialda all at once, after taking 2 daily for 5 years? Or is cutting back slowly better? (I'm still on Budesonide)
We have a few members who have been using budesonide in reduced doses for 10 years or more, with no problems.Treese wrote:How long does someone safely stay on Budesonide? 3 to 6 months or more?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
CHICKEN AND RICE RATIO
TEX, again what you have said about the Lialda and Budesonide makes perfect sense to me!
TEX or CAROL, this question will really help me zero in now, thanks to both of you and your patience with me:
Regarding my frequent small meals of chicken and rice throughout the day and trying to now gain some weight back; I usually have much more of the rice than the chicken per meal for fear of the "D" returning. I figure the rice is more binding. BUT....
Can I also increase the amount of chicken safely now and go easier on the rice? Have them in equal amounts? Or, just keep going heavier on the rice for its binding factor?
And secondly: I am still just boiling the chicken on the stove. I have not used any fats to be able to cook it in the oven at all yet. Can I begin to cook it in the oven with some coconut or olive oil? Or must the "D" be gone totally first before that may begin?
I risk sounding like a very foolish person by asking these questions sometimes, but I must know and it's worth the risk. Thank You!
Thank you soooo much!
TREESE
TEX or CAROL, this question will really help me zero in now, thanks to both of you and your patience with me:
Regarding my frequent small meals of chicken and rice throughout the day and trying to now gain some weight back; I usually have much more of the rice than the chicken per meal for fear of the "D" returning. I figure the rice is more binding. BUT....
Can I also increase the amount of chicken safely now and go easier on the rice? Have them in equal amounts? Or, just keep going heavier on the rice for its binding factor?
And secondly: I am still just boiling the chicken on the stove. I have not used any fats to be able to cook it in the oven at all yet. Can I begin to cook it in the oven with some coconut or olive oil? Or must the "D" be gone totally first before that may begin?
I risk sounding like a very foolish person by asking these questions sometimes, but I must know and it's worth the risk. Thank You!
Thank you soooo much!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Hi Treese,
There are no dumb questions concerning controlling MC. It's always better to ask, than to suffer because of a poor choice.
This is just my opinion, but I believe that it's OK to prepare safe foods in a variety of ways, and it certainly helps to make it more appealing, sometimes. The food should still be safe, as long as nothing is added to make it unsafe. Adding a safe oil should be OK, as long as you don't overdo it. Baking, broiling, grilling, etc., are all fine. Just remember to cover the grill with foil when grilling, in case there are any gluten residues on the grill.
Regarding portions (or serving size), healing our intestines requires extra protein, so the more protein we can ingest, the faster we should be able to recover. Meat is a much better protein source than rice. Some members here have recovered eating an almost 100 % meat diet, but to do that you have to remember to eat some fat, also, or you will develop what they call protein poisoning (or rabbit starvation). Eating fatty meat is sufficient, because it contains all the essential amino acids. Humans can thrive on a diet of protein and fat alone. Carbs are entirely unnecessary for good health.
Tex
There are no dumb questions concerning controlling MC. It's always better to ask, than to suffer because of a poor choice.
This is just my opinion, but I believe that it's OK to prepare safe foods in a variety of ways, and it certainly helps to make it more appealing, sometimes. The food should still be safe, as long as nothing is added to make it unsafe. Adding a safe oil should be OK, as long as you don't overdo it. Baking, broiling, grilling, etc., are all fine. Just remember to cover the grill with foil when grilling, in case there are any gluten residues on the grill.
Regarding portions (or serving size), healing our intestines requires extra protein, so the more protein we can ingest, the faster we should be able to recover. Meat is a much better protein source than rice. Some members here have recovered eating an almost 100 % meat diet, but to do that you have to remember to eat some fat, also, or you will develop what they call protein poisoning (or rabbit starvation). Eating fatty meat is sufficient, because it contains all the essential amino acids. Humans can thrive on a diet of protein and fat alone. Carbs are entirely unnecessary for good health.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
TEX - SAFE Fat in SAFE Foods
Oh my Gosh, TEX, I have making a mess of myself and of my Recovery. I have been living solely on white rice and boiled Chicken Breasts Only with no oil or anything added except salt. I thought Diarrhea equaled Binding Rice primarily. PLEASE, help me! At my age, I am so fearful now of my weight loss and seeming lack of response to the meds that I just don't know anymore what to do or to try next.
Please help me understand as Exactly as possible just What you are considering Fatty Meats?
Since Chicken seems ok, do you consider Fatty Meats OTHER parts of the Chicken besides the Breasts? Like the drumsticks or thighs? Could I then cook a chicken in the oven with a bit of coconut oil? At least a place to start! (I had been eating only the Breasts because I was careful about cholesterol in the other parts. But I take a pill for the cholesterol now and I'm ok) So, Is the Above a Good Start?
And is Margarine a safe fat in small amounts? All I use now is Salt. Can I use Margarine now, just for a more varied starter program? Anything else?
Please don't refer me to a Chart just yet because I fear in my present state, I would not be able to decipher it and You yourself already know my actual situation.
I pray I am not taking advantage of your time. I know there are so many other people who also need your guidance besides myself. I just feel so desperate, and my GI just keeps wanting to send me for more tests and frankly I am just too weak to keep running around in that way.
God Love You and Bless You, TEX! Thank You!
TREESE
Please help me understand as Exactly as possible just What you are considering Fatty Meats?
Since Chicken seems ok, do you consider Fatty Meats OTHER parts of the Chicken besides the Breasts? Like the drumsticks or thighs? Could I then cook a chicken in the oven with a bit of coconut oil? At least a place to start! (I had been eating only the Breasts because I was careful about cholesterol in the other parts. But I take a pill for the cholesterol now and I'm ok) So, Is the Above a Good Start?
And is Margarine a safe fat in small amounts? All I use now is Salt. Can I use Margarine now, just for a more varied starter program? Anything else?
Please don't refer me to a Chart just yet because I fear in my present state, I would not be able to decipher it and You yourself already know my actual situation.
I pray I am not taking advantage of your time. I know there are so many other people who also need your guidance besides myself. I just feel so desperate, and my GI just keeps wanting to send me for more tests and frankly I am just too weak to keep running around in that way.
God Love You and Bless You, TEX! Thank You!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Sure, the dark meat on a chicken (or turkey) has some fat. Lamb cuts have fat, maybe too much, sometimes, for someone in recovery, but you can trim some fat, if it seems to make your diarrhea worse. Margarine is probably safe, as long as it's a safe brand and type.
I can't remember everyone's medical status. Your doctor has your medical record in front of him/her whenever you make a visit, but I don't have that advantage. Have you had an EnteroLab test lately (in the last year or so)? Those results would tell you exactly which foods are safe, and which ones are not. If you don't want to lose any more weight, then you'll need to continue to eat a lot of rice. Grains are the most fattening category of foods available (other than sugar).
Tex
I can't remember everyone's medical status. Your doctor has your medical record in front of him/her whenever you make a visit, but I don't have that advantage. Have you had an EnteroLab test lately (in the last year or so)? Those results would tell you exactly which foods are safe, and which ones are not. If you don't want to lose any more weight, then you'll need to continue to eat a lot of rice. Grains are the most fattening category of foods available (other than sugar).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
TEX and Entero Labs
Good Morning from NY, TEX - The Lab is moving so there may be a delay in getting the results back. But the Entero Lab Test Kit you asked me about should get to me by the weekend. It will be my 2nd; the original one being back in 2015.
I ordered this 2nd one because this flare-up is so much worse than the original one of 5 years ago.
TEX, If all I have eaten for months is chicken and rice though, will the Entero Labs still be able to detect my areas of sensitivity?
Gratefully,
TREESE
I ordered this 2nd one because this flare-up is so much worse than the original one of 5 years ago.
TEX, If all I have eaten for months is chicken and rice though, will the Entero Labs still be able to detect my areas of sensitivity?
Gratefully,
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
BRANDY
Hello, Brandy - I believe you may have offered your guidance to me recently but I neglected to thank you, So, "Thank You" very much and pardon me please for taking so long to do so.
I bought Tex's Book 5 years ago but I am ashamed to say I haven't kept up with it and more than likely forgot a lot of what I read. When I told my Dietician (which I only found 3 years ago) about CC, she told me my CC flare was a fluke and would never happen again and she changed my GF Diet to one that would help me gain more weight. And I suppose I wanted to believe her because I was in denial. That's when I added back gluten in regular bread and dairy and everything I had avoided for the whole 2 years prior.
What a mess I have made of my recovery.
I will read Tex's Book again. I see there is a Newer Version, too. Wish it was on KINDLE too, because I read from flat on my Back (Back Issues keep me from sitting too long)
Bless you, Brandy, and again, so sorry I had failed to acknowledge your kind assistance before now.
TREESE
I bought Tex's Book 5 years ago but I am ashamed to say I haven't kept up with it and more than likely forgot a lot of what I read. When I told my Dietician (which I only found 3 years ago) about CC, she told me my CC flare was a fluke and would never happen again and she changed my GF Diet to one that would help me gain more weight. And I suppose I wanted to believe her because I was in denial. That's when I added back gluten in regular bread and dairy and everything I had avoided for the whole 2 years prior.
What a mess I have made of my recovery.
I will read Tex's Book again. I see there is a Newer Version, too. Wish it was on KINDLE too, because I read from flat on my Back (Back Issues keep me from sitting too long)
Bless you, Brandy, and again, so sorry I had failed to acknowledge your kind assistance before now.
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Yes, unless you've been taking budesonide for a long time (like about a year or more).Treese wrote:TEX, If all I have eaten for months is chicken and rice though, will the Entero Labs still be able to detect my areas of sensitivity?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
It is available on kindle.Treese wrote:Wish it was on KINDLE too, because I read from flat on my Back (Back Issues keep me from sitting too long)
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
TEX - Both Books on Kindle!
Hello, Tex! I am Very glad to hear that Both your Books are also available on Kindle! For me, that makes ALL the difference, as I have a Kindle Bed Stand that I set right over me, so I can read laying down instead of sitting, which now causes me Back Pain! I do have your 1st Book in Book form, but I was able to sit longer back then when I bought it.
And, I want to thank you for letting me know that the Entero Lab Tests will still be able to detect my food sensitivities even though I have only been eating chicken and rice for months now. And I'm only on Budesonide 3 months, so that should me fine, too.
Thanks again for all this incredibly helpful information!
I'll be in touch soon, I'm sure!
Bless You,
TREESE
And, I want to thank you for letting me know that the Entero Lab Tests will still be able to detect my food sensitivities even though I have only been eating chicken and rice for months now. And I'm only on Budesonide 3 months, so that should me fine, too.
Thanks again for all this incredibly helpful information!
I'll be in touch soon, I'm sure!
Bless You,
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Treese,
I can't guarantee that EnteroLab will be able to detect all food sensitivities if you've been avoiding those foods for years, but normally they can, because you will probably have been exposed to enough traces occasionally to keep your immune system producing at least low levels of those antibodies. The main point is, any food, or foods in your current diet that is/are causing you to react, will show up in the results. That's what you desperately need at the moment.
If any old food sensitivities are not detected, that's not a problem. You might no longer be sensitive to them. But in case you're still sensitive to them, after you've been in remission for a while, you can try those foods, one at a time, to see if you still react to them. If you don't react after trying them for 3 days, you're probably OK with them now.
Buy the way, whenever you buy a printed book that I wrote from Amazon, you should be able to also download the Kindle version, free of charge, at least that's the way I usually set up my books that are for sale on Amazon.
Tex
I can't guarantee that EnteroLab will be able to detect all food sensitivities if you've been avoiding those foods for years, but normally they can, because you will probably have been exposed to enough traces occasionally to keep your immune system producing at least low levels of those antibodies. The main point is, any food, or foods in your current diet that is/are causing you to react, will show up in the results. That's what you desperately need at the moment.
If any old food sensitivities are not detected, that's not a problem. You might no longer be sensitive to them. But in case you're still sensitive to them, after you've been in remission for a while, you can try those foods, one at a time, to see if you still react to them. If you don't react after trying them for 3 days, you're probably OK with them now.
Buy the way, whenever you buy a printed book that I wrote from Amazon, you should be able to also download the Kindle version, free of charge, at least that's the way I usually set up my books that are for sale on Amazon.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
TEX - Kindle and Entero Labs
Hi, Tex -
Most Sincerely,
TREESE
I went to the Amazon Site where I purchased your 1st Book from and I logged in. It reminded me that I last purchased the Book in August of 2015, but they would not allow me to download the KINDLE version for Free as you kindly suggested I try. They are asking an additional $22.49 for the Kindle version. I'm just letting you know in case anyone else should ask you. :) Thank You!Buy the way, whenever you buy a printed book that I wrote from Amazon, you should be able to also download the Kindle version, free of charge, at least that's the way I usually set up my books that are for sale on Amazon.
Most Sincerely,
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Hi Treese,
That option wasn't available (either to sellers or buyers) back when the original version was published (in 2012). I don't remember when they made it available to sellers, I just know that I choose that option whenever I upload a new book on Amazon.
That problem may have originated because Createspace originally operated as a separate division to allow sellers to upload books to Amazon. A few years ago (I don't remember when), Amazon took over that operation and eliminated Createspace, so that now, books are uploaded directly to Amazon.. Most likely, Createspace did not offer that option on any books uploaded when they were still in operation.
Sorry for the misunderstanding. The updated version of the book was uploaded in February of 2018, and I "think" that was after Amazon took over Createspace, but I'm not positive. The takeover happened at about that period of time, as best I can remember.
Tex
That option wasn't available (either to sellers or buyers) back when the original version was published (in 2012). I don't remember when they made it available to sellers, I just know that I choose that option whenever I upload a new book on Amazon.
That problem may have originated because Createspace originally operated as a separate division to allow sellers to upload books to Amazon. A few years ago (I don't remember when), Amazon took over that operation and eliminated Createspace, so that now, books are uploaded directly to Amazon.. Most likely, Createspace did not offer that option on any books uploaded when they were still in operation.
Sorry for the misunderstanding. The updated version of the book was uploaded in February of 2018, and I "think" that was after Amazon took over Createspace, but I'm not positive. The takeover happened at about that period of time, as best I can remember.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.