Hello,
I am newly diagnosed and got confusing results from my doctor today. I have been celiac for 20 years and follow a strict gluten free diet. My recent celiac blood test (ttg) was negative (6.7), which should indicate that I am not ingesting gluten.
However, in my recent colonoscopy/endoscopy, in addition to my LC diagnosis, they found villous atrophy in my small intestine consistent with active celiac disease. My doctor thinks it is because I am eating gluten, but I am sure I am not. I am wondering if LC can cause villous atrophy on its own? Could it be the culprit?
Thank you. This message board has been incredibly helpful in these first days of my diagnosis.
Confusing endoscopy/colonoscopy results
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Re: Confusing endoscopy/colonoscopy results
Hi,
Normally, MC is characterized in the small intestine by a Marsh one level of damage or less. Rarely is the damage more severe. That said, I have a hunch that for some of us who have the main celiac gene, the damage may be more extensive, because of our elevated inflammation level. As far as I'm aware, there's no medical research data to back up that speculation, but what the medical profession doesn't understand about MC could fill up a book or two.
Back in 2022, the Microscopic Colitis Foundation published a newsletter that discussed some of the cross-contamination issues that we've encountered over the years. For your convenience, here's a direct link where you can download a copy of that newsletter:
https://www.microscopiccolitisfoundatio ... d91296.pdf
if any of the situations discussed in that article are possible, your Doctor might be right.
Tex
Normally, MC is characterized in the small intestine by a Marsh one level of damage or less. Rarely is the damage more severe. That said, I have a hunch that for some of us who have the main celiac gene, the damage may be more extensive, because of our elevated inflammation level. As far as I'm aware, there's no medical research data to back up that speculation, but what the medical profession doesn't understand about MC could fill up a book or two.
Back in 2022, the Microscopic Colitis Foundation published a newsletter that discussed some of the cross-contamination issues that we've encountered over the years. For your convenience, here's a direct link where you can download a copy of that newsletter:
https://www.microscopiccolitisfoundatio ... d91296.pdf
if any of the situations discussed in that article are possible, your Doctor might be right.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.