Small Fiber Neuropathy
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Small Fiber Neuropathy
Has anyone been diagnosed with small fiber neuropathy? If so what are you doing for it? Tex, I read one of your previous posts that you were taking Metanax, are you still doing that and is it helping? Thanks! Donna
Donna
Diagnosed with CC August 2011
Diagnosed with CC August 2011
Re: Small Fiber Neuropathy
Hi Donna,
Long time, no see. Metanx is a prescription supplement, and back when the current healthcare plan was adopted, it seemed to go up every time I picked up a prescription refill. It finally got to be so high that I started taking a generic by Thorne Research. I started taking Methyl-Guard Plus. The label dose is 2 capsules per day, but I only take one, and it seems to work fine It has a couple more ingredients, but they are probably helpful. At any rate, I'd hate to have to try to get by without it. They also make a product called Methyl-Guard (without the plus) that has one or 2 fewer ingredients, and smaller doses of the active ingredients, which sells at a lower price, of course.
I believe Brandy, and a few others here, take Methyl-Guard Plus, also.
Tex
Long time, no see. Metanx is a prescription supplement, and back when the current healthcare plan was adopted, it seemed to go up every time I picked up a prescription refill. It finally got to be so high that I started taking a generic by Thorne Research. I started taking Methyl-Guard Plus. The label dose is 2 capsules per day, but I only take one, and it seems to work fine It has a couple more ingredients, but they are probably helpful. At any rate, I'd hate to have to try to get by without it. They also make a product called Methyl-Guard (without the plus) that has one or 2 fewer ingredients, and smaller doses of the active ingredients, which sells at a lower price, of course.
I believe Brandy, and a few others here, take Methyl-Guard Plus, also.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: Small Fiber Neuropathy
Tex,
Thanks for your reply. Have you found the neuropathy to be stable over time?
It is interesting about SFN just like MC there isn't much they know about it and there is limited effective treatment. My MC has been stable, I continue to take a small amount of Cholestyramine daily. I am very grateful for this website and all that I have learned from it. Thank you for the hard work and effort you have put into it. Happy Holidays!
Thanks for your reply. Have you found the neuropathy to be stable over time?
It is interesting about SFN just like MC there isn't much they know about it and there is limited effective treatment. My MC has been stable, I continue to take a small amount of Cholestyramine daily. I am very grateful for this website and all that I have learned from it. Thank you for the hard work and effort you have put into it. Happy Holidays!
Donna
Diagnosed with CC August 2011
Diagnosed with CC August 2011
Re: Small Fiber Neuropathy
Thanks, and happy holidays to you too. My neuropathy seems to be well controlled. I have a hunch it would be much worse if it weren't being treated, but that's just a guess.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: Small Fiber Neuropathy
Thanks Tex, besides taking a vitamin supplement are you also managed with medication.
Thanks,
Thanks,
Donna
Diagnosed with CC August 2011
Diagnosed with CC August 2011
Re: Small Fiber Neuropathy
No, only the Methyl-Guard Plus.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.