Healing!

[KDarby]

So guys, I started implementing the diet. I have had about a week or so of normal BMs. I have gotten a flare here and there but it isn’t WD but more mushy. Is there anyone who has experienced this on the road to healing! I’m not sure if it’s stress, hormones or more fine tuning with my diet needed. I have been very strict with stuff. I did eat a gluten free bagel and I’m thinking maybe it was too harsh. Also I’m close to my cycle so thinking it could also be hormones. Any advice appreciated

[tex]

That's completely normal for most of us. The road to recovery is not without a few bumps. Hang in there. Sounds like you're doing well.

Tex

[KDarby]

I am definitely better than I have been all year after following the suggestions I found on this page! When I had my first normal BM I almost cried. It has been a little bit of a let down for it to come back at times. Just hoping once I heal more the incidents will be less and less. Thanks for everything you do Tex and all the info you share.

[KDarby]

Apparently spoke too soon. It’s back now . I hate this.

[tex]

Especially during your initial recovery, hormonal changes can indeed cause a relapse, so hopefully you'll be back to making progress toward your recovery again after the hormonal changes settle down. That may or may not continue to be a problem in the future, after you get to remission. Please don't let the setback discourage you.

Tex

[KDarby]

Thank you Tex! I truly appreciate your encouragement. Yesterday was not a good day. I wanted to give up. I already struggle with depression and when it comes to this worst of having this condition, it almost pushes me over the edge. I have to stay in constant prayer. Some days this feels never ending. Like I’ll never reach remission or some sense of normalcy. It seemed all great only to come crashing down again. It’s hard to know what to attribute it to. I do have budesonide on hand but I don’t know if I need to actually use it. Especially since it HAD in fact gone away for a few days. I can’t thank you enough for this page. This has given me a light at the end of the tunnel that I didn’t even have a hope of before. I am sorry for my emotional lability at times. This condition sure is a roller coaster. Thank you all. I do think maybe some PB was the culprit also? Thinking back I did have about 2 Tbs of some on a GF English muffin. But at this point like I said, my head spins thinking of all it could be.

[Harmony33]

Hello Darby,

Have you considered xanthan gum or tapioca starch as an ingredient in your GF bagel and English muffin? Even after two years, I am not able to tolerate the xanthan gum (or any gums) in commercial gluten free products. This includes baked goods, non-dairy “milks” and many products in jars and packages. We are all different, but it is a possibility.

[KDarby]

Hello Darby,

Have you considered xanthan gum or tapioca starch as an ingredient in your GF bagel and English muffin? Even after two years, I am not able to tolerate the xanthan gum (or any gums) in commercial gluten free products. This includes baked goods, non-dairy “milks” and many products in jars and packages. We are all different, but it is a possibility.

I haven’t! But could very well be a possibility. I’m gonna leave the GF commercial stuff alone for now.

[AGM]

I have no advice KDarby, but I just wanted to say that I empathise with you. I had my first flare last August and was able to get into remission through diet. I was doing really well and had introduced quite a few foods to my diet until I got a bad cold 7 weeks ago and it triggered me into another flare. I am back on safe foods, but feeling very down about the ups and downs. I also feel elated when I have a day with near normal BMs, but unfortunately most days for me this time have been looser than that. It is really hard, though what Tex said about patience and endurance is so true. I am finding it much harder this time to stick completely to the diet and every few days I end up having something that isn't safe - I also had one small spoon of PB one day which sent things worse the next day. I guess I am finding it harder, as just two months ago I could have all that other stuff and it was "safe" for me, but it seems now it isn't. I'm also feeling very stressed, which I know doesn't help healing at all. Some other great advice I have gotten here is not to focus on healing on a daily basis, but look at the bigger picture. How are you feeling now in comparison to a month ago etc?

We can heal!! :)

[KDarby]

I appreciate your reply. I get very down with the ups and downs. I’m trying a new approach to diet. Eliminating chicken and rice and potatoes as it was suggested to me. So we shall see. I’m just not going to accept that this is how it’s going to be forever. Praying for healing and a new normal, albeit having a newfound diet and being more cognizant of what I’m putting in my body. Maybe it’s all been a blessing in disguise. Who knows. Pushing through to hopefulness today. Hugs to you!

[brandy]

It is a very good sign that you are getting "some" solid normans.

Healing has a lot of ups and downs.

Even now I don't do well with items that have an ingredient list.

Don't overlook the impact of stress. We have been living in very stressful times the last year.

[KDarby]

It is a very good sign that you are getting "some" solid normans.

Healing has a lot of ups and downs.

Even now I don't do well with items that have an ingredient list.

Don't overlook the impact of stress. We have been living in very stressful times the last year.

It’s just so frustrating. It seems like there is no way to tell when the flares happen and how to stop them. I don’t understand how I can have a very normal solid BM then immediately after have WD. I know stress plays a part. A huge part. But I just don’t know how I can possibly control that any more than I currently do or try to do. I also still have so much bloating. I haven’t eaten any gluten at all so idk how I am still having symptoms.

[KDarby]

It’s also very frustrating because I am trying to lose weight and I cannot. I gained weight from budesonide and I am yet to lose it all

[tex]

For better or for worse, one of the main things that MC forces us to learn (assuming that we're able to successfully control the disease), is patience.

Tex

[AGM]

I thought my kids taught me patience Tex, but MC is right up there with them!!