Check in

[HockeyMom]

Hello Potty Peeps!

I pop in and lurk a little. No real reason to chime in on any posts lately. I continue to do well but wanted to let everyone know that I started getting a little SQUIDGY some months ago. Increasing the cholestyramine didn’t solve the problem. What appears to have made things better is ramping back up on the Betaine HCl and digestive enzymes with every meal .

What do I mean by ramping up? 2 digestive enzyme capsules and 3 Betaine HCl capsules with meals. Gets things back to normal and eliminates any gut rolling, churning, weirdness . Don’t hate me but I eat and drink whatever now. Honestly folks, when I weighed 100# @ 5’ 6” 4 years ago and was very concerned that this might kill me....being where I am now seemed impossible .

Due to insurance prescription weirdness at work, I tried blending in Zydus brand generic with the Sandoz and it did not go well. I am now private paying for Sandoz brand generic....fancy that. I have been trading emails with HR at work about this. I have to check GoodRx or Singlecare monthly to see who is the best deal at CVS...as they will order Sandoz for me.

I’ve traveled a bit this year and will be in NOLA next week to visit a good friend. We are both hospital workers who are vaccinated . Unfortunately my assignment for the past 2 months has been ICU which of course is mostly Covid. Unvaccinated folks. Mostly obese, but not all. Heartbreaking and sad but your choice I guess huh ? Lots of my patients die. And we fear that the vast majority of the seriously affected survivors will just be warehoused in long term acute care facilities. We are Physical and Occupational Therapists...so a I guess we are more concerned with your quality of life . I don’t believe families understand the deal with this thing..

So..just wanted to check in and relay that Betaine HCl and digestive enzyme info!

Laine

[tex]

Hi Laine,

Thanks for posting your experiences, and insights. Somehow, it doesn't seem right, though, to be apologizing for being able to do what all the rest of us can only dream about. You've fought this disease up one side of the aisle, and down the other, for years, and it looks like you've finally beaten it into submission. Good for you. And congratulations on your victory.

I hope your total remission proves to be lasting.

Tex

[brandy]

Have fun on your break to New Orleans! Thank you for being a health care hero!

[kat5860]

Wow, that is excellent news! I'm happy for you!
Thank you for your hard work, cheers to all you front line workers!!

May I ask what brands you use for the Betaine HCI and the digestive enzymes?

[HockeyMom]

I think the Betaine HCl is NOW brand (I’m at the airport right now..) which I can order in double packs from Amazon..and a couple digestive enzymes I’ve used that I also order off Amazon. I do the digestive enzymes that don’t have lots of extra stuff added and I believe they are both gf/DF/sf..

Laine

[KarenT]

Thanks Laine! Safe trip!!