Where do I start - EnteroLab Results are Depressing!

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tex
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Re: Where do I start - EnteroLab Results are Depressing!

Post by tex »

Hello Linda,

Sounds like he's doing well, and on track. Good job.

Regarding the kidney function issue, I had a similar problem when I developed a magnesium deficiency. My eGFR tested in the upper 30s. I was thinking an oral magnesium supplement at the time, but apparently it was poorly absorbed. I now take 300 mg of magnesium glycinate daily, divided up to take one tablet after each meal. But be careful with magnesium if he happens to have chronic kidney disease (CKD), because too much magnesium at one time can overload the kidneys, and if the blood level gets too high, it can cause cardiovascular issues, including a heart attack. It's a good idea to coordinate a supplemental magnesium dose with your doctor, if you can.

Dehydration can cause an elevated creatinine level, so be sure he's drinking plenty of water. That may be all he needs to eliminate the creatinine issue. Drinking plenty of water may have helped me more than the magnesium, because I try to drink more water, now.

I hope this helps.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
jandlfin
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Re: Where do I start - EnteroLab Results are Depressing!

Post by jandlfin »

Thank you, Tex.

I never found the Magnesium Glycinate, but he will probably cut back on the Mag Baths and he will definitely be tested or have a discussion with his local doctor.

I do (very) regularly ask him to drink water and he is trying to drink more.

Do you think it is too soon to try over cooked broccoli and or asparagus? Or wait until we sort this issue out.

Thank you again!
Linda
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tex
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Re: Where do I start - EnteroLab Results are Depressing!

Post by tex »

Sorry, I forgot to address the broccoli question, last time. Broccoli is a safe food for most of us. Early on, when we can't get rid of trapped gas in our intestines, broccoli can add to the bloating and discomfort, because the digestion of broccoli normally produces a significant amount of gas. But as our digestion improves, and we become better able to pass gas again, broccoli should be a safe edition to our diet.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
jandlfin
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Joined: Fri Apr 30, 2021 8:36 pm

Re: Where do I start - EnteroLab Results are Depressing!

Post by jandlfin »

Tex,
Thank you.

Would you say we should stay with the diet as is or is it too early to move to a Stage 2 diet.
I am not sure I ever really found a Stage 2 diet suggestions, but I remember reading about a Stage 2.

With the high creatinine, he wants to reduce the amount of meat, so he wants to add some other safe food(s).
He will not take the Mag Baths as often and he is trying to drink more water....hopefully that helps.
His appointment with his PCP is not until next Thursday.

Any other suggestions are welcome.
We are extremely grateful to have found this site!

Linda
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tex
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Re: Where do I start - EnteroLab Results are Depressing!

Post by tex »

It's best to not make too many changes at the same time, or make any drastic changes, early on. Changes should be made slowly, to give the body time to adjust. Of course this will depend on how long he was reacting before he started to recover. If our digestion has been compromised for years, for example, because of inflammation, then our ability to ramp up production of certain enzymes, needed to digest certain foods, may have to be "relearned" by the system. If we've only been reacting for a relatively short time, we may not have lost the ability to ramp up production of most digestive enzymes. Sometimes we have to listen to our body, when we're attempting to make changes, as we're still healing.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
jandlfin
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Joined: Fri Apr 30, 2021 8:36 pm

Re: Where do I start - EnteroLab Results are Depressing!

Post by jandlfin »

Tex,

His 5th injection of the study drug was January, however, he started reacting either late November or December, but stopped the study drug on that 5th shot.

We will take things slow as suggested and see what the PCP says next week.

Thank you, again.
Linda
jandlfin
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Re: Where do I start - EnteroLab Results are Depressing!

Post by jandlfin »

Hello,

I was wondering if anyone from this support group has researched or tried the GF products from GF Jules or gfjules.com.

If so, any comments?

Thank you,
Linda
jandlfin
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Re: Where do I start - EnteroLab Results are Depressing!

Post by jandlfin »

Hello,
Well, going back to my August 26, post...my husband's creatinine was high for several months, so the study team wanted him to see his PCP.

His PCP ordered blood samples and an ultrasound of the kidneys. Kidneys had no blockage however, the PCP is suggesting he see a Nephrologist.

I guess the blood test showed anemia, because the PCP ordered 325mg of Ferrous Sulfate (1 three times daily) which could cause stomach upset, diarrhea, etc. We thought that was too much, so we found OTC 45 mg and he is going to start with 1 a day with breakfast and see how that goes.

We see the study team this coming Tuesday, so we will see what the labs look like there before we consider seeing a Nephrologist.

Anyone having any Kidney issues on this diet? I think my husband was overdoing the portions of meat for the last several months, so he cut back and increased safe vegetables, rice Chex cereal and is still having formed stools. I will say weight gain and body mass is suffering.

Any comments or suggestions.
Thank you,
Linda
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tex
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Re: Where do I start - EnteroLab Results are Depressing!

Post by tex »

Hi Linda,

I had compromised kidney function problems roughly 5 or 6 years ago. In my case, the problem apparently started because of a chronic magnesium deficiency, and this corrupted my TSH test results, which caused my doctor to cut my thyroid treatment in half. None of my doctors could figure out what was going on, but I eventually figured out that the initial problem was a chronic magnesium deficiency, which I then immediately resolved. But by then, my doctor had cut my thyroid treatment In half, which caused the kidney function problems to continue. I went through all the kidney scans and other tests, but they looked fine.To cut to the chase, this eventually caused me to have an arrhythmia, which was followed in three weeks by a stroke. I thought that was the end of the arrhythmia problems, but a year and 1/2 later, I had another arrhythmia. Naturally my doctors still couldn't figure out what was wrong, so I decided I'd better figure out the problem myself, before I had another stroke.

A search of the medical literature turned up what I was looking for — sure enough, I found published research data that showed how undertreated hypothyroidism can lead to compromised kidney function, which can lead to an arrhythmia. And obviously arrhythmias can lead to a stroke.

Of course this doesn't apply to everyone who has kidney issues, because it appears that a high-protein diet corrupts the creatinine test results, which of course indicates kidney disease, since the eGFR results are calculated from the creatinine results. Brandy, another member here, had to deal with this issue a few years ago. She simply backs off on the protein for a week or so before she goes for a blood draw, whenever she has tests scheduled.

My eGFR results were in the mid to upper 30s on at least several occasions such as when I passed a couple of kidney stones (because of the magnesium deficiency) and whenever I was having an arrhythmia. After I showed my doctor all the research, and convinced him to restore my thyroid treatment, the arrhythmias disappeared and my eGFR results are now usually higher than they've ever been. My situation was so complex, with so many issues being interdependent, that it can't be simply explained In a few paragraphs, so I wrote a short book about it. If you're interested, I'll send you a free copy if you PM or email me your mailing address. Be sure to tell me whether you want a digital version or a printed book. Or, if you prefer, you can buy the book in either printed or digital form, on Amazon at the following link:

https://www.amazon.com/gp/product/B09CL ... tkin_p1_i4

I hope this helps,

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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