Hello from a newbie..
I was diagnosed with LC late last year. My GI put me on the pepto regimen for a few weeks without success, so she moved me to entocort. The story in the lifestyle section of the site is 100% me. I did some research on my own, asked questions about nutrition and tried some eliminations. My symptoms were fairly well controlled with the meds, but once I tapered off, the LC hit hard again. My GI put me back on another round and I've been on that for a little over 2 months. As I tapered down to one a day, my symptoms re-emerged, so I started my research back up and finally found this group. I'm so happy to have others to talk to who have walked in my shoes and can give real applicable advice.
A little about me: I have hashimotos and have been gluten free for years. Gluten is definitely a trigger for me. Two separate times in the past (one being last year) I completed labs (blood) to test for IgG antibodies for food sensitivity. A few came back slightly elevated, some because I ate a lot of those foods and not due to sensitivity. After elimination diets and doing all the things to heal the leaky gut, I reintroduced and found that only one or two foods caused me really serious issues. All this to say, I'm very familiar with the ways of elimination diets and identifying issues. However, the LC (and the steroids too) is making my body feel like a place I don't understand. I just found this group so I'm reading up on the recommendations and determining what my path forward looks like. I had a really really bad flare (i think this is the right terminology, but this is still a little new to me) 2 nights ago that had me up doing laundry and crying at 2 am.
In recent past, I also went through fructose and sibo breath tests and a small bowel follow through to take a look at a transient jejunojejunal intussusception which was picked up on a CT scan (which was completed as a follow up from being a survivor of cervical cancer).
I know I am going to have a ton of questions as I dig in. I read the recommended elimination diet and I also just ordered Tex's book. I'm thinking the next thing I need to look at is the Enterolabs testing? I do understand that the IgG tests I've had in the past are not the same. Apologies for any silly questions I ask along the way.. I'm pretty inquisitive and I'm also pretty happy to have people who can actually give me definitive and direct answers based on experience instead of pointing at a list of hundreds of things that could be the issue with no definitive plan to fix things.
Anyways, I'm going to keep reading all of your posts but just wanted to introduce myself and to thank you for creating the site and forum - it is so refreshing to talk to other people who have been here.
hello!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Re: hello!
Welcome to the group. It appears that you're on the right track to get a fresh start. Please feel free to post any questions you might have as you read through the information.
Again, welcome aboard, and I hope this is the first day of your recovery journey.
Tex
Again, welcome aboard, and I hope this is the first day of your recovery journey.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.