Just a bit perplexed on food intolerances

[cmscalise]

Hello All...
It's been a while since I last visited. I have had my MC under control for the last couple of years (YAY), but developed a small sliding hiatal hernia with LPR (Laryngopharyngeal Reflux). Thinking this may be coming from the MC and food intolerance I re-tested with Enterolabs. What I have is now confusing me. How often do we need to test? Because I am coming up with totally different food intolerance's now. So, the foods I thought were safe are now showing as major triggers. My head is spinning. Gluten used to show as my biggy, but now dairy is taking center stage. My safe meat was pork, but now pork is a major trigger! My safe nut was cashew and now it's #1 enemy nut. Can anyone help me sort through this? Thank you!!! ~ Christine

[tex]

Hello Christine,

This seems to happen to some of us, but not others. It appears to be very uncommon. I initially tested negative for soy sensitivity, but a few years later, I had a digestive problem (Ilius) after eating peanuts, and so I suspected soy, and retested. Sure enough, I was now sensitive to soy. It seems that our immune system has a mind of its own, sometimes. It's possible that this (adverse immune system behavior) might be caused by a deficiency of vitamin D or magnesium, but that's just a guess. As far as I'm aware, there's no medical research devoted to this issue, so these are uncharted waters. Obviously though, developments such as this can certainly throw a monkey wrench into the best laid plans.

Tex

[cmscalise]

Thank you for the reply Tex. My vitamin D was just tested and it's 50.2 ng/ml. Should it be higher?It was 72 just a few months ago, but dropped. I also take a mag complex nightly. I am beyond frustrated. I feel like nutritionally I am going to suffer. I have so many food intolerance's. Where do I even start and why am I not able to get this under some sort of control with foods?
I'm sorry I don't mean to complain, just needing to vent some. I have a hiatal hernia with respiratory reflux (LPR) now on top of trying to keep the MC under wraps and I'm trying to not eat food triggers. (If that's even possible.) All this time I thought I was staying within my diet, but SURPRISE! Nope!
Thank you again for responding.
Christine

[tex]

Have you read the newsletter published in June by the Microscopic Colitis Foundation regarding the extreme challenges we face as we try to maintain a squeaky clean diet these days? For your convenience, a link where you can either read or download a copy of the newsletter is posted below:

https://www.microscopiccolitisfoundatio ... d91296.pdf

Look at everything you're putting into your mouth, and do whatever detective work is necessary to verify that it is, indeed, actually safe. Tracking down problems of this sort can be mighty tough, and often the culprit is something that we would never suspect, because we've given it a free pass for so long. Good luck tracking down the problem. If you're stumped, list everything you're ingesting, and will see if we can spot a problem.

Tex

[cmscalise]

Thank you Tex. I will try and be more diligent in keeping track!

[AnneKim]

Hello,

This is my first post here. I developed CC most likely in college, in 1988, but was not diagnosed until 2012. I have never noticed a food related flare. I did flare once after an NSAID, no longer use those. I have been GF for 5 years, but flares still come every 4-6 months, last 1-2 months, controlled with budesonide. Why do foods not bother me for months, than I flare?

[tex]

Hello Anne,

Welcome to the group. Regarding your question, this is not the only possibility, obviously, but the most likely reason for your cyclic reactions is regular cross-contamination in your diet. If you're eating any meals away from home, exposure to cross-contamination is almost guaranteed, because published research shows that at least half the meals served at restaurants that claim to provide gluten-free food, are cross contaminated with gluten. This small exposure, on a regular basis, slowly builds up the damage in your colon until it exceeds the threshold at which a reaction is initiated, and then you experience a flare.

Please note that published research shows that budesonide becomes less effective each time a treatment is ended and then restarted, so eventually we reach a point at which budesonide is no longer helpful. This varies by the individual, so it's impossible to predict when it may happen.

Anyway, in my opinion, this is probably the most likely scenario for your pattern of experiences. Again, welcome to the group, and please feel free to ask anything.

Tex