MC is GONE! Is Monoclonal Antibodies Injection a Cure?
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- drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
MC is GONE! Is Monoclonal Antibodies Injection a Cure?
I got Covid, got the Monoclonal Antibodies injection. All I can say is that my MC has been gone since this injection!
I was diagnosed with MC over 10 years ago (I have had it for most of my 70 years of life, but finally got a diagnosis and repeated re-diagnosis)
All I can say is that my MC is GONE!!!
I am Celiac, with Hypothyroidism and thus I avoid many foods and wine but nothing really worked.
I realize that I finally-after so many years-might just be in remission.
However, I think it is GONE!
I did some online research and saw that it stated " They’re also used to treat chronic inflammatory diseases like Crohn’s disease "
It also has been used to cure cancer.
Makes me wonder how many cures are being hidden from us?
https://www.mdanderson.org/cancerwise/m ... 86679.html
I was diagnosed with MC over 10 years ago (I have had it for most of my 70 years of life, but finally got a diagnosis and repeated re-diagnosis)
All I can say is that my MC is GONE!!!
I am Celiac, with Hypothyroidism and thus I avoid many foods and wine but nothing really worked.
I realize that I finally-after so many years-might just be in remission.
However, I think it is GONE!
I did some online research and saw that it stated " They’re also used to treat chronic inflammatory diseases like Crohn’s disease "
It also has been used to cure cancer.
Makes me wonder how many cures are being hidden from us?
https://www.mdanderson.org/cancerwise/m ... 86679.html
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
- drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Hi Deb,
It's good to see an update from you, especially one with such good news. This certainly raises some interesting possibilities. Of course, I'm wondering how long it has been since you had the last infusion, and how long you have been in remission.
Viruses have the ability to alter genes. I wonder if it's possible that COVID itself might have altered your genetics so that when you received the infusions, which prevented the virus from replicating, your immune system was left with changes that effectively reprogrammed it to eliminate MC. There appear to be a lot of fascinating possibilities here.
I hope your MC is indeed gone, because that would make this a whole new ballgame for MC patients in general.
Thanks for sharing this information.
Tex
PS I'm going to move this topic to the Main Message Board, so that more people will be likely to notice it.
It's good to see an update from you, especially one with such good news. This certainly raises some interesting possibilities. Of course, I'm wondering how long it has been since you had the last infusion, and how long you have been in remission.
Viruses have the ability to alter genes. I wonder if it's possible that COVID itself might have altered your genetics so that when you received the infusions, which prevented the virus from replicating, your immune system was left with changes that effectively reprogrammed it to eliminate MC. There appear to be a lot of fascinating possibilities here.
I hope your MC is indeed gone, because that would make this a whole new ballgame for MC patients in general.
Thanks for sharing this information.
Tex
PS I'm going to move this topic to the Main Message Board, so that more people will be likely to notice it.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
- drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Hi Tex,
I was diagnosed with COVID, mid September. During COVID, diarrhea was horrific. (worse than ever) All I can say is that COVID symptoms disappeared about 3 days after the injection. However the absence of diarrhea was immediate. I have never been in remission without Budesonide. So this has been amazing!
I did some research. It appears that monoclonal antibody injections are already being used for some ulcerative colitis and Crohn's patients.
Sorry I have been away. Doug had had some serious issues-stroke and cancer. He is currently on the mend but this has been time consuming.
Take Care, dear Tex!
Deb
I was diagnosed with COVID, mid September. During COVID, diarrhea was horrific. (worse than ever) All I can say is that COVID symptoms disappeared about 3 days after the injection. However the absence of diarrhea was immediate. I have never been in remission without Budesonide. So this has been amazing!
I did some research. It appears that monoclonal antibody injections are already being used for some ulcerative colitis and Crohn's patients.
Sorry I have been away. Doug had had some serious issues-stroke and cancer. He is currently on the mend but this has been time consuming.
Take Care, dear Tex!
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Hi Deb,
Thanks for that information. That appears to add a new dimension to treating IBDs, especially if your remission endures the test of time.
Sorry to hear of Doug's health issues. Having been through a stroke myself, I certainly understand how tough it can be, and having to deal with cancer at the same time certainly compounds the problems. I hope he eventually recovers as well as I did.
All my best,
Tex
Thanks for that information. That appears to add a new dimension to treating IBDs, especially if your remission endures the test of time.
Sorry to hear of Doug's health issues. Having been through a stroke myself, I certainly understand how tough it can be, and having to deal with cancer at the same time certainly compounds the problems. I hope he eventually recovers as well as I did.
All my best,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Deb, Congratulations! Perhaps now there is another tool in the toolbox for tougher MC cases. Keep us posted.
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Wow Deb, that is amazing news about your MC!! I hope it is gone for good and you check back in with in updates.
I'm sorry your husband is going through so much. I hope his prognosis is good.
Karen
I'm sorry your husband is going through so much. I hope his prognosis is good.
Karen
Karen
(AKA: KarenT)
(AKA: KarenT)
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Hi team,
I'd like to add some more data to this discussion, as it seems that monoclonal antibodies are used to treat MC, when the patient does not respond to budesonide, so this is no coincidence in my opinion:
https://pubmed.ncbi.nlm.nih.gov/30329034/
The European Guidelines, put together by the well-respected European Microscopic Colitis Group also mention this study and add it to their recommendations:
https://journals.sagepub.com/doi/full/1 ... 0620951905
Lastly, it is also mentioned in Dr Andreas Münch's paper on mistakes that gastroenterologists commonly make when treating the condition:
https://ueg.eu/a/272
I'd like to add some more data to this discussion, as it seems that monoclonal antibodies are used to treat MC, when the patient does not respond to budesonide, so this is no coincidence in my opinion:
https://pubmed.ncbi.nlm.nih.gov/30329034/
The European Guidelines, put together by the well-respected European Microscopic Colitis Group also mention this study and add it to their recommendations:
https://journals.sagepub.com/doi/full/1 ... 0620951905
Lastly, it is also mentioned in Dr Andreas Münch's paper on mistakes that gastroenterologists commonly make when treating the condition:
https://ueg.eu/a/272
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Thanks. That last reference is an especially good one and should be required reading for every gastroenterologist in the world.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
Yes, that last article is very worthwhile, Tex. But I was very disappointed to see absolutely no mention of the role of food sensitivities...............
Rosie
Rosie
Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time………Thomas Edison
Re: MC is GONE! Is Monoclonal Antibodies Injection a Cure?
I agree, the article is a long way from perfect, but at least it covers most of the other issues on which most gastroenterologists fall short.
I suspect the basic problem here, and in most such cases for that matter, is that the author is a "full-blooded" MD, and MDs are trained to make their living by writing prescriptions for powerful drugs. Most of them probably don't even consider diet changes to be a primary treatment, and for good reason — the vast majority of their patients don't consider diet changes to be a "real" medical treatment.
When they go to see their doctor, most patients expect to walk away with a prescription for a pill that will cure their ills, and this eventually brainwashes doctors into believing that's true. Probably the last thing that most patients want to hear from their doctor is,"I'm afraid your disease is terminal." And the second to last thing they want to hear is, "You'll have to change your diet, and stop eating most of your favorite foods." At least that's my impression.
Tex
I suspect the basic problem here, and in most such cases for that matter, is that the author is a "full-blooded" MD, and MDs are trained to make their living by writing prescriptions for powerful drugs. Most of them probably don't even consider diet changes to be a primary treatment, and for good reason — the vast majority of their patients don't consider diet changes to be a "real" medical treatment.
When they go to see their doctor, most patients expect to walk away with a prescription for a pill that will cure their ills, and this eventually brainwashes doctors into believing that's true. Probably the last thing that most patients want to hear from their doctor is,"I'm afraid your disease is terminal." And the second to last thing they want to hear is, "You'll have to change your diet, and stop eating most of your favorite foods." At least that's my impression.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.