PLEASE Help Get Me Re-Started

[TREESE]

Hi TEX - So sorry for not knowing you had replied to my Post or I would have replied promptly back to you. I just discovered it today.

We were talking about your Book being available on Kindle FREE if it had already been purchased. I had discovered that Amazon was no longer honoring that agreement and you explained why...

Sorry for the misunderstanding. The updated version of the book was uploaded in February of 2018, and I "think" that was after Amazon took over Createspace, but I'm not positive. The takeover happened at about that period of time, as best I can remember.

I just wanted to let you know that it was not a problem and that your Books are worth every penny regardless!

Thanks for All you do for All of us!
TREESE

[TREESE]

Hello Forum Friends and TEX and Carol - Just got my Entero Lab results back. That was super fast! These were my 2nd Tests. The first were in 2015.

I am not going to ask you about every single thing on them. But maybe your thoughts on the Nut sensitivities and the Soy situation.

Of the 4 Columns that list the Reactivity, every one of the 7 major foods tested came back, "No Significant Immunological Reactivity".

The 1+ was for OATS (which I knew from 2015 and I thought I had been avoiding all this time)
The 2+ was for ALMONDS and CASHEWS
The 3+ was for WALNUTS
(2015 did Not show Almonds OR Walnuts but I Did eat much more of them this year)

Fecal Anti-SOY IgA was 12 instead of under 10. (SOY Reactivity)
Fecal Anti-Gliadin IgA was 13 instead of under 10 (GLUTEN Elevated)

QUESTIONS please:
1) Can I still eat PEANUT BUTTER? Or do the results indicate that basically ALL Nuts are out? Peanut Butter helps me keep weight on and I basically ate it every day. But yet, no sign of Peanut reactivity on the test results.

2) SOY being a 12 this time, is that considered a slight reactivity or do I need to get a SOY App to Scan Foods for Soy now? I have no idea what has Soy in it because in 2015, my 1st Labs showed only 3 Units, Normal being under 10.

3) Is a 3+ the Highest Reactivity you can be at?

I welcome your thoughts and experience, if you will kindly share them with me.

Thank You so much!
TREESE

[Gabes-Apg]

my thoughts on peanut butter

peanuts are legume (the same as soy) given your soy result i would avoid all legumes

regarding the soy app etc
if you are eating whole foods (good protein sources such as meat, and well cooked veges), which are recommended for maximum healing etc, then you should have minimal contact with soy.

in relation to soy, the other place to check products is bathroom / makeup - avoid anything with Vit E in it.
we have lots of lists of 'SAFE' brands and products.

in line with what we put in our bodies, the same applies for bathroom, make up, moisterisers etc the minimal amount of ingredients in the product the better off you will be.
for moisturizing I use: - unscented shea butter, rosehip oil, coconut oil.

[tex]

Sorry Treese,

I got side-tracked on a couple of other projects, and I somehow missed seeing your post. In addition to what Gabes posted, Jean created a list of soy derivatives 15 years ago. It's still probably accurate if you want to check ingredients in anything for suspected soy content. You can find the list here.

That score of 13 for anti-gliadin antibodies is almost surely the main reason why you're in a flare that you can't seem to stop. Gluten is somehow sneaking into your diet, probably as cross-contamination. Are you eating out, or eating any commercially-processed foods?

Looking at your nut scores, all those at levels of 2 and 3 should be avoided. Yes, 3 is max. You might try pistachios or sunflower butter, to see if they might work, but you need to be in remission to be able to do that. While trying to recover, you can't be testing foods, or you may never be able to recover.

Your biggest problem appears to be gluten. You need to figure out where that's coming from.

Tex

[TREESE]

Hello, Gabes and TEX - You are such lifesavers, bless you! Your information is spot on almost Everytime!

We were discussing Soy and Nuts. I saw the List Gabes spoke of about products containing SOY. Thanks, Gabes!

TEX and Gabes; my EnteroLabs had a 2+ for ALMONDS and CASHEWS and 3+ for WALNUTS. Nothing involving Peanut Butter. So I asked you both about Peanut Butter. Gabes mentioned Nuts being LEGUMES.

QUESTIONS:
1) What about Milk Alternatives such as Almond Milk? My 2+ for Almonds and Cashews means to exclude even Almond Milk?
2) Is Hemp or Rice Milk safe then? I had no reactivity to Rice on my Labs. Nor Any of the 7 Main foods.
3) Sunflower Butter is Safe to try when my body is in remission?
4) Should I avoid ALL legumes? Is there a Safe substitute nutritionally for Legumes?

Thank you again and Again!
TREESE

[tex]

1) What about Milk Alternatives such as Almond Milk? My 2+ for Almonds and Cashews means to exclude even Almond Milk?

Most of us who are sensitive to almonds can still use almond milk, but there are no guarantees for anyone.

2) Is Hemp or Rice Milk safe then? I had no reactivity to Rice on my Labs. Nor Any of the 7 Main foods.

Maybe. I found that hemp milk caused me to have bloating, when I was recovering. Rice milk has a fermentation process that's started with barley malt (which is a no-no). The manufacturer's claim that they filter out most of the antigen, but they only remove enough so that the product can carry a gluten-free label. It can still contain up to 20 parts per million of gluten legally. You might or might not be able to tolerate it. I don't use it. I use almond milk.

3) Sunflower Butter is Safe to try when my body is in remission?

Maybe. As I said, there are no guarantees, because we're all different.

4) Should I avoid ALL legumes? Is there a Safe substitute nutritionally for Legumes?

Yes, If you want to minimize the risk of not being able to reach or stay in remission. I'm sensitive to soy, and eating peanuts caused me to have ileus. Ileus is the situation where your digestive system completely stops working — a serious condition, to say the least. I wouldn't touch peanut butter with a 10-foot pole after having that experience.

A safe substitute is any safe meat. Meat contains every amino acid essential to health.

Tex

[TREESE]

That was a very complete Reply TEX, thank you!

Is there a LIST of SAFE Condiments like Cinnamon, Honey and Ginger OR Parsley, Onion and Garlic powder on or baked into foods anywhere on the Forum?

OR Does it go by the Entero Lab Results somehow?

Thank You!
TREESE

[tex]

There are no lists because all seasonings and condiments other than salt should be avoided during recovery and we're all different. After you're in remission, you can try condiments one at a time to see if they're safe for you.

Tex

[TREESE]

Thanks TEX for your last Reply about Condiments!

For You and For Gabes, About PEANUT BUTTER and Soy. I found On Line that they now sell Peanut Butters without SOY in them. Skippy makes one and Peter Pan does, too. BELOW is Skippy's Ad......

Soy-Free & Gluten-Free Skippy Natural Peanut Butter (Creamy)
It tastes amazing and only has 4 ingredients in it.
Ingredients
• Roasted Peanuts
• Sugar
• Palm Oil
• Salt
Now lets compare that to Skippy’s normal creamy peanut butter which has 6 ingredients in it.
Ingredients
• Roasted Peanuts
• Sugar
• Hydrogenated Vegetable Oil
• Soybean
• Rapeseed Oil
• Salt

See what You think! Have you ever heard of these before? You think they might be SAFE?

TREESE

[Gabes-Apg]

it may not have added soy - but a peanut is a legume.

if you go back to our replies to your question about peanuts - peanuts are a legume so there is a high chance you will react!!

I know you are keen to find condiments etc - the focus in the early stages of healing are nutritionally healing foods...
I encourage you to put your focus into finding safe meat proteins and veges that can be your staples

there is minimal nutritional benefit to eating peanut butter.

[TREESE]

Hello, Gabes and TEX - I am so confused right now and I am exhausting you with way too many questions, I know. But my Labs have me utterly bewildered. May I ask you for further assistance regarding my Labs Please?? I NEED to gain my weight back and I had been relying heavily on Nut Butters in that regard in the past few years. And Milk and Cheeses and Yogurt. What can I do for weight gain now? Please HELP!

Fecal Anti-gliadin ---- 13 Units
Fecal Anti-Casein Iga .. 9 Units
Fecal Anti-Ovalbumin IgA ... 6 Units
Fecal Anti-Soy IgA ......12 Units
Mean Value 11 Antigenic Foods or 18 Units (Normal is less than 10)

7 Food Groups show No Significant reactivity

Some Activity from those foods below
1+ Oats
2+ Almond & Cashew
3+ Walnut

Thank You so much,
TREESE

[tex]

Treese,

I realize you don't want to face this fact (none of us do), but you're worrying about the wrong thing. You continue to worry about gaining weight while in a flare. This amounts to

Gaining weight is not going to happen before you're in remission, because an inflamed digestive system cannot absorb nutrients well enough to gain weight. The best you can do is to eat larger helpings of safe foods, but as meals get larger, you're going to run out of digestive enzymes at some point, so that some of the food will not be completely digested. Undigested food only adds to the diarrhea and bloating.

We have to get to remission first, then gaining weight will once again become possible as our intestines heal. There are no magic shortcuts. I still remember how miserable I felt when I was down to hide and bones. But worrying about it did me absolutely no good. Once I reached remission, the pounds soon returned. This is just one of many features that make MC such a cruel, unforgiving disease.

Tex

[Gabes-Apg]

Agree with Tex
for now focus on finding your safe staples, reducing inflammation and letting the body heal.

Healing takes time - months and years (not days)

let go of perfectionism
learn to embrace what is and being patient.

the healing journey is not fixed, nor perfect. it is a crazy dance, 1 step forward, 1 step to the side, here and there backward steps, standing on the spot. the more you focus on progress the more anxiety can build.

[TREESE]

Hello again Gabes and TEX - Thank you for your patience with me. I realize I have been a bit slow (to say the least) in grasping what you have both been saying to me. I'm truly sorry!

My GI began to reduce the Budesonide to Two pills yesterday, so Everything, even that, that you have been saying right along, and what Carol and Brandy also said, has been correct.

I think I just need to accept where I am right now and allow all you have said time to sink in.

I hope I have not caused you to resent me. Please pardon me if I have.

You are All a God-send and I truly appreciate you!

Thank You!
TREESE

[Gabes-Apg]

Treese
your journey is very similar to many many here - it is hard to accept that there is no quick fix, simple answer.
the reality that life with MC can be a bit of hard work at first is hard to grasp.

I hope I have not caused you to resent me. Please pardon me if I have.

not in any way - the combo of my aussie 'straight speaking' approach along with sometimes people need the 'tough love' answers to bring them into some of the realities of life with MC, my replies can come across slightly harsh.
our replies are with love and care that we want you to heal, we want you to enjoy life with minimal symptoms. our years of experience we have formulated the plan that works best - a few thousand people have proven this!!
we want to guide you to a thought process that is productive to the healing process.