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MCT oil is known to cause gastric problems in people who have never had problems before which is why I have never been tempted to try it. I do use coconut oil almost every day. There really is no need to push fat when eating keto. For those doing therapeutic keto (epilepsy or cancer perhaps) very high fat is probably beneficial but for the rest of us it's not necessary to eat huge amounts of fat. For me it is keeping the carbs really low that is the critical part. I eat a lot more protein then many of the keto folks recommend but I feel much better with my protein on the high side. If you are eating a keto diet which is just another word for a very low carb diet, it's keeping the carbs low that is important to keep the blood glucose levels low.
Jean
Total Remission on LDN
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Re: Total Remission on LDN
Good to hear you’re doing fine! I will give LDN a try again. A low dose of a low dose can’t hurt. After all those years I’m still struggling to get into remission and taper of the entocort.wmonique2 wrote:Hey friends,
I haven't been here for a while. Wanted to say hi to all my longtime friends and to Tex.
I am now almost 7 years in total remission. I am still taking LDN but a very low dose. 1.5mg. I don't need more.
I am on a keto diet to keep my blood sugars normal. I am T1 since childhood.
I encourage everyone to take LDN. It gave me my life back. It can't hurt. It can only help. It's not dangerous. It's cheap and it's an immune system modulator. I never thought I'd be this healthy again in my darkest days. Give it a try.
And I want to thank Tex for being there for me for 3 years until I found LDN. And all of you for being a wonderful support group.
Much love to all,
Monique
I got my wife in taking LDN. It does wonders to control her Hailey Hailey disease!
Monique, if you are still watching these forums now or later... have you had any side effects from LDN? That was actually what we were considering for my wife but tried Mesalamine first and that's worked to get her into remission. But if she ever switches and needs something else I'm interested in people's experiences.
I’m late joining the conversation....but just wanted to say hello to many old friends on this thread. I’ve been doing okay and am really surprised by that. This has been a very stressful time for many many many reasons and I’m okay. I contribute it to what i have learned from ALL of you. After losing my sister in February and then going into seclusion (virus) immediately after that I have become the ultimate recluse. Thank goodness I had a freezer full of MC friendly foods and have been cooking up a storm! I have my supply of supplements (b,c,D,mag) and a few good friends who check in with me regularly. Not to mention 2 very loving cats! What I’m trying to say is ....you all have been a great source of inspiration and knowledge and I’m here to say thank you. And I’m still in remission, gluten free (forever), Avoiding most spices, but digging my cheese, eggs, and all meats. Love ???? to all of you.
Laura Turner
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"There is a crack in everything. That's how the light gets in". - Leonard Cohen. 1934-2016
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"There is a crack in everything. That's how the light gets in". - Leonard Cohen. 1934-2016
Hi Laura,
Thanks for the update. It's great to see that you're doing so well, especially with the world being turned upside down these days. I'm laying low, too.
Love,
Tex
Thanks for the update. It's great to see that you're doing so well, especially with the world being turned upside down these days. I'm laying low, too.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Hi Tex and old friends here on the Forum.
I checked in today looking for diet ideas for my 49 year-old son. He undoubtedly has MC and has had it for at least 7+ years. (My mother also had MC) He’s finally taking it seriously (I hope) and he promises he will see a new GI, stop eating gluten etc. I bought him your book years ago. He read it but has never seriously tried to stick to a GF diet or do any of the things I’ve suggested. What else is new? LOL
I’ve been in remission about 8 years. I got there on a Paleo diet and budesinide. Over the years I’ve had to add some grains and potatoes back into my diet in order to stop losing weight. As I get older more food items cause issues and my diet shrinks ever smaller.
There is no doubt in my mind that Tex and this Forum is responsible for me finding a path to remission. You and this Forum are a blessing to all who suffer with this awful disease.
Glad to hear that Monique is doing well on LDN. I take LDN for Sjogrens and it absolutely helps some symptoms.
Stay well, Tex and glad to see some familiar faces from years ago on the Forum.
Sheila W
I checked in today looking for diet ideas for my 49 year-old son. He undoubtedly has MC and has had it for at least 7+ years. (My mother also had MC) He’s finally taking it seriously (I hope) and he promises he will see a new GI, stop eating gluten etc. I bought him your book years ago. He read it but has never seriously tried to stick to a GF diet or do any of the things I’ve suggested. What else is new? LOL
I’ve been in remission about 8 years. I got there on a Paleo diet and budesinide. Over the years I’ve had to add some grains and potatoes back into my diet in order to stop losing weight. As I get older more food items cause issues and my diet shrinks ever smaller.
There is no doubt in my mind that Tex and this Forum is responsible for me finding a path to remission. You and this Forum are a blessing to all who suffer with this awful disease.
Glad to hear that Monique is doing well on LDN. I take LDN for Sjogrens and it absolutely helps some symptoms.
Stay well, Tex and glad to see some familiar faces from years ago on the Forum.
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Hi Sheila,
It's nice to see a post from you again. I agree with you about the diet trends — I find my diet selections slowly decreasing as I get older, but I still manage to get plenty to eat. Since I don't eat out, staying out of circulation is easy enough to do. Covid-19 has caused very little change in my life, because I rarely went anywhere even before it came along, thanks to MC. I can see how the restrictions are a nightmare for younger people, though (which probably includes everyone else on the forum).
Tex
It's nice to see a post from you again. I agree with you about the diet trends — I find my diet selections slowly decreasing as I get older, but I still manage to get plenty to eat. Since I don't eat out, staying out of circulation is easy enough to do. Covid-19 has caused very little change in my life, because I rarely went anywhere even before it came along, thanks to MC. I can see how the restrictions are a nightmare for younger people, though (which probably includes everyone else on the forum).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Sheila, Consider some of the paleo websites/books for your son. Rob Wolf has UC and went into remission eating paleo. You might also refer your son to Gluten Dude's website.
The paleo websites are all pretty machismo and recommend abstaining from gluten.
It is becoming more and more machismo for men to go gluten free. You might also read up on
Novac Djokovic and his diet. https://www.gq.com.au/fitness/health-nu ... faba61224b
https://www.independent.co.uk/sport/ten ... 75333.html
The paleo websites are all pretty machismo and recommend abstaining from gluten.
It is becoming more and more machismo for men to go gluten free. You might also read up on
Novac Djokovic and his diet. https://www.gq.com.au/fitness/health-nu ... faba61224b
https://www.independent.co.uk/sport/ten ... 75333.html
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Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Thanks, Brandy. I’ll give him the websites you recommended.
Chris is a tennis pro and when Novak began talking about going gluten free, Chris certainly noticed. Chris is single and doesn’t cook. He is pretty clueless about food and has never been particularly interested in food. I think he has always been gluten intolerant starting in infancy. His digestive issues had him on a strict rice cereal, veal and pear regimen plus soy milk.
I’ve done everything from stocking his refrigerator with GF food that could be microwaved to researching food delivery services. Finally, he is ready to do something concrete to stop the D. I hope he is serious enough this time and will take all the steps needed to get his MC under control. There is definitely a macho component to his resistance to offers of help.
As always, PP come through with help when needed. Thank you.
Sheila W
Chris is a tennis pro and when Novak began talking about going gluten free, Chris certainly noticed. Chris is single and doesn’t cook. He is pretty clueless about food and has never been particularly interested in food. I think he has always been gluten intolerant starting in infancy. His digestive issues had him on a strict rice cereal, veal and pear regimen plus soy milk.
I’ve done everything from stocking his refrigerator with GF food that could be microwaved to researching food delivery services. Finally, he is ready to do something concrete to stop the D. I hope he is serious enough this time and will take all the steps needed to get his MC under control. There is definitely a macho component to his resistance to offers of help.
As always, PP come through with help when needed. Thank you.
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Novak has a book on eating GF.
https://www.amazon.com/dp/B00EALI6IS/re ... TF8&btkr=1
I have not read it.
Novak really credits his world class performance to going gluten free.
https://www.amazon.com/dp/B00EALI6IS/re ... TF8&btkr=1
I have not read it.
Novak really credits his world class performance to going gluten free.
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Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Thanks, Brandy.
Chris bought Novak’s book and read it. It didn’t change his eating habits then. He’s finally reached a point where he’s so tired of the diarrhea and the impact on his life, he’s ready to do something about it. He is divorced and knows dating with D is pretty impossible.
Sheila W
Chris bought Novak’s book and read it. It didn’t change his eating habits then. He’s finally reached a point where he’s so tired of the diarrhea and the impact on his life, he’s ready to do something about it. He is divorced and knows dating with D is pretty impossible.
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
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Pebbledash
- Gentoo Penguin
- Posts: 260
- Joined: Sun Aug 11, 2013 1:37 pm
Hi Paul,
People seem to use LDN for various periods of time, depending on their perceptions of their needs. Some probably use it indefinitely.
The basic theory behind the use of LDN is that ideally, it resets the immune system every day, during the wee hours of the morning. I've never tried it personally, but my impression from reading posts by most users among our membership here, is that LDN significantly helps to control pain and various other autoimmune issues, but it doesn't seem to actually help suppress MC, per se.
It appears to be quite beneficial for many other AI diseases, however. Some of those patients really swear by it. So it seems to me that if some other AI issue is preventing remission from MC, then LDN may be a pathway to remission for MC. But if other AI issues are absent, then it seems to provide few benefits for MC, alone. At least, that's my impression.
Tex
People seem to use LDN for various periods of time, depending on their perceptions of their needs. Some probably use it indefinitely.
The basic theory behind the use of LDN is that ideally, it resets the immune system every day, during the wee hours of the morning. I've never tried it personally, but my impression from reading posts by most users among our membership here, is that LDN significantly helps to control pain and various other autoimmune issues, but it doesn't seem to actually help suppress MC, per se.
It appears to be quite beneficial for many other AI diseases, however. Some of those patients really swear by it. So it seems to me that if some other AI issue is preventing remission from MC, then LDN may be a pathway to remission for MC. But if other AI issues are absent, then it seems to provide few benefits for MC, alone. At least, that's my impression.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Pebbledash
- Gentoo Penguin
- Posts: 260
- Joined: Sun Aug 11, 2013 1:37 pm
Hi Tex,
What you said amounts to what I found out in my cursory research--that it seems to be particularly helpful for those like me who have other AI conditions. Thank you.
I definitely want to try this--I'm on 2xbudesonides per day, but in a state of permanent management.
I would love to hear from anyone about their dosage and how they take it. I guess I would start on 1.5 mg which seems to be the lowest dose.
I'll reach out to my GI today.
Cheers,
Paul
What you said amounts to what I found out in my cursory research--that it seems to be particularly helpful for those like me who have other AI conditions. Thank you.
I definitely want to try this--I'm on 2xbudesonides per day, but in a state of permanent management.
I would love to hear from anyone about their dosage and how they take it. I guess I would start on 1.5 mg which seems to be the lowest dose.
I'll reach out to my GI today.
Cheers,
Paul